Updated meta-review of evidence on support for carers

Dalton, Jane; Thomas, Siân; Harden, Melissa; Eastwood, Alison; Parker, Gillian

doi:10.1177/1355819618766559

Cited by 30 publications

(20 citation statements)

References 44 publications

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“…Par ailleurs, la définition du cadre thérapeutique est un élément-clé de la mobilisation de l'art-thérapie dans une démarche éducative. Le programme d'art-thérapie doit alors répondre aux besoins des bénéficiaires et s'intégrer dans le programme d'ETP tout en en respectant les étapes et le caractère personnalisé, à savoir bilan éducatif initial avec un contrat éducatif, la participation d'ateliers éducatifs individuels et collectifs avec une évaluation finale [11,43]. Ainsi, les séances individuelles proposées dans le cadre d'Educ' Art-Ped visant à encourager la création d'alliance thérapeutique et à faciliter une expression libre, devraient être complétées par des séances collectives favorisant l'échange et le partage d'expériences et de connaissances [7,44].…”

Section: Discussionunclassified

Étude de faisabilité « Educ’Art-Ped » : Évaluation de l’impact de l’art-thérapie sur la qualité de vie des aidants d’enfants diabétiques

Ouazzani

Fontaine

Morlet

et al. 2019

Educ Ther Patient/Ther Patient Educ

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Introduction : Le diagnostic du diabète chez l’enfant impacte la qualité de vie (Qvie) des parents. Pour accompagner l’enfant et son entourage, les programmes d’éducation thérapeutique du patient (ETP) peuvent mobiliser plusieurs disciplines, dont l’art-thérapie. Objectif : Déterminer l’impact de l’art-thérapie sur la Qvie des aidants d’enfants diabétiques. Méthodes : Un essai contrôlé randomisé multicentrique, avec séances d’art-thérapie en binôme (animateur et observateur), a été réalisé avec une analyse mixte, quantitative sur l’évolution du score de Qvie « PedsQL Family Impact Module », et qualitative sur l’analyse des commentaires rapportés par un observateur. Résultats : In fine, 15 aidants non exposés et 17 exposés ont participé. Nous n’avons pas retrouvé de différence significative entre l’évolution moyenne des scores de Qvie des deux groupes (p = 0,2). Toutefois, les art-thérapeutes ont rapporté l’amélioration progressive des compétences de communication des aidants, l’acquisition du lâcher-prise et l’occultation ponctuelle du diabète. Discussion : Cette étude a permis d’identifier quatre leviers méthodologiques portant sur : (a) l’inclusion ; (b) la gestion des données ; (c) le choix des outils et des délais d’évaluation ; (d) le cadre thérapeutique. Conclusion : L’organisation des séances d’art-thérapie dans la nouvelle plateforme salutogénique de promotion de la santé Vie La Santé facilitera l’implémentation de l’étude Educ’Art-Ped2.

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Section: Discussionunclassified

Étude de faisabilité « Educ’Art-Ped » : Évaluation de l’impact de l’art-thérapie sur la qualité de vie des aidants d’enfants diabétiques

Ouazzani

Fontaine

Morlet

et al. 2019

Educ Ther Patient/Ther Patient Educ

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“…The evidence that emerged from the focus groups and interviews confirmed the findings from the literature review. The experts agreed in particular on the overall scheme of key factors promoting SI, as proposed by the model offered by Goldman and colleagues [51], also adopted by the MoPAct research team [26]. As for the focus groups, the consulted experts had been invited to identify the meaning of each key factor for the Italian LTC context.…”

Section: Key Factors To Promote Social Innovation Actionsmentioning

confidence: 99%

“…Informal carers-along with professional carers -have, as a result, become a crucial and inevitable component of the most co-modified care regimes [24]. The above identified SI characteristics meet the general features of familistic care regimes, since recent studies show that SI in these countries is often implemented to improve the relationship between formal care and informal care provided at home [25][26][27].…”

Section: Introductionmentioning

confidence: 99%

“…Table 2 identifies the SI conditions proposed by Heinze and Naegele [41] that were considered for each of the three case studies, which are characterized by four, five and seven SI conditions, respectively. This extent is well above the minimum level of two considered as a threshold for an experience to be valued as socially innovative [26]. Two conditions were common to all three good practices: the presence of "suggestions for new solutions in the respective societal, cultural and economic context"; and the "promotion of the integration and collaboration/partnership of heterogeneous stakeholders that have hitherto not co-operated".…”

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confidence: 96%

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Social Innovation in Long-Term Care: Lessons from the Italian Case

Casanova

Principi

Lamura

2020

IJERPH

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The debate on policies addressing the challenges posed by population ageing pays increasing attention to sustainable and innovative ways to tackle the multidimensional impact this phenomenon has on society and individuals. Moving from the findings of two European research projects, a qualitative study based on a rapid review of the literature, expert interviews, focus groups and case studies analysis has been carried out in Italy. This study illustrates which social innovations have been recently implemented in this country’s long-term care (LTC) sector, and the areas in which further steps are urgently needed in the future. This takes place by first highlighting the existing links between social innovation and LTC, and then by identifying the key factors that can facilitate or hinder the implementation of these initiatives. Finally, the study suggests how to promote social innovation, by strengthening the “integration” and “coordination” of available services and resources, through a—for this country still relatively—new approach towards ageing, based on pillars such as prevention and education campaigns on how to promote well-being in older age.

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“…Many other strategies have also shown to be effective, such as the implementation of debrie ng sessions and group therapies to share experiences and relieve the sorrow related to challenging and stressful situations. Programs of deescalation of tension through mindfulness techniques could be also cost-effective and easily implemented in routine practice to prevent future development of acute and chronic PTSD, major depression or suicidal behaviors [31,32].…”

Section: Need For Psychological Supportmentioning

confidence: 99%

Psychological Impact of a Pandemic Widespread in Healthcare Workers: The Italian and Swiss Perspective Early After of CoVid-19 Outbreak

Uccella

Majno‐Hurst

Uccella

et al. 2020

Preprint

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Background. We investigated the COVID19-related psychological impact in healthcare workers three weeks after its onset in Italy and in Italian-speaking regions of Switzerland. All professional groups of public hospitals in Italy and Switzerland were asked to complete a 38 questions online survey investigating demographic, marital and working status, presence of stress symptoms and need for psychological support. Results. Within 38 hours a total of 3,038 responses were collected. The subgroup analysis identified specific categories at risk according to age, type of work and region of origin. Critical care workers, in particular females, reported an increased number of working hours, decline in confidence in the future, presence of stress symptoms and need for psychological support. People reporting stress symptoms and those with children declared a higher need for psychological support. Conclusions. The large number of participants in such a short time advocates for a high interest on topic among hospital workers. The COVID19 outbreak could have been and still be a repeated trauma for many health professionals, with risk of future psychiatric sequelae. It is of outstanding importance to implement short and long-term measures to mitigate impact of the emotional burden of this pandemic while at the same time dealing with its clinical challenges.

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Updated meta-review of evidence on support for carers

Cited by 30 publications

References 44 publications

Étude de faisabilité « Educ’Art-Ped » : Évaluation de l’impact de l’art-thérapie sur la qualité de vie des aidants d’enfants diabétiques

Étude de faisabilité « Educ’Art-Ped » : Évaluation de l’impact de l’art-thérapie sur la qualité de vie des aidants d’enfants diabétiques

Social Innovation in Long-Term Care: Lessons from the Italian Case

Psychological Impact of a Pandemic Widespread in Healthcare Workers: The Italian and Swiss Perspective Early After of CoVid-19 Outbreak

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