Unmet psychosocial needs in haematological cancer: a systematic review

Swash, Brooke; Hulbert‐Williams, Nicholas J.; Bramwell, Ros

doi:10.1007/s00520-014-2123-5

Cited by 91 publications

(76 citation statements)

References 42 publications

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“…The findings are consistent with quantitative evidence that patients with haematological cancers generally feel informed, despite variable knowledge of their condition . They are also consistent with previous qualitative findings that point to the clinical relationship as the key to how such patients can feel informed in a context in which information can be complex and threatening .…”

Section: Discussionsupporting

confidence: 91%

Perspectives of patients with haematological cancer on how clinicians meet their information needs: “Managing” information versus “giving” it

Atherton¹,

Young²,

Kalakonda³

et al. 2018

Psycho-Oncology

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These findings can be understood using attachment theory, whereby practitioners' careful management of information demonstrates their care for patients, and patients' trust in the practitioner enables them to feel informed. It follows that, when patients do not feel informed, the solution will not necessarily be more information but might be to help patients feel more secure in a caring clinical relationship.

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Section: Discussionsupporting

confidence: 91%

Perspectives of patients with haematological cancer on how clinicians meet their information needs: “Managing” information versus “giving” it

Atherton¹,

Young²,

Kalakonda³

et al. 2018

Psycho-Oncology

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“…Unmet supportive care needs can be defined as a desire for help or support in managing the physical, social and psychological impacts of illness (Swash et al 2014). The relationship between presence of unmet need and psychological wellbeing has been recognised within the broader psycho-oncology literature (Armes et al, 2009) and so ongoing assessment of needs is recommended as a way of ensuring that supportive care provision is sufficient to meet the needs of cancer patients and their families Hodgkinson et al, 2007;Morrison et al, 2012), and thus as a pathway to reducing distress and poor quality of life.…”

Section: Introductionmentioning

confidence: 99%

“…It is plausible that there are differences in the levels of distress associated with different types of unmet need, for example physical needs may be associated with lower levels of distress due to an anticipation of their presence in the cancer context . Although there is only a small literature on unmet care needs in haematological cancer samples (Swash et al, 2014), this body of evidence clearly indicates that unmet needs both exist and present considerable on-going challenges for good quality patient care and support (Hall et al, 2013). This is gaining increasing recognition in the UK, with assessment recommended as part of best practice care (Watson et al, 2012).…”

Section: Introductionmentioning

confidence: 99%

Unmet psychosocial supportive care needs and psychological distress in haematological cancer survivors: The moderating role of psychological flexibility

Swash

Bramwell

Hulbert‐Williams

2017

Journal of Contextual Behavioral Science

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BackgroundThe period immediately after the end of cancer treatment is a time when supportive care for the cancer patient decreases; this is known to increase risk of psychological distress and poor wellbeing.While there is broad recognition that unmet psychological and supportive care needs correlate with psychological wellbeing, little is understood about the factors that influence this relationship. This study explores the role of psychological flexibility, with a particular focus on its potential moderating role between unmet needs and psychological distress in haematological cancer survivors. Materials and MethodHaematological cancer survivors were recruited for this cross-sectional study through two major UK blood cancer charities. Participants (n=91) were all over the age of 16 and had been diagnosed with any sub-type of haematological cancer more than 18 months previously. Participants completed selfreport questionnaires assessing unmet psychological and supportive care needs (SCNS SF34), anxiety and depression (HADS), quality of life (EORTC QLQ-C30) and psychological flexibility (AAQ II). ResultsHigh levels of both unmet need and distress were present in the sample, indicating on-going care needs for these cancer survivors. Statistically significant correlations between unmet needs, psychological flexibility and all outcome variables (anxiety, depression, quality of life) were found.Using regression analysis based on Hayes' methodology (Hayes, 2013), psychological flexibility was found to act as a moderator between unmet need and distress in four out of 15 models; specifically, the statistical relationship between need and distress emerged only when levels of psychological flexibility were at average level or above. DiscussionHaematological cancer survivors have on-going supportive care needs that persist well beyond the end of active treatment. Unmet needs can, in turn, increase levels of anxiety and depression, and reduce quality of life in this patient group. The understanding offered by our data that psychological flexibility plays a moderating relationship between need and psychological distress creates opportunities for the development of theoretically-informed interventions to reduce both unmet need and distress in cancer patients. As such, these findings support the growing emphasis on Acceptance and Commitment based interventions for cancer patients.

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“…Other studies have shown that these are groups with several unmet needs, especially regarding information [36, 40, 41]. The respondents with «other forms of cancer» reported the highest access to advice on physical activity.…”

Section: Discussionmentioning

confidence: 97%

Access to information and counselling – older cancer patients’ self-report: a cross-sectional survey

Guldhav

Jepsen

Ytrehus³

et al. 2017

BMC Nurs

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BackgroundAn increasingly older population, improved diagnostics and treatment increase the number of older cancer survivors, thus more than 60% of those affected by cancer are over the age of 65. Symptom relief and the prevention of functional impairment are important tasks for home care nursing, considering that patients can live a long time with their cancer disease and related side effects. The aim of this study was to investigate the extent to which cancer patients over the age of 65 reported access to information and counselling from home care nursing services, including those offered by the cancer coordinator.MethodsA cross-sectional survey was used. The survey consisted of 174 cancer patients from two regions in Norway living at home (101 women; 66–92 years). The questionnaire contained questions of various sequences including information and advices given and data on access to and use of home health care services. The questions focused on the extent to which home health care services provided the following: 1) information about the disease and treatment, 2) information about consequences and complications of the cancer disease, 3) nutritional advice and 4) advice on physical activity. Demographic, clinical and organizational variables were used. SPSS program version 22 was employed to perform descriptive and inferential statistics including correlation and logistic regression analysis. For ethical reasons, patients who were dying, delirious or with presence of cognitive impairment (any kind of dementia) were excluded.ResultsThe results showed that a majority (67–77%) of the respondents reported low levels of information and counselling offered. Low levels represents in this study medium, small and very small degree (Likert scale). Women, those above 85 years of age and patients with a gynecological or hematological cancer diagnosis experienced less access to information and counselling. Respondents facing availability of a cancer coordinator reported significantly higher access to information about the disease and treatment (p = 0.03), nutritional advice (p = 0.04) and advice on physical activity (p = 0.04) compared to those who only had contact with a home health care nurse or home health care assistant.ConclusionsThe results indicated that the availability of a cancer coordinator facilitated personalized information and counselling for older cancer patients.

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Unmet psychosocial needs in haematological cancer: a systematic review

Cited by 91 publications

References 42 publications

Perspectives of patients with haematological cancer on how clinicians meet their information needs: “Managing” information versus “giving” it

Perspectives of patients with haematological cancer on how clinicians meet their information needs: “Managing” information versus “giving” it

Unmet psychosocial supportive care needs and psychological distress in haematological cancer survivors: The moderating role of psychological flexibility

Access to information and counselling – older cancer patients’ self-report: a cross-sectional survey

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