Unmet Supportive Care Needs and Associated Factors: a Cross-sectional Survey of Chinese Cancer Survivors

Lou, Yan; Yates, Patsy; Chan, Raymond Javan; Ni, Xiaosha; Hu, Wenyi; Zhuo, Shengjun; Xu, Hong

doi:10.1007/s13187-020-01752-y

Cited by 23 publications

(25 citation statements)

References 37 publications

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“…These findings are consistent with Burg's study [34] and another study conducted in Iran [28]. This high level of unmet support needs reported in studies among women underscores the importance of paying closer attention to expressing gender-specific support needs [33]. In other studies, it has been emphasized that women with ovarian and breast cancer who were on chemotherapy had higher unmet support needs and higher stress levels than men [19,35].…”

Section: Discussionsupporting

confidence: 88%

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Perceived spouse unsupportive behaviors in women with breast cancer and their spouses

et al. 2021

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Introduction. Unsupportive responses from relatives, particularly spouses, play a significant role in the psychological adjustment of breast cancer patients and their spouses. Failure to meet the physical and psychological needs of breast cancer patients and their spouses can lead to anxiety, depression, and numerous marital problems. The aim of this study was designed to describe perceived spouse unsupportive behaviors in women with breast cancer and their spouses.Material and methods. This is a cross-sectional study. A total of 220 women with breast cancer along with their husbands participated in this study through random sampling. In the present study, data collection was performed using a demographic information checklist and a questionnaire.Results. The mean perceived women's unsupportive behavior (20.73 ± 8.44) was higher than that of men's (18.80 ± 5.83), which was statistically significant (p = 0.003). The mean score of perceived women's unsupportive behavior in the categories of marital status, companion, place of residence, men's and women's occupation, and the type of residential house, and the mean score of perceived men's unsupportive behavior in the category of current treatment were different.Conclusions. Women perceive their spouses' behaviors as less supportive than their spouses' perceptions of women's behavior, which highlights the need for husbands to be more attentive to the impact of their behavior on their wives. Furthermore, talking with each other about problems is the most imperative factor in perceiving support by couples; accordingly, it can be concluded that couples who are reluctant to talk to each other concerning the problem perceive less mutual support.

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Section: Discussionsupporting

confidence: 88%

“…This indicates that women perceived more unsupportive behavior from men than what men perceived of women's behavior. A study in China found that women with cancer reported higher unmet support needs than men [33]. These findings are consistent with Burg's study [34] and another study conducted in Iran [28].…”

Section: Discussionsupporting

confidence: 87%

Perceived spouse unsupportive behaviors in women with breast cancer and their spouses

et al. 2021

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“…Two rounds of expert consultation concluded that the importance score of all items ranged between 3.80-5.00, and the items' coefficient of variation was 0-33%. After expert consultation and discussion, 6 items (item number 16,17,18,19,20,35) were deleted (Table 1), which were considered unable to reflect the specific postoperative health needs of PLC patients, such as "Do you need assistance with eating, dressing, washing".…”

Section: Expert Consultation Resultsmentioning

confidence: 99%

“…However, the unmet needs of PLC survivors have not been investigated. In China, only a few studies have investigated the unmet needs of cancer survivors [15][16][17][18][19], but the assessment tools used are not designed targeting PLC survivors. At present, there is no standardized quantitative postoperative health needs assessment tool for PLC patients worldwide.…”

Section: Introductionmentioning

confidence: 99%

Development and Validation of a Health Needs Assessment Scale for Primary Liver Cancer Patients Receiving Surgical Management

Jiang¹,

Wang²,

Rui³

et al. 2021

IJCOCR

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Cancer survivors usually have varying degrees of physical and psychosocial issues and poor quality of life.Understanding the health needs from a patient's view is necessary for developing targeted supportive services. There is neither research on the postoperative health needs of primary liver cancer (PLC) patients, nor the assessment tools specifically designed for PLC patients. The purpose of this study was to develop a postoperative health needs assessment scale for PLC patients receiving surgical management. This was a methodological instrument validation study conducted in the first affiliated of Jinan University between August 2018 and December 2019. PLC patients receiving surgical management were selected by convenient sampling methods. Ten patients were selected for semi-structured in-depth interviews to generate a 50-item initial scale. After two rounds of expert consultation, a 44-item initial scale was used for a 20-respondent small sample pre-test. The pre-survey scale was distributed to 250 patients. Structural validity was examined with factor analysis, and reliability was evaluated with the Cronbach alpha and split-half reliability. Among the 250 respondents of the pre-survey scale, 232 cases completed the questionnaire. After item analysis and factor analysis, 38 items were kept in the final scale. The content validity index for the whole scale (S-CVI) and each item (I-CVI) was 0.90 and 0.80-0.90, respectively. The total Cronbach alpha value was 0.935, and the split-half reliability was 0.931. The healthy needs assessment scale for PLC patients receiving surgical management has good reliability and validity.

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“…Frequently reported unmet needs include fear of cancer recurrence, concerns about family and friends, fatigue and hospital car parking (A. W. Boyes et al, 2015; Lisy et al, 2019). Studies have also found unmet needs may vary based on a number of sociodemographic and diagnosis/treatment‐related factors (Molassiotis et al, 2017; Willems et al, 2016), including time since diagnosis or completion of treatment (Armes et al, 2009; Gao et al, 2021), gender (A. W. Boyes et al, 2015; Lou et al, 2020) and age (A. W. Boyes et al, 2015; Fielding et al, 2013). Unresolved psychosocial issues have important implications for both health outcomes of patients with cancer and costs to the healthcare system.…”

Section: Introductionmentioning

confidence: 99%

A patient‐centred approach to determine optimal supportive care across the cancer trajectory: a cross‐sectional study

et al. 2021

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Objective Supportive care is recognised as an integral component of cancer care. To comprehensively improve supportive care and to inform policy, it is essential to examine consumer's views of health services. This study aimed to develop and test a patient‐centred approach by measuring consumer perspectives on the importance of aspects of supportive care to determine what patients consider highest quality or ‘optimal’ care. Methods A cross‐sectional survey was conducted in oncology outpatient clinics. Eligible patients were invited to complete the optimal care survey on an iPad. The survey consisted of 69 items assessing 14 care domains across five phases of the care trajectory. Results A total of 359 participants completed the survey. Items in the ‘preparation for treatment’ and ‘follow‐up and end‐of‐life care’ phases were endorsed as very important/essential to optimal care by most participants (79–97% and 80–100%, respectively). Items in the ‘preparation for first appointment’ (48–84%), ‘first appointment’ (51–97%) and ‘receiving treatment’ (32–93%) phases showed greater variation in endorsement. Conclusion This study provides a patient‐centred tool for quantifying optimal supportive care for people with cancer across the treatment trajectory. This tool could be used by healthcare providers to evaluate existing care quality, develop policies and guide clinical service improvements.

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Unmet Supportive Care Needs and Associated Factors: a Cross-sectional Survey of Chinese Cancer Survivors

Cited by 23 publications

References 37 publications

Perceived spouse unsupportive behaviors in women with breast cancer and their spouses

Perceived spouse unsupportive behaviors in women with breast cancer and their spouses

Development and Validation of a Health Needs Assessment Scale for Primary Liver Cancer Patients Receiving Surgical Management

A patient‐centred approach to determine optimal supportive care across the cancer trajectory: a cross‐sectional study

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