Understanding the Influence of the Complex Relationships among Informal and Formal Supports on the Well-Being of Caregivers of Persons with Dementia

Raina, Parminder; McIntyre, Chris; Zhu, Bin; McDowell, Ian; Santaguida, Pasqualina; Kristjansson, Betsy; Hendricks, Alexandra; Massfeller, Helen; Chambers, Larry W.

doi:10.1353/cja.2005.0041

Cited by 9 publications

(10 citation statements)

References 41 publications

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“…Fatigue, stress, and helplessness are reported at high levels, and symptoms of depression are particularly significant for those caregivers who live with their care recipient, but these symptoms are also reported by those who do not live with their care recipient. This emotional burden is, as has been noted by others (O'Rourke and Tuokko, 2004; The Canadian Study of Health and Aging Working Group, 2002; Raina et al , 2004), an important element in the overall mental and physical well being of individuals. The wear and tear of caring for an individual with AD/dementia can have added impact on workplace situations, as we see from the baby boomer respondents, who report conflicts between work and caregiving (48%), as well as the use of vacation time to provide care (50%) and loss of employment altogether (50%).…”

Section: Discussionmentioning

confidence: 64%

Canadian Alzheimer's disease caregiver survey: baby‐boomer caregivers and burden of care

Black

Gauthier²,

Dalziel

et al. 2010

Int J Geriat Psychiatry

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Caregivers of persons with AD/related dementia face important social, physical, psychological and financial pressures. These negatively affect the quality of life of caregivers with a significant increased burden being placed on live-in caregivers versus caregivers who do not co-reside with their care recipients. Interventions that address these pressures will not only improve the health and well-being of caregivers, but likely also the care of persons with AD/dementia.

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Section: Discussionmentioning

confidence: 64%

Canadian Alzheimer's disease caregiver survey: baby‐boomer caregivers and burden of care

Black

Gauthier²,

Dalziel

et al. 2010

Int J Geriat Psychiatry

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show abstract

“…Sit and colleagues concluded that without assistance or support, caregivers of stroke survivors were likely to become the "second patient in the family" (p. 822). Other researchers have found that social support had no direct effect on the health of caregivers (Grant, Elliott, Giger, & Bartolucci, 2001;Gräsel, Biehler, Schmidt, & Schupp, 2005;Raina et al, 2004).…”

Section: Relationships Among Emotional Support Physical Help and Camentioning

confidence: 89%

Emotional Support, Physical Help, and Health of Caregivers of Stroke Survivors

Steiner

Pierce

Drahuschak

et al. 2008

Journal of Neuroscience Nursing

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Guided by Orem's self-care deficit nursing theory, the purpose of this descriptive comparative study was to examine the emotional support, physical help, and health of caregivers of stroke survivors. Seventy-three caregivers from the Midwest participated in a parent study that examined their experience of caring during the first 12 months after stroke. Caregivers were randomized to an online intervention of support and education (n = 36 Web users) or a control group (n = 37 non-Web users). A secondary analysis of data collected during telephone interviews at baseline, 3, 6, and 12 months after stroke was performed. No significant mean differences were found between Web and non-Web users in the above variables at these points in time. Consequently, the caregivers were merged into one group, and the relationships among the variables at the different points in time were analyzed. Significant, moderately positive relationships were found between emotional support and physical help at baseline, 3, and 12 months. There were also significant, moderately positive relationships between emotional support and caregiver health at 6 and 12 months. Results highlight the importance of caregivers (dependent care agents in Orem's terms) establishing an adequate self-care system that provides emotional support and physical help. Findings also denote the need for nurses (as caring agents) to assess caregiver health later in the caring process and be aware of its relationship to emotional support.

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“…However, this approach is limited. Single factor changes are rare outside the context of constrained experimental situations, assumptions of linear and additive relationships or of perfect measurements rarely hold true, and this approach does not examine direct and indirect pathways between predictor variables and health outcomes (Raina et al 2004). The hypothesized model indicated the direct and indirect pathways that interconnected internal and external factors, which could be better evaluated using structural equation modeling (SEM).…”

Section: Discussionmentioning

confidence: 99%

Filial Piety, Caregiving Appraisal, and Caregiving Burden

2009

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This study examined the effects of filial piety on the appraisal of caregiving burden by Chinese-Canadian family caregivers. A quantitative telephone survey was used as the research design for this study. A total of 339 randomly selected Canadian-Chinese family caregivers of elderly were interviewed by telephone. A hypothesized model denoting both the direct and indirect effects of filial piety on caregiving burden was tested using structural equation modeling. While stressors and appraisal factors reported direct predicting effects on caregiving burden, filial piety indirectly affected caregiving burden by altering appraisals of the caregiver role. Filial piety served as a protective function to reduce the negative effects of stressors and to enhance the positive effect of appraisal factors on caregiving burden.

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Understanding the Influence of the Complex Relationships among Informal and Formal Supports on the Well-Being of Caregivers of Persons with Dementia

Cited by 9 publications

References 41 publications

Canadian Alzheimer's disease caregiver survey: baby‐boomer caregivers and burden of care

Canadian Alzheimer's disease caregiver survey: baby‐boomer caregivers and burden of care

Emotional Support, Physical Help, and Health of Caregivers of Stroke Survivors

Filial Piety, Caregiving Appraisal, and Caregiving Burden

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