Understanding the Experience of Caregivers: A Focus on Transitions

Blum, Kay; Sherman, Deborah Witt

doi:10.1016/j.soncn.2010.08.005

Cited by 151 publications

(159 citation statements)

References 40 publications

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“…The findings lend support to the conceptualisation of cancer treatment completion as a major transition point with challenges and uncertainties for both patients and partners (Blum & Sherman, 2010). Despite these difficulties, people do not necessarily access relevant support (c.f.…”

Section: Discussionmentioning

confidence: 59%

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Shared recovery: Couples' experiences after treatment for colorectal cancer

White

Newman

2016

European Journal of Oncology Nursing

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DisclosureThe authors declare no conflict of interest or external funding. COUPLES' EXPERIENCES AFTER COLORECTAL CANCER AbstractPurpose: Completing cancer treatment involves significant challenges for patients as well as their families. This study aimed to explore couples' experiences of colorectal (bowel) cancer, focusing on the transition after treatment.Method: Separate, semi-structured interviews were conducted within 12 months of completing treatment with a purposeful sample of ten participants, comprising five patientpartner dyads. Data were analysed using the Framework approach, incorporating dyadic analysis to compare narratives within as well as between couples.Results: Three main themes were elaborated: the process of recovery, the relationship dynamics, and the mixed experiences of healthcare services. The lasting impact of cancer following completion of treatment was evident for patients as well as their partners, and was shaped by their reciprocal influence on each other.Conclusions: The findings underscore the value of a systemic approach for supporting couples during recovery from colorectal cancer and demonstrate the need for consistency of healthcare provision across the cancer trajectory, including post-treatment.

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Section: Discussionmentioning

confidence: 59%

“…Completing cancer treatment marks a major transition with new challenges for patients and families (Blum & Sherman, 2010;Mitschke, 2008). Systematic reviews have highlighted the importance of follow-up care and preparing patients for the longer-term impact after treatment (Bennion & Molassiotis, 2012;Lewis et al, 2009).…”

Section: Introductionmentioning

confidence: 99%

Shared recovery: Couples' experiences after treatment for colorectal cancer

White

Newman

2016

European Journal of Oncology Nursing

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“…One study [12] was an extensive re- According to Naylor and Keating [2], the evidence suggests that nurses play pivotal roles in ensuring that successful care transition occurs. Most interventions in transitional care should be designed to facilitate smoother, safer, and more efficient transitions from the hospital to home or nursing home [27].…”

Section: Effects Of the Transitional Care Program Using Meleis' Transmentioning

confidence: 99%

“…Transition theory provides an excellent lens through which nursing can be systematically and comprehensively viewed [12,13].…”

Section: Introductionmentioning

confidence: 99%

“…Therefore, comprehensive and wellexecuted discharge plans including the acceptance of changes in functional capacity, reconciliation of medications ordered at admission and at hospital discharge, coordination of follow-up diagnostic tests and appointments, and assessment of community Transition theory is widely used in the field of nursing because nursing frequently involve various transitions (e.g., mothering, immigration, health and illness, etc.) and it has been welcomed and adopted in nursing research, education, and practice [10,11].Transition theory provides an excellent lens through which nursing can be systematically and comprehensively viewed [12,13].Also, transition theory is particularly applicable for the care of aging families because age-related transitions that may result in hospitalization of an older adult often precipitate the need for nursing care for older individuals [11]. Furthermore, transition theory informs nurses on how to better understand the experience of transitioning from a hospital-to-home or nursing home, and how nurses can develop multifaceted interventions to ease the transition process for older adults [13].…”

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confidence: 99%

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Transitional Care for Older Adults with Chronic Illnesses as a Vulnerable Population: Theoretical Framework and Future Directions in Nursing

Son

You

2015

J Korean Acad Nurs

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INTRODUCTIONAdvances in healthcare have led to a growing number of people living with chronic illnesses. At the same time, the proportion of older adults in the population is also growing, further increasing the number of those with chronic health problems because of accumulated exposure to chronic illness risk factors over their lifetime [1,2].Hospitalization rates due to chronic illnesses such as heart failure, stroke, chronic obstructive pulmonary disease, cancer, hypertension, and diabetes are highest among individuals aged 65 and over and typically result from an acute change in the health status of older adults [3]. Older adults with multiple chronic conditions that require close follow-up and early discharge may be prone to an increased risk of re-hospitalization because the decline of cognitive function or physical disabilities [1,3]. Furthermore, when appropriate care or resources are not available in the community, older patients will often remain in high-level care such as intensive care, exacerbating wait times for others in need of a hospital bed [1,3]. Therefore, comprehensive and wellexecuted discharge plans including the acceptance of changes in functional capacity, reconciliation of medications ordered at admission and at hospital discharge, coordination of follow-up diagnostic tests and appointments, and assessment of community Transition theory is widely used in the field of nursing because nursing frequently involve various transitions (e.g., mothering, immigration, health and illness, etc.) and it has been welcomed and adopted in nursing research, education, and practice [10,11].Transition theory provides an excellent lens through which nursing can be systematically and comprehensively viewed [12,13].Also, transition theory is particularly applicable for the care of aging families because age-related transitions that may result in hospitalization of an older adult often precipitate the need for nursing care for older individuals [11]. Furthermore, transition theory informs nurses on how to better understand the experience of transitioning from a hospital-to-home or nursing home, and how nurses can develop multifaceted interventions to ease the transition process for older adults [13]. However, more studies are needed to review the utility of applying transition theory to transitional care for older adults with chronic illnesses.Nurses play a key role in transitional care as they advocate for older patients with chronic illnesses and their families and provide direct care on a continual basis [14][15][16]. To stimulate discussion on the transitional care literature, an extensive review of the literature on transitional care in nursing for older adults with chronic illnesses is presented in this article. In addition, the usefulness and significance of Meleis' transition theory is critically compared with other conceptual models suggested for chronic care. How to improve transitional care in nursing areas is also discussed.

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Multimodal psychosocial intervention for family caregivers of patients undergoing hematopoietic stem cell transplantation: A randomized clinical trial

El‐Jawahri

Jacobs

Nelson

et al. 2020

Cancer

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Background Caregivers of patients undergoing hematopoietic stem cell transplantation (HCT) experience an immense caregiving burden before, during, and after HCT. Methods We conducted an unblinded, randomized trial of a psychosocial intervention (BMT‐CARE) for caregivers of patients undergoing autologous and allogeneic HCT at Massachusetts General Hospital. Caregivers were randomly assigned to BMT‐CARE or usual care. BMT‐CARE was tailored to the HCT trajectory and integrated treatment‐related education and self‐care with cognitive‐behavioral skills to promote coping. Caregivers assigned to BMT‐CARE met with a trained interventionist (a psychologist or a social worker) in person, via telephone, or via videoconferencing for 6 sessions starting before HCT and continuing up to day +60 after HCT. The primary endpoint was feasibility, which was defined as at least 60% of eligible caregivers enrolling and completing 50% or more of the intervention sessions. We assesed caregiver quality of life (QOL; Caregiver Oncology Quality of Life Questionnaire), caregiving burden (Caregiver Reaction Assessment), psychological distress (Hospital Anxiety and Depression Scale), self‐efficacy (Cancer Self‐Efficacy Scale–Transplant), and coping (Measures of Current Status) at baseline and 30 and 60 days after HCT. We used mixed linear effect models to assess the effect of BMT‐CARE on outcomes longitudinally. Results We enrolled 72.5% of eligible caregivers (100 of 138), and 80% attended 50% or more of the intervention sessions. Caregivers randomized to BMT‐CARE reported improved QOL (B = 6.11; 95% CI, 3.50‐8.71; P < .001), reduced caregiving burden (B = –6.02; 95% CI, –8.49 to –3.55; P < .001), lower anxiety (B = –2.18; 95% CI, –3.07 to –1.28; P < .001) and depression symptoms (B = –1.23; 95% CI, –1.92 to –0.54; P < .001), and improved self‐efficacy (B = 7.22; 95% CI, 2.40‐12.03; P = .003) and coping skills (B = 4.83; 95% CI, 3.04‐6.94; P < .001) in comparison with the usual‐care group. Conclusions A brief multimodal psychosocial intervention tailored for caregivers of HCT recipients is feasible and may improve QOL, mood, coping, and self‐efficacy while reducing the caregiving burden during the acute HCT period.

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Understanding the Experience of Caregivers: A Focus on Transitions

Cited by 151 publications

References 40 publications

Shared recovery: Couples' experiences after treatment for colorectal cancer

Shared recovery: Couples' experiences after treatment for colorectal cancer

Transitional Care for Older Adults with Chronic Illnesses as a Vulnerable Population: Theoretical Framework and Future Directions in Nursing

Multimodal psychosocial intervention for family caregivers of patients undergoing hematopoietic stem cell transplantation: A randomized clinical trial

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