Understanding the Information and Service Needs of Young Adults With Chronic Pain

Abstract

Participants unanimously felt that a web-based program would be an acceptable means to help improve access to services and meet the need for more information about chronic pain, strategies to manage pain symptoms, and social support to address the unique developmental needs of YAs.

A developmental perspective on the impact of chronic pain in late adolescence and early adulthood: implications for assessment and intervention

“…This is likely due to a combination of factors including transition from pediatric to adult care, loss of insurance coverage under their parents in some countries with private insurance systems (e.g., USA) [35], and organizational, provider, and patient barriers and preferences, resulting in older adolescents and young adults being less likely to seek care from a pain clinic [48]. …”

“…Given the differing context related to functioning and productivity, this may include unique domains from childhood or later adulthood. Vulnerabilities that emerge in late adolescence and early adulthood related to health risk behaviors and poor access to healthcare have significant implications for chronic pain management [2;3;5;10;11;47;48] but have not been fully characterized. Further, chronic pain treatments have not been tailored for this subpopulation.…”

Long-Term Pain and Recovery After Major Pediatric Surgery: A Qualitative Study With Teens, Parents, and Perioperative Care Providers

“…Such data may be used to inform development of a perioperative psychosocial intervention program. Qualitative research can inform researchers and clinicians on patient, family, and providers’ beliefs and attitudes, assessing receptiveness, and recognizing potential barriers and facilitators to a psychosocial intervention 27 . Furthermore, qualitative research can inform development of measures assessing domains relevant to the context of surgery to evaluate intervention outcomes.…”

Specialized Rehabilitation Programs for Children and Adolescents with Severe Disabling Chronic Pain: Indications, Treatment and Outcomes

“…Furthermore, other barriers to accessing specialized pain care exist, such as availability of care [19,20,21] and socioeconomic status [19,20]. A lack of understanding in society and among friends, family or even primary care physicians due to the invisible nature of pain may also present a barrier to specialized care [22]. In addition, the perceived stigma associated with psychological therapy can prevent patients from seeking specialized care with a psychological focus [22,23], especially if the patients believe that their problem is a physical one [23].…”

“…A lack of understanding in society and among friends, family or even primary care physicians due to the invisible nature of pain may also present a barrier to specialized care [22]. In addition, the perceived stigma associated with psychological therapy can prevent patients from seeking specialized care with a psychological focus [22,23], especially if the patients believe that their problem is a physical one [23]. Pain location can represent a barrier to accessing specialized care as well, as not all pediatric pain programs treat all types of pain.…”