Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data

Bayly, Joanne; Bradshaw, Andy; Fettes, Lucy; Omarjee, Muhammed; Talbot-Rice, Helena; Walshe, Catherine; Sleeman, Katherine E; Dunleavy, Lesley; Hocaoglu, Mevhibe; Oluyase, Adejoke; Garner, Ian; Cripps, Rachel; Preston, Nancy; Fraser, Lorna; Murtagh, Fliss E.M.; Higginson, Irene J; Maddocks, Matthew

doi:10.1177/02692163211063397

Cited by 14 publications

(24 citation statements)

References 53 publications

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“…The research was most frequently located in the United States (Bayly et al 2022;Chua et al 2022;Dhavale et al 2020;Hasson et al 2022;Mitchell et al 2022Mitchell et al , 2021Page et al 2020;Sleeman et al 2022;Sumitha et al 2022) of the included articles, followed by the United Kingdom (20-24). The remainder were conducted in India (Dhavale et al 2020;Page et al 2020;Sumitha et al 2022), Italy (Costantini et al 2020;Franchini et al 2021;Varani et al 2021), Germany (Jansky et al 2021;Tielker et al 2021), Australia (Luckett et al 2021), Canada (Wentlandt et al 2021), New Zealand (Frey and Balmer 2022), Taiwan (Chou et al 2020), and one multinational study (Dunleavy et al 2021).…”

Section: Article Overviewmentioning

confidence: 99%

“…The majority of studies utilized survey designs with samples of less than 1000 participants (Bayly et al 2022;Costantini et al 2020;Dunleavy et al 2021;Hasson et al 2022;Jones et al 2022;Kates et al 2021;Luckett et al 2021;Mitchell et al 2022Mitchell et al , 2021Ritchie et al 2021;Rogers et al 2021 (Chou et al 2020). While some of the articles exclusively focused on palliative care delivery in the community (Franchini et al 2021;Frey and Balmer 2022;Page et al 2020;Silva and Schack 2021;Sterling et al 2020;Sumitha et al 2022;Varani et al 2021;Weisse and Melekis 2021) or primary care settings (Mitchell et al 2022(Mitchell et al , 2021Ritchie et al 2021;Tielker et al 2021), the majority included palliative care delivery in other settings as well (Bayly et al 2022;Chou et al 2020;Chua et al 2022;Costantini et al 2020;Dunleavy et al 2021;Hasson et al 2022;Jansky et al 2021;Jones et al 2022;Kates et al 2021;Lalani et al 2022;Luckett et al 2021;Rogers et al 2021;Sleeman et al 2022;Wentlandt et al 2021) (Jansky et al 2021;...…”

Section: Article Overviewmentioning

confidence: 99%

“…This increased demand led to challenges to the provision of PPE. Fourteen articles reported both inadequate supplies, including PPE supplies and medicines (Bayly et al 2022;Costantini et al 2020;Dhavale et al 2020;Franchini et al 2021;Hasson et al 2022;Jansky et al 2021;Jones et al 2022;Luckett et al 2021;Page et al 2020;Ritchie et al 2021;Rogers et al 2021;Sterling et al 2020;Weisse and Melekis 2021;Wentlandt et al 2021). Staff number reductions due to furloughs and redistribution and staff self-isolating (Bayly et al 2022;Frey and Balmer 2022;Hasson et al 2022;Jansky et al 2021;Jones et al 2022;Kates et al 2021;Lalani et al 2022;Luckett et al 2021;Mitchell et al 2021;Ritchie et al 2021;Rogers et al 2021;Sleeman et al 2022) as well as a decrease in service provision from volunteers and the allied health workforce (Costantini et al 2020;Frey and Balmer 2022;Jansky et al 2021;Jones et al 2022;Luckett et al 2021;Mitchell et al 2021;Ritchie et al 2021;Weisse and Melekis 2021) resulted in increased staff workload (Bayly et al 2022;Frey and Balmer 2022;Hasson et al 2022;Jansky et al 2021;…”

Section: Resourcesmentioning

confidence: 99%

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The challenges for health professionals delivering palliative care in the community during the COVID-19 pandemic: An integrative review

Frey

Balmer

2023

Pall Supp Care

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Objectives The growing demand for palliative care has been accelerated due to the COVID-19 pandemic. However, providing community-based palliative care was also more difficult to do safely and faced several challenges. The goal of this integrative review was to identify, describe, and synthesize previous studies on the challenges for health professionals delivering palliative care in the community during the COVID-19 pandemic. Methods Searches were carried out on the Ovid MEDLINE, CINAHL, PsycINFO, Social Care Online, PubMed, Embase, and Expanded Academic databases. Journals typically reporting palliative care and community health studies were also searched (Palliative Medicine, Journal of Pain and Symptom Management, and Health & Social Care in the Community). All articles were peer-reviewed and published in English between December 2019 and September 2022. Results Database and hand searches identified 1231 articles. After duplicates were removed and the exclusion criteria applied, 27 articles were included in the final review. Themes in the research findings centered on 6 interconnected categories. The challenges imposed by the pandemic (lack of resources, communication difficulties, access to education and training, and interprofessional coordination), as well as the varying levels of success of the health-care responses, impacted the well-being of health professionals and, in turn, the well-being and care of patients and families. Significance of results The pandemic has provided the impetus for rethinking flexible and innovative approaches to overcome the challenges of delivering community palliative care. However, existing governmental and organizational policies require revision to improve communication and effective interprofessional collaboration, and additional resources are needed. A blended model of virtual and in-person palliative care delivery may provide the best solution to community palliative care delivery moving forward.

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Section: Article Overviewmentioning

confidence: 99%

Section: Article Overviewmentioning

confidence: 99%

Section: Resourcesmentioning

confidence: 99%

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The challenges for health professionals delivering palliative care in the community during the COVID-19 pandemic: An integrative review

Frey

Balmer

2023

Pall Supp Care

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“…In total, 12 outputs were included (Table 2), with 8 articles included (Bradshaw et al, 2021;Hanna et al, 2021;Mayland et al, 2021;Mitchell et al, 2021;Nestor et al, 2021;Oluyase et al, 2021;Pearce et al, 2021;Walshe et al, 2021) (Table 2: 4, 6, 7, 8, 9, 10, 11, 12). Three further articles were found via citation searching (Bayly et al, 2022;Dunleavy et al, 2021;Selman et al, 2020) (Table 2: 2,3,5). Following a search of grey evidence, one third sector report was also identified (Marie Curie, 2021) (Table 2: 1).…”

Section: Eligible Literaturementioning

confidence: 99%

The impact of Covid-19 pandemic on hospices: A systematic integrated review and synthesis of recommendations for policy and practice

Langen-Datta¹,

Wesson²,

Flemming³

et al. 2022

healthopenres

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Background: The Covid-19 pandemic resulted in the development of numerous recommendations for practice and policy for specialist palliative care provided by hospices in United Kingdom (UK), as hospices were significantly affected by the pandemic and protections put in place. The aim of this review is to identify and synthesise recommendations or implications for policy and practice that have been generated for adult hospice specialist palliative care during the first 24 months of the Covid-19 pandemic. Methods: AMED, BNI, CINAHL, EMBASE, EMCARE, HMIC, Medline, PsycINFO, PubMed databases were searched for peer-reviewed papers, as well as hand searchers for grey literature. Literature relating to hospices and Covid-19 in the UK were included and a thematic synthesis of recommendations for hospice policy and practice was undertaken. Results: 858 articles were identified with 12 meeting the inclusion criteria. Fifty-eight recommendations or implications were identified: 31 for policy, 27 for practice, and 10 covering both. Recommendations were organised under ten themes. There were several recommendations seeking to secure hospice resources to mitigate the short-term impact of the pandemic, as well as those focused on longer-term implications such as core funding. The impact of the pandemic on the quality of hospice care was the focus for numerous recommendations around improving integration of hospice care in the community, provision of bereavement support and better use of Advance Care Plans (ACP). However, there were significant gaps related to carer visitation in hospices, inequities of palliative care, or hospice-at-home services. Conclusion: The Covid-19 pandemic and protections exposed several ongoing policy and practice needs, especially around hospice resources, while generating novel issues for hospices to address. Significant policy gaps remain to be addressed to mitigate the impact of the pandemic on the quality of hospice specialist palliative care.

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“…The recent COVID-19 pandemic exposed the vulnerability of the individual, e.g., to mental health problems [ 17 , 18 ], and of the society, e.g., to highly disrupted rehabilitation services, including the delivery of specialist palliative care [ 19 ]. Developing truly compassionate communities which can face illness, death, and bereavement as part of the life cycle and preserve human dignity to the very end helps build resilience on the personal and the societal level, with all members contributing to the best of their ability to the good of all.…”

Section: Introduction [mentioning

confidence: 99%

Last Aid Course—The Slovenian Experience

Zelko

Vrbek²,

Koletnik

2022

Healthcare

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Educating and raising awareness among lay members of the public about palliative care can significantly improve the care for terminally ill patients and their quality of life. This paper reports on the survey aimed at assessing the experience and expectations of participants in the Last Aid course launched in Slovenia in 2019 to train hospice volunteers and promote dialogue on death and dying. The course implementation was supported by materials prepared, translated, and/or adapted from German under the PO-LAST project, which linked Slovenian medical and healthcare professionals, hospice representatives, and university students. The Last Aid course follows an international four-module curriculum that has been successfully applied in 18 countries so far. In Slovenia, the course was delivered 30 times with 21 in-person deliveries and 9 online events attended by 450 participants of different sexes, ages, and professions. The surveyed population included 250 people who returned the evaluation questionnaires by October 2020. The aim of the analysis was to gain insight that can be applied broadly in future work and research on adult education on palliative care and the erasure of death-related taboos.

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Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data

Cited by 14 publications

References 53 publications

The challenges for health professionals delivering palliative care in the community during the COVID-19 pandemic: An integrative review

The challenges for health professionals delivering palliative care in the community during the COVID-19 pandemic: An integrative review

The impact of Covid-19 pandemic on hospices: A systematic integrated review and synthesis of recommendations for policy and practice

Last Aid Course—The Slovenian Experience

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