Unlocking the Mysteries of Long COVID in Children and Young People: Insights from a Policy Review and Social Media Analysis in the UK

Abstract

There is still much unknown about the long-term consequences of COVID-19, otherwise known as post-acute sequelae of COVID (PASC). The challenge of defining the manifestation of Long COVID in children and young people (CYP) was specifically identified as a research subject by the National Institute for Health and care Research (NIHR). The lack of data relating to this age group and the impact the symptoms of PASC may have on the well-being and development of children have made research on this topic especially pressing. This healthcare policy study focuses on the applicability of Thompson et al.'s and Campbell and Carnevale’s frameworks in understanding the formulation and implementation of Long COVID healthcare policies. The analysis uses the ‘LISTEN’ method, applying a mixed method analysis of policy data and social media discourse analysis. Overall, the findings of this review of Long COVID policy guidelines for CYP and adults between 2020 and 2022, highlight increased public concern around the ethical aspects of policy-making, with high focus on Accountability and Responsiveness. The review concludes with several policy recommendations such as enhancing accountability through regular audits, promoting inclusiveness by incorporating CYP perspectives, ensuring transparency via regular updates, and maintaining equity in policy impact. Clinical policies should provide clear guidelines for healthcare providers, support mental health services for CYP and healthcare workers, and clarify school policies regarding Long COVID. Policymakers should also consider a health equity perspective in their Long COVID recovery policies.