Understanding the dining experience of individuals with dysphagia living in care facilities: A grounded theory analysis

Shune, Samantha; Linville, Deanna

doi:10.1016/j.ijnurstu.2019.01.017

Cited by 26 publications

(24 citation statements)

References 46 publications

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“…20 The stakeholders of a nursing home include the elderly people and their family members, healthcare professionals, nursing home administrators and department supervisors. [50][51][52][53][54][55][56][57][58][59][60][61][62][63] In mainland China, the department supervisor for nursing homes is the Ministry of Civil Affairs. Aspects described as integral parts of a smart nursing home include adherence to guidelines, standards and other elements relating to the evaluation of a smart nursing home.…”

Section: Review Questions and Objectivesmentioning

confidence: 99%

Defining the concepts of a smart nursing home and its potential technology utilities that integrate medical services and are acceptable to stakeholders: a scoping review protocol

et al. 2021

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IntroductionSmart technologies, digital health and eHealth have been shown to enhance institutional elderly care. Because of the rapidly ageing societies, information technologies in geriatric healthcare are urgently needed. A lot of innovation in smart healthcare has occurred in the past decade, and its use in nursing care assessment, daily living activities and service management is yet to be defined. More fundamentally, the concepts, definitions and scopes of a smart nursing home are still vague. Thus, this scoping review aims to examine the extent, range (variety) and nature (characteristics) of evidence on the existing smart concepts and feasible healthcare technologies, types of medical services in nursing home settings and acceptability of a smart nursing home by the elderly people ≥60 years old, their caregivers, nursing home operators and government agencies.Methods and analysisThis scoping review will be guided by the smart technology adoption behaviours of elder consumers theoretical model (Elderadopt) by Golant and reported according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses for Scoping Reviews. First, we will conduct an internet search for nursing homes and websites and databases related to the stakeholders to retrieve the definitions, concepts and criteria of a smart nursing home (phase 1). Second, we will conduct an additional systematic electronic database search for published articles on any measures of technological feasibility and integration of medical services in nursing home settings and their acceptability by nursing home residents and caregivers (phase 2). The electronic database search will be carried out from 1999 to 30 September 2020 and limited to works published in English and Chinese languages. For phase 2, the selection of literature is further limited to residents of nursing homes aged ≥60 years old with or without medical needs but are not terminally ill or bed-bound. Qualitative data analysis will follow the Framework Methods and thematic analysis using combined inductive and deductive approaches, conducted by at least two reviewers.Ethics and disseminationThis protocol is registered on osf.io (URL: https://osf.io/qtwz2/). Ethical approval is not necessary as the scoping review is not a primary study, and the information is collected from selected articles that are publicly available sources. All findings will be disseminated at conferences and published in peer-reviewed journals.

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Section: Review Questions and Objectivesmentioning

confidence: 99%

Defining the concepts of a smart nursing home and its potential technology utilities that integrate medical services and are acceptable to stakeholders: a scoping review protocol

et al. 2021

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“…In addition to the type of neurodegenerative condition and prognosis for rate and process of decline, one must also take into account a variety of other important factors for dysphagia management planning (see Figure 1). Eating, being a function of everyday life, is often the centerpiece of many of our family gatherings, meetings for business, and holiday or religious traditions (Padilla et al, 2019;Shune & Linville, 2019). The eating process as a whole, which includes feeding and swallowing, can be affected in those with ALS and AD and, as a result, can take away the pleasure of mealtimes, impact quality of life, and lead to disease-related stigma (Padilla et al, 2019;Shune & Linville, 2019).…”

Section: Special Considerations In Dysphagia Management For Those With Neurodegenerative Conditionsmentioning

confidence: 99%

“…Eating, being a function of everyday life, is often the centerpiece of many of our family gatherings, meetings for business, and holiday or religious traditions (Padilla et al, 2019;Shune & Linville, 2019). The eating process as a whole, which includes feeding and swallowing, can be affected in those with ALS and AD and, as a result, can take away the pleasure of mealtimes, impact quality of life, and lead to disease-related stigma (Padilla et al, 2019;Shune & Linville, 2019). Unique aspects of an individual's culture and the degree to which acculturation has taken place for that individual (interaction of two cultures; e.g., American and Mexican) can also play a role in decision making regarding approaches to dysphagia treatment (Mackie, 2001;Padilla et al, 2019).…”

Section: Special Considerations In Dysphagia Management For Those With Neurodegenerative Conditionsmentioning

confidence: 99%

Shifting Tides Toward a Proactive Patient-Centered Approach in Dysphagia Management of Neurodegenerative Disease

Rogus-Pulia

Plowman

2020

Am J Speech Lang Pathol

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Purpose Persons with neurodegenerative disease frequently develop comorbid dysphagia as part of their disease process. Current “reactive” approaches to dysphagia management address dysphagia once it manifests clinically and consist of compensatory approaches. The purpose of this article is to propose a paradigm shift in dysphagia management of patients with neurodegenerative disease from a “reactive to proactive” approach by highlighting amyotrophic lateral sclerosis (ALS) and dementia as case examples. Method The authors present several areas of special consideration for speech-language pathologists (SLPs) treating dysphagia in patients with neurodegenerative disease. The drawbacks of historical “reactive” approaches to dysphagia management are described. Concepts of functional reserve for swallowing and homeostenosis are discussed. A “proactive” patient-centered paradigm of care for these patients is proposed with evidence to support its importance. A rationale for use of this approach in patients with ALS and dementia is provided with strategies for implementation. Results When treating dysphagia in patients with neurodegenerative disease, SLPs must balance a variety of factors in their decision making, including disease severity and expected progression, cultural considerations, goals of care, patient empowerment, and caregiver support. Reactive approaches to dysphagia management in these populations are problematic in that they disempower patients by focusing on use of compensatory techniques (e.g., diet modification, postural changes, feeding tube placement). Proactive approaches that employ rehabilitative interventions to increase functional reserve, such as resistance training, may result in improvement or maintenance of swallowing function longer into disease progression. An interdisciplinary team with early SLP involvement is necessary. Conclusions SLPs play a critical role in the management of dysphagia in patients with neurodegenerative disease and should be integrated early in the care of these patients. By focusing on a proactive patient-centered approach, patients with neurodegenerative conditions, such as ALS and dementia, will experience improved quality of life and health outcomes for a longer time.

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“…A social-ecological model (SEM) inserts individuals into broad social systems and describes their interactive characteristics with the underlying environments as influencing health outcomes [ 24 ]. A SEM applied to feeding difficulties can assist in the development of systematic intervention mechanisms capable of changing behavior in several dimensions (intrapersonal, interpersonal, environmental and institutional), optimizing the health and well-being of PwD [ 25 , 26 ]. Framing the mealtime of people with feeding difficulties from a social-ecological perspective allows better identification of the points of personal and environmental change for effective and sustainable interventions to improve the food intake [ 25 ].…”

Section: Introductionmentioning

confidence: 99%

Assessing Caregivers’ Skills in Assisting People with Dementia during Mealtime: Portuguese Cultural Adaptation of the Feeding Skills Checklist

Passos

Tavares

Figueiredo

2021

IJERPH

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In advanced dementia, individuals usually develop feeding difficulties. The Feeding Skills Checklist (FSC) is an instrument to assess caregivers’ skills when assisting people with dementia (PwD) at mealtimes. This study aimed to adapt and culturally validate a European Portuguese version of the FSC (FSC-PT) and test its reliability. Initially, translation and cultural validation of the FSC, with estimation of the content validity index (CVI), was conducted. Then, the FSC was applied to 23 female nursing assistants (mean age 44.73 ± 10.42 years) while offering lunch (n = 41 meals) to institutionalized PwD. Inter-rater reliability was determining using Cohen’s Kappa. FSC-PT showed excellent content validity, with item-content validity index ranging from 0.85 to 1, scale level average CVI = 0.94 and universal agreement CVI = 0.54. It also showed very satisfactory inter-observer reliability, with Cohen’s Kappa = 0.844. Of the 41 meals analyzed, only 37.7% of the actions/good practices in feeding PwD were observed. A positive and moderate correlation was found between the length of time working as nursing assistance and the FSC environment dimension (rs = 0.435; p = 0.038). The results supported the content validity of the FSC-PT, which shows considerable potential to be an instrument for verifying caregivers’ skills when helping PWD to eat and should be increasingly studied.

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Understanding the dining experience of individuals with dysphagia living in care facilities: A grounded theory analysis

Cited by 26 publications

References 46 publications

Defining the concepts of a smart nursing home and its potential technology utilities that integrate medical services and are acceptable to stakeholders: a scoping review protocol

Defining the concepts of a smart nursing home and its potential technology utilities that integrate medical services and are acceptable to stakeholders: a scoping review protocol

Shifting Tides Toward a Proactive Patient-Centered Approach in Dysphagia Management of Neurodegenerative Disease

Assessing Caregivers’ Skills in Assisting People with Dementia during Mealtime: Portuguese Cultural Adaptation of the Feeding Skills Checklist

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