Unravelling the knowledge, beliefs, behaviours and concerns of Persons with Haemophilia and their carriers in Senegal

Babington-Ashaye, Awa; Diop, S; Geissbühler, Antoine; Moerloose, Philippe de

doi:10.1111/hae.14040

Cited by 9 publications

(17 citation statements)

References 18 publications

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“…A culturally adapted educational tool has been developed for Ivory Coast and is available on the site. 20 For all these aspects of diagnosis, education and patient care, the third Edition of “WFH guidelines for the management of hemophilia” is highly valued and of great importance 22 …”

Section: Resultsmentioning

confidence: 99%

How to implement medical and patient associations in low‐income countries: A proposition from the African French Alliance for the Treatment of Haemophilia (AFATH)

Sannié¹,

Moerloose²,

Albert³

et al. 2021

Haemophilia

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Introduction: There is a lack of joint recommendations by healthcare professionals (HCP) and patient organizations when a partnership between high and low-income countries in the field of haemophilia is planned. Aim: To draft recommendations to clarify the methodology when a partnership between low-and high-income countries is planned with the objective of a long-term implication. This methodology is to be implemented for fulfilling both medical and associative aims. Methods: Based on the available literature, a first document was written, then diffused to AFATH (Alliance Franco-Africaine pour le Traitement de l'Hémophilie) members, and after a one-day meeting and further amendments, a second draft was approved by all members before submission for publication. Results: Based on 6 years experience, several recommendations regarding the joint and separate roles of patient association and HCP for a first mission in French-speaking sub-Saharan African countries have been established. The proposed methodology for establishing preliminary contacts, the first visit and the key points for diagnostic action, medical follow-up, patient education and advocacy strategy outlines a model of partnership between patients and HCP. Conclusion: This paper written jointly by patients and physicians underlines the importance of reciprocal expert guidance and a partnership based on complementary inputs.

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Section: Resultsmentioning

confidence: 99%

How to implement medical and patient associations in low‐income countries: A proposition from the African French Alliance for the Treatment of Haemophilia (AFATH)

Sannié¹,

Moerloose²,

Albert³

et al. 2021

Haemophilia

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“…The knowledge, belief, and practice mode includes three processes of acquiring knowledge, generating beliefs, and forming behaviors. It is a nursing mode to change patients' health-related behaviors [ 6 , 7 ]. The purpose of this study is to estimate the outcome of nursing of health belief-based nursing united with knowledge, belief, and practice mode in patients with gastric cancer, and to provide a basis for the diversity of nursing methods of gastroscopy in patients with gastric cancer.…”

Section: Introductionmentioning

confidence: 99%

Outcome of Nursing Based on Health Belief United with Knowledge, Belief, and Practice Mode on Gastroscopy of Patients with Gastric Cancer

Yang

Guo

et al. 2022

Computational and Mathematical Methods in Medicine

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Aim. If gastric cancer can be detected through early screening, and scientific and reasonable intervention methods can be selected in time, the condition can be effectively controlled. Routine nursing has been unable to obtain satisfactory results, and the effect on improving the compliance of the examiner is not outstanding. The research aims to estimate the outcome of nursing based on health belief combined with knowledge, belief, and practice on gastroscopy in patients with gastric cancer. Methods. 126 patients with clinically diagnosed gastric cancer in the Number Two Hospital of Baoding from May 2020 to May 2022 were randomly divided into belief guidance group and mode group, with 63 instances each. The mode group was intervened via the mode of knowledge, belief, and practice, and the belief guidance group was intervened via the nursing based on health belief on the basis of the mode group. Before and after the nursing, the health belief, examination compliance, inappropriateness, and negative emotion in different time periods were contrasted between the two groups. Results. After the nursing, the scores of health belief scale in the belief guidance group were enhanced than those in the mode group; the compliance rate of the belief guidance group was markedly enhanced than that of the mode group, and the inappropriateness during the insertion and examination was lower than that of the mode group; the scores of self-rating anxiety scale (SAS) and self-rating depression scale (SDS) in the two groups preinsertion and postnursing were markedly lower than those in the mode group. Conclusion. Nursing based on health belief guidance united with knowledge, belief, and practice mode nursing can advance the health belief and compliance of gastroscopy in patients with gastric cancer, reduce discomfort, and effectively advance the negative emotions of patients. It is worthy of clinical application.

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“…Another such study in Canada identified gaps in the patients' knowledge 11 . A qualitative study (Babington‐Ashaye et al) reported that due to lack of knowledge, people of Senegal attributed haemophilia to various religious beliefs 13 …”

Section: Theoretical Backgroundmentioning

confidence: 99%

Assessing the current knowledge, attitude and behaviour of adolescents and young adults living with haemophilia

Mohan

Radhakrishnan²,

Varadarajan

et al. 2020

Haemophilia

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Introduction: There is significant incidence of Haemophilia in India, with second largest number of persons with Haemophilia A. 20,778 patients registered with Haemophilia Foundation of India in 2018. Research in India includes diagnostic studies, complications and co-morbidities, prenatal diagnosis, inhibitor development and gene therapy. Limited is known about quality of life of these patients. Since Haemophilia leads to the loss of 'normal lifestyle' in young people resulting in emotional distress and depression, it is important to analyse Knowledge, Attitude and Behaviour of persons with Haemophilia. Aim: The aim of the study is to focus on exploring the status of Haemophilia and knowledge, attitude, behaviour of adolescents and youths with haemophilia with the objectives to study 1) the current medical status of haemophilia amongst target population; 2) the knowledge, attitude and behaviour of patients with haemophilia towards their condition. Methods: Respondents in the age group of 15-30 years, who were registered with the Hemophilia Treatment Centers of Government Hospitals/Hemophilia Societies, were interviewed. Data were collected using a structured questionnaire. The study was conducted in two different states and with respondents of two different age groups. Findings: Most respondents suffered from severe haemophilia and co-morbidities such as anxiety, stress, chronic pain and headache. All of them felt that haemophilia interferes in leading a normal life and perceive a grim future. Conclusion: Young people in India need technical, financial and psychological support to prevent complications related to haemophilia. While most of them take responsibility for their health, more behavioural changes need to be inducted to improve quality of life.

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Unravelling the knowledge, beliefs, behaviours and concerns of Persons with Haemophilia and their carriers in Senegal

Cited by 9 publications

References 18 publications

How to implement medical and patient associations in low‐income countries: A proposition from the African French Alliance for the Treatment of Haemophilia (AFATH)

How to implement medical and patient associations in low‐income countries: A proposition from the African French Alliance for the Treatment of Haemophilia (AFATH)

Outcome of Nursing Based on Health Belief United with Knowledge, Belief, and Practice Mode on Gastroscopy of Patients with Gastric Cancer

Assessing the current knowledge, attitude and behaviour of adolescents and young adults living with haemophilia

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