Unlocking First Nations health information through data linkage

Walker, Jennifer; Pyper, Evelyn; Jones, Carmen; Khan, Saba; Chong, Nelson W.; Legge, Dan; Schull, Michael J.; Henry, David

doi:10.23889/ijpds.v3i1.450

Cited by 17 publications

(23 citation statements)

References 6 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…We identified First Nations people through a previous linkage of the federal Indian Register to the Registered Persons Data base. 15 This register includes all people registered with the fed eral government as a "Status Indian" under the Indian Act, 16 regardless of whether or not they live in a First Nation commun ity ("Indian Reserve" 16 ).…”

Section: Methodsmentioning

confidence: 99%

Diabetes prevalence, incidence and mortality in First Nations and other people in Ontario, 1995–2014: a population-based study using linked administrative data

Walker

Slater

Jones

et al. 2020

CMAJ

View full text Add to dashboard Cite

Section: Methodsmentioning

confidence: 99%

Diabetes prevalence, incidence and mortality in First Nations and other people in Ontario, 1995–2014: a population-based study using linked administrative data

Walker

Slater

Jones

et al. 2020

CMAJ

View full text Add to dashboard Cite

“…This requires an understanding of the information contained in the datasets used in their research and limiting linkages to other data to ensure that there is no risk of re-identification [ 15 , 30 ]. For Indigenous data, it also requires relationships, reciprocity and respect for diverse Indigenous data governance, and linkages that may be in place in different jurisdictions [ 31 ]. Understanding the data is also necessary to know whether the data are adequate for answering the specified research question.…”

Section: Challenges Associated With Multi-jurisdictional Researchmentioning

confidence: 99%

The SPOR-Canadian Data Platform: a national initiative to facilitate data rich multi-jurisdictional research

Dahl

Katz

McGrail

et al. 2020

IJPDS

View full text Add to dashboard Cite

Administrative health data is recognized for its value for conducting population-based research that has contributed to numerous improvements in health. In Canada, each province and territory is responsible for administering its own publicly funded health care program, which has resulted in multiple sets of administrative health data. Challenges to using these data within each of these jurisdictions have been identified, which are further amplified when the research involves more than one jurisdiction. The benefits to conducting multi-jurisdictional studies has been recognized by the Canadian Institutes of Health Research (CIHR), which issued a call in 2017 for proposals that address the challenges. The grant led to the creation of Health Data Research Network Canada (HDRN), with a vision is to establish a distributed network that facilitates and accelerates multi-jurisdictional research in Canada. HDRN received funding for seven years that will be used to support the objectives and activities of an initiative called the Strategy for Patient-Oriented Research Canadian Data Platform (SPOR-CDP). In this paper, we describe the challenges that researchers face while using, or considering using, administrative health data to conduct multi-jurisdictional research and the various ways that the SPOR-CDP will attempt to address them. Our objective is to assist other groups facing similar challenges associated with undertaking multi-jurisdictional research.

show abstract

“…We identified First Nations women using the Indian Register, which includes people who are recognized and registered as First Nations people by the federal government under the Indian Act. 19,20…”

Section: Study Population and Data Sourcesmentioning

confidence: 99%

Diabetes during pregnancy and perinatal outcomes among First Nations women in Ontario, 2002/03–2014/15: a population-based cohort study

Vélez

Slater

Griffiths

et al. 2020

cmajo

View full text Add to dashboard Cite

iabetes mellitus during pregnancy, either preexisting diabetes or gestational diabetes, is a major contributor of adverse outcomes. In Canada, the number of women affected by diabetes during pregnancy has increased over time, 1,2 and the risk is higher in First Nations women. 3-6 Although Ontario is home to the largest group of First Nations people in Canada (23.6%), 7 little is known about the health care experience of pregnant First Nations women in the province. There are complex social and historical factors that affect the lived experience of First Nations women. 8-11 It is also important to acknowledge the resilience of First Nations women and communities to improve their health outcomes. 12 Qualitative research in First Nations women highlights the

show abstract

Unlocking First Nations health information through data linkage

Cited by 17 publications

References 6 publications

Diabetes prevalence, incidence and mortality in First Nations and other people in Ontario, 1995–2014: a population-based study using linked administrative data

Diabetes prevalence, incidence and mortality in First Nations and other people in Ontario, 1995–2014: a population-based study using linked administrative data

The SPOR-Canadian Data Platform: a national initiative to facilitate data rich multi-jurisdictional research

Diabetes during pregnancy and perinatal outcomes among First Nations women in Ontario, 2002/03–2014/15: a population-based cohort study

Contact Info

Product

Resources

About