Universal Breadwinner Versus Universal Caregiver Model: Fathers' Involvement in Caregiving and Well‐Being of Mothers of Offspring with Intellectual Disabilities

Chou, Yueh-Ching; Kröger, Teppo; Pu, Cheng Yun

doi:10.1111/jar.12156

Cited by 9 publications

(12 citation statements)

References 25 publications

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“…Similar to Gracia (2014) and Chou et al (2016) we found that fathers become caretakers when the need arises. The child's health issues prompted the fathers to become involved as caretakers.…”

Section: Confidence and Engagementsupporting

confidence: 74%

“…Dominant discourses and cultural expectations constrain and undermine men's ability to engage as caregivers and mothering is often more valued than fathering (Steinour, 2018). Yet, men tend to assume equal responsibility in caregiving when cultural norms and family policies encourage father involvement (Eerola, 2014) or when the need arises, as often the case when children have health issues (Chou et al, 2016;Gracia, 2014).…”

Section: Fathers As Providers Protectors and Caregiversmentioning

confidence: 99%

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Former Neonatal Intensive Care Unit Fathers' Involvement 4 Years Later: A Qualitative Study

Clarkson

Hearn

2021

Journal of Pediatric Nursing

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To explore the experience of fathering a previous Newborn Intensive Care Unit (NICU) infant four years after hospitalization. Design and methods: Nineteen fathers of former NICU infants were interviewed using a semi-structured schedule. Results: Most of the fathers had children with ongoing health issues (84%). The median age of the fathers was 38 years old. Racial demographics included 12 white fathers (63%), 5 black fathers (26%), and 2 Hispanic fathers (11%). Themes that emerged included adjustments, prepared for anything, closeness, ambivalent normalcy, and vigilance. These fathers of former infants with health issues made 'adjustments' in their lives to be available and better fathers for their children. They familiarized themselves with their children's ongoing health issues so they could be better protectors and be 'prepared for anything', but considered their children 'normal kids' while still maintaining 'vigilance' for future health needs. Fathers described that the experience of having an infant with health issues helped them to develop 'closeness' with the child and boosted their confidence as fathers. Conclusion: This involvement/confidence pattern is critically important to establishing and maintaining fathering, especially for fathers of children with disabilities. Practice implications: Pediatric practitioners can continue to encourage this pattern after the initial hospital stay.

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Section: Confidence and Engagementsupporting

confidence: 74%

Section: Fathers As Providers Protectors and Caregiversmentioning

confidence: 99%

Former Neonatal Intensive Care Unit Fathers' Involvement 4 Years Later: A Qualitative Study

Clarkson

Hearn

2021

Journal of Pediatric Nursing

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“…58 However, studies have shown that even in situations where the father is unemployed and the mother is employed, fathers often still function as the secondary caregiver and participate in fewer caregiving activities than mothers. 59–61 This raises important questions about fathers' ability or desire to take part in caregiving activities, as well as how this is shaped by public attitudes and governmental or employment policies.…”

Section: Discussionmentioning

confidence: 99%

“…Their study also found that participation in paid employment made a significant contribution to the variance in well-being between fathers and mothers, but division of child care tasks did not. Participation in paid work can serve as a protection against social isolation and life dissatisfaction, 59 and as fathers are more likely to work, this may contribute to their well-being.…”

Section: Mental Health Of Mothers and Fathersmentioning

confidence: 99%

Mental health and well-being of fathers of children with intellectual disabilities: systematic review and meta-analysis

et al. 2019

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BackgroundCaring for a child with intellectual disabilities can be a very rewarding but demanding experience. Research in this area has primarily focused on mothers, with relatively little attention given to the mental health of fathers.AimsThe purpose of this review was to summarise the evidence related to the mental health of fathers compared with mothers, and with fathers in the general population.MethodA meta-analysis was undertaken of all studies published by 1 July 2018 in Medline, PsycINFO, CINAHL and EMBASE, using terms on intellectual disabilities, mental health and father carers. Papers were selected based on pre-defined inclusion and exclusion criteria.ResultsOf 5544 results, 20 studies met the inclusion criteria and 12 had appropriate data for meta-analysis. For comparisons of fathers with mothers, mothers were significantly more likely to have poor general mental health and well-being (standardised mean difference (SMD) −0.38, 95% CI −0.56 to −0.20), as well as higher levels of depression (SMD, −0.46; 95% CI −0.68 to −0.24), stress (SMD, −0.32; 95% CI −0.46 to −0.19) and anxiety (SMD, −0.30; 95% CI −0.50 to −0.10).ConclusionsThere is a significant difference between the mental health of father and mother carers, with fathers less likely to exhibit poor mental health. However, this is based on a small number of studies. More data is needed to determine whether the general mental health and anxiety of father carers of a child with intellectual disabilities differs from fathers in the general population.

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“…Findings showed, similar to U.S.born parents of children with DD, that Asian immigrant parents' perceived parental role is to help their child with DD thrive. Previous studies documented parents' behaviors that directly map onto the role facets identified in this meta-synthesis: ensuring that their child receives services (Rehm et al, 2013;Rossetti et al, 2016;Ryan & Quinlan, 2018), improving their child's performance (Hamilton et al, 2015), increasing parental knowledge (Douglas et al, 2017), planning for their child's future (Hamilton et al, 2015;Rabren & Evans, 2016;Rehm et al, 2013;Rossetti et al, 2016), and maintaining family function (Chou et al, 2016). Research on parenting children with DD has also highlighted the interrelated nature of role facets.…”

Section: Discussionmentioning

confidence: 99%

Asian Immigrant Parents’ Role Enactment While Accessing and Using Services for Their Child With Developmental Disabilities in the United States: A Meta-Synthesis Study

et al. 2020

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We conducted a meta-synthesis to explore how Asian immigrant parents in the United States enact their perceived parental role while using health and educational services for their child with developmental disabilities. We identified 11 qualitative studies for analysis, and examined these studies using a constant comparative approach and thematic analysis informed by role theory and acculturation theory. Based on our analysis, five themes related to parents’ role enactment emerged: (a) parents perceive a multifaceted parental role; (b) parents’ individual factors influence their role enactment; (c) system factors influence parents’ role enactment; (d) parents use coping strategies to address role dissatisfaction; and (e) parental role enactment is a continuously evolving process influenced by acculturation, which spirals them toward their ultimate goal of helping their child thrive. Findings can inform practitioners’ and researchers’ understanding of how to create a culturally safe environment to support Asian immigrant parents in realizing their parental role.

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Universal Breadwinner Versus Universal Caregiver Model: Fathers' Involvement in Caregiving and Well‐Being of Mothers of Offspring with Intellectual Disabilities

Abstract: An incentive policy is critical for supporting the fathers involved in lifelong caregiving and to promote the mothers' quality of life.

Cited by 9 publications

References 25 publications

Former Neonatal Intensive Care Unit Fathers' Involvement 4 Years Later: A Qualitative Study

Former Neonatal Intensive Care Unit Fathers' Involvement 4 Years Later: A Qualitative Study

Mental health and well-being of fathers of children with intellectual disabilities: systematic review and meta-analysis

Asian Immigrant Parents’ Role Enactment While Accessing and Using Services for Their Child With Developmental Disabilities in the United States: A Meta-Synthesis Study

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