Understanding the use of breast cancer screening services by women with intellectual disabilities

Sullivan, Sheena G.; Slack‐Smith, Linda; Hussain, Rafat

doi:10.1007/s00038-004-3121-z

Cited by 37 publications

(50 citation statements)

References 32 publications

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“…Although we could not identify mobility limitations as the cause of disability separately, it has also been found that individuals with mobility problems were as likely as others to receive pneumonia and influenza immunizations, but less likely to receive mammogram and Pap smear (Iezzoni et al, 2000). People with disabilities, especially intellectual disability, may experience more fear and anxiety about the cancer screening than the general population (Sullivan, Slack-Smith, & Hussain, 2004). Also like older people, people with disability have relatively shorter life expectancy and cancer screening may not be beneficial to them (Balducci, 2005).…”

Section: Discussionmentioning

confidence: 99%

Disability and receipt of clinical preventive services among women

Wei

Findley

Sambamoorthi

2006

Women's Health Issues

122

100

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Section: Discussionmentioning

confidence: 99%

Disability and receipt of clinical preventive services among women

Wei

Findley

Sambamoorthi

2006

Women's Health Issues

122

100

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“…They suggested alternative methods of screening (such as clinical breast examination)-methods which lack sufficient evidence for their use as screening tools in the general population. 35 Rates of breast cancer in women with ID reported in 2 large cohort studies are the same as or lower than the general population. 36,37 However, women with ID are living longer and because the risk of breast cancer rises with each decade of life, 38 the rates of breast cancer in women with ID will probably rise.…”

Section: Breast Cancer Screeningmentioning

confidence: 95%

Primary Care for Women with Intellectual Disabilities

Wilkinson¹,

Cerreto²

2008

The Journal of the American Board of Family Medicine

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Women with intellectual disabilities (ID) need thoughtful, well-coordinated care from primary care physicians. They are particularly susceptible to experiencing disparities in care because of varied participation in shared decision making. This review of the current literature comments on the quantity and quality of existing studies regarding several key women's health issues: menstrual disorders, cervical and breast cancer screening, contraception, and osteoporosis. A review of the current thinking regarding ethical and legal issues in medical decision making for these women is also provided. We found that there are several high-quality studies recommending early and frequent screening for osteoporosis, which is more common in women with ID. Smaller and fewer studies comment specifically on techniques for accomplishing the gynecological examination in women with ID, although the cervical cancer screening recommendation should be individualized for these patients. Consensus data on the management of menstrual problems and contraception in women with ID is provided. There are some data on breast cancer incidence but few articles on methods to improve screening rates in women with ID. Intellectual disability (ID) refers to a disability that is characterized by significant limitations both in cognitive functioning and in adaptive behavior (conceptual, social, and practical Women's health issues are important concerns among those with ID. In the past 40 years, it has been suggested that women's health should shift to a focus tailored to the individual patient, taking into account her personal beliefs and respecting her choices. The preface to the 1984 edition of Our Bodies, Our Selves states its goals "to reach as many women as possible with the tools which will enable them to take greater charge of their own health care and their lives, deal with the existing medical system and fight wherever possible for improvements and changes."6 While physicians' responsibilities to regard women as equal partners in making decisions about their health care has been debated, 7 patients' reproductive rights and choices have remained an important topic of discussion. Women with ID, however, benefit unevenly from this change in thinking. It is unclear how women who may lack some of the skills to make everyday decisions should partner in decisions about their health care. In addition, in a field where research has lagged on women's health topics, how do we interpret the existing evidence base for women with This article was externally peer reviewed.

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“…Further, barriers to screening may exist for some patients with ID, such as anxiety, lack of understanding of the test, transportation problems, and the need for extra staff to accompany some patients from group homes to health care appointments. 5 To date, few documents exist with recommendations for screening; one was published by the Massachusetts Department of Mental Retardation. 6 These recommendations represent a consensus using standards from Massachusetts Health Quality Partners and a group of health professionals experienced in the care of adults with ID.…”

mentioning

confidence: 99%

Screening Tests for Adults with Intellectual Disabilities

Wilkinson¹,

Culpepper²,

Cerreto³

2007

The Journal of the American Board of Family Medicine

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Adults with intellectual disabilities need thoughtful, well-coordinated primary care from family physicians. However, evidence-based screening recommendations are lacking. We examined screening recommendations for common preventable conditions using the US Preventative Service Task Force guidelines. We also reviewed the literature about the prevalence of these conditions in adults with intellectual disabilities. Obesity, osteoporosis, and smoking are more prevalent in adults with intellectual disabilities, and enhanced screening for these conditions is recommended. Abnormal Papanicolaou smears and cervical cancer are less common in adults with intellectual disabilities and screening recommendations should be individualized. We also discussed strategies to make screening procedures less stressful for these patients. The term "intellectual disabilities" (ID) refers to the condition of people with disabilities characterized by significant limitations both in cognitive functioning and adaptive behavior (conceptual, social, and practical adaptive skills) that originate before age 18 (Table 1). As used here, the term intellectual disabilities is synonymous with the term "mental retardation," a term that many people with ID dislike because it is stigmatizing and is frequently used as a global summary about complex human beings with a wide range of gifts, abilities, and needs. Challenges or limitations may be partially determined by the requirements of the environment in which people with ID live; the degree of disability may vary over time depending on the skills and supports the patient needs to function in his or her current environment. Adults with ID are living longer because of improved medical care, technology, and environmental conditions. They are also more likely to live in community-based settings instead of large institutions.

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Understanding the use of breast cancer screening services by women with intellectual disabilities

Abstract: The social trainers agreed that many of the barriers to screening would be difficult to overcome and supported alternative strategies to mammography, such as clinical breast examination.

Cited by 37 publications

References 32 publications

Disability and receipt of clinical preventive services among women

Disability and receipt of clinical preventive services among women

Primary Care for Women with Intellectual Disabilities

Screening Tests for Adults with Intellectual Disabilities

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