Understanding the treatment experiences of adults diagnosed with early‐onset colorectal cancer: A qualitative study

Abstract

ObjectiveEarly‐onset colorectal cancer (CRC) incidence in adults aged under 50 is increasing. There is a critical lack of knowledge regarding the challenges faced by early‐onset CRC patients and their experiences of treatment. The aim of this study was to explore the lived experiences of individuals receiving treatment for early‐onset CRC, and the resulting impact on their lives.MethodsSemi‐structured interviews of patients with early‐onset CRC in the UK (n = 21) were conducted from August 2021 to March 2022. Interviews were recorded and transcribed verbatim. Data were analysed using thematic analysis.ResultsResults identified four key themes: (1) early‐onset CRC treatment results in sudden physical, psychological and social impacts in all aspects of life; (2) early‐onset CRC patients have unique supportive care needs which are not recognised in current practice; (3) there is a need for tailored information; (4) a lack of support was identified in the areas of mental health, sexual health and fertility.ConclusionsOur study highlights numerous unique issues experienced by the early‐onset CRC patient group during treatment. There is a need for change in clinical practice, along with the development of international guidelines and tailored resources for both patients and healthcare professionals, in order to improve care.