Understanding the Dimensions of Medical Crowdfunding: A Visual Analytics Approach

Ren, Jie; Raghupathi, Viju; Raghupathi, Wullianallur

doi:10.2196/18813

Cited by 39 publications

(43 citation statements)

References 64 publications

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“…Since social media can reach varied stakeholders and a wide audience in society, nongovernmental health organizations can use social media to mobilize social resources. Studies found that these organizations leveraged social media to advocate for change in public policies related to health issues such as HIV/AIDS [62] and mental health [63], raise funds for individual medical care and health-related research [64,65], and raise awareness and promote actions to address health problems such as medical equipment shortages [66]. Although a formal test of the effectiveness of using social media for social mobilization is lacking, the successful cases described in the articles show that social media provides a platform for nongovernmental health organizations to effectively mobilize resources and advocate for collective actions to achieve their goals [62].…”

Section: Social Mobilizationmentioning

confidence: 99%

Social Media Use for Health Purposes: Systematic Review

Chen¹,

Wang²

2021

J Med Internet Res

456

220

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Background Social media has been widely used for health-related purposes, especially during the COVID-19 pandemic. Previous reviews have summarized social media uses for a specific health purpose such as health interventions, health campaigns, medical education, and disease outbreak surveillance. The most recent comprehensive review of social media uses for health purposes, however, was conducted in 2013. A systematic review that covers various health purposes is needed to reveal the new usages and research gaps that emerge in recent years. Objective This study aimed to provide a systematic review of social media uses for health purposes that have been identified in previous studies. Methods The researchers searched for peer-reviewed journal articles published between 2006 and 2020 in 12 databases covering medicine, public health, and social science. After coding the articles in terms of publication year, journal area, country, method, social media platform, and social media use for health purposes, the researchers provided a review of social media use for health purposes identified in these articles. Results This study summarized 10 social media uses for various health purposes by health institutions, health researchers and practitioners, and the public. Conclusions Social media can be used for various health purposes. Several new usages have emerged since 2013 including advancing health research and practice, social mobilization, and facilitating offline health-related services and events. Research gaps exist regarding advancing strategic use of social media based on audience segmentation, evaluating the impact of social media in health interventions, understanding the impact of health identity development, and addressing privacy concerns.

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Section: Social Mobilizationmentioning

confidence: 99%

Social Media Use for Health Purposes: Systematic Review

Chen¹,

Wang²

2021

J Med Internet Res

456

220

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“…Xu and Wang (2019) and Ba et al (2021) extend the research to the context of China. Regarding the role of social media in MC, Beier and Wagner (2015), Lu et al (2015), and Ren et al (2020) show that social media helps to spread MC campaigns. Berliner and Kenworthy (2017) and Kubheka (2020) emphasize the requirement of digital skills in MC successful in social media.…”

Section: Introductionmentioning

confidence: 99%

Explaining Donation Behavior in Medical Crowdfunding in Social Media

et al. 2021

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Medical crowdfunding in social media is growing to be a convenient, accessible, and secure manner to cover medical expenses. It differs from traditional donation initiatives and medical crowdfunding on non-social media platforms in that projects are disseminated via social media network and among acquaintances. Through semi-structured in-depth interviews on donation behaviors of 52 respondents, this study uses grounded theory to extract seven main categories that affect medical crowdfunding donation behavior in social media, namely interpersonal relationship, reciprocity of helping, attitude toward donation, perceived behavior control, perceived trust, project information, and characteristics of patients. In the spirit of Elaboration Likelihood Model, we develop a theoretical framework that the seven factors influence donation behavior in medical crowdfunding in social media via a central and a peripheral route.

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“…There are three ways to access medical campaigns through the US version of the GoFundMe website: accessing a list of 1,000 campaigns selected algorithmically by the site, listed in the 'Medical' category of the 'Discover' page; searching for campaigns with a specific keyword (e.g., 'cancer'); or obtaining a direct link to a campaign through social media or similar means. Like other recent research on GoFundMe (Ren et al, 2020;Saleh et al, 2020), we used the first approach, since it is in practice the most viable means of obtaining a wide variety of campaigns across the US that are guaranteed to be in the medical category. The most viable alternative would be to use the search feature, but that would limit results to campaigns that match pre-defined keywords.…”

Section: Methodsmentioning

confidence: 99%

New digital safety net or just more ‘friendfunding’? Institutional analysis of medical crowdfunding in the United States

Lee

Lehdonvirta

2020

Information, Communication & Society

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Crowdfunding is becoming a popular way of financing healthcare. Some commentators suggest that crowdfunding could serve as a new institution that fills gaps in conventional safety nets. Others suggest that crowdfunding is simply another way of obtaining help from family, friends, and local associations, and has little transformative potential. We provide one of the first quantitative analyses of medical crowdfunding, and the first to model the broader societal context in which campaigns are situated. We scraped data on US medical campaigns from the leading platform and combined them with county-level socioeconomic data, to model predictors of campaign frequency and success. Our findings suggest that many seek help from crowdfunding when both formal and informal conventional safety nets fail them. Significantly more campaigns are initiated in US counties with poorer private insurance coverage, lower social security provision, fewer social associations, and weaker cultures of giving. However, few campaigns reach their goals where most needed. More successful campaigns are found in counties that are wealthier and healthier and have more social associations. Crowdfunding is not merely 'friendfunding': fundraisers can increase their chances of success by having their appeals widely shared on social media. However, the returns to sharing are greater for campaigns initiated in wealthier areas. Overall, our findings suggest that medical crowdfunding is an entrepreneurial safety net: one where protection is not afforded universally or on the basis of need, but on the basis of one's ability to appeal to the audience and outcompete rivalling needfuls.

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Understanding the Dimensions of Medical Crowdfunding: A Visual Analytics Approach

Cited by 39 publications

References 64 publications

Social Media Use for Health Purposes: Systematic Review

Social Media Use for Health Purposes: Systematic Review

Explaining Donation Behavior in Medical Crowdfunding in Social Media

New digital safety net or just more ‘friendfunding’? Institutional analysis of medical crowdfunding in the United States

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