Uptake and adherence to an online intervention for cancer-related distress: older age is not a barrier to adherence but may be a barrier to uptake

Beatty, Lisa; Kemp, Emma; Binnion, Claire; Turner, Jane; Milne, Donna; Butow, Phyllis; Lambert, Sylvie; Yates, Patsy; Yip, Desmond; Koczwara, Bogda

doi:10.1007/s00520-017-3591-1

Cited by 48 publications

(47 citation statements)

References 43 publications

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“…Therefore, our study does not confirm the concern that adherence in mHealth interventions is in general poor, which would limit treatment implementation. The adherence of our patients is also comparable with recent research on adherence to e-and mHealth interventions for cancer patients [32,33]. A study by Beatty el al.…”

Section: Summary Of Findingssupporting

confidence: 74%

“…With 74%, mainly female patients enrolled in this study, which is consistent with characteristics of mHealth users in other studies with 84% female patients [46] and 54% female patients [47]. The mean age of participating patients was 53 years; this is comparable to other face-to-face mindfulness and relaxation interventions [48] or online interventions for cancer patients [32]. The interviews showed that the patients were satisfied with the app in general.…”

Section: Summary Of Findingssupporting

confidence: 72%

“…A study by Beatty el al. [32] reported that 60% of cancer patients completed four or more modules of an eHealth intervention with six modules, which aimed at reducing distress in cancer patients. A mindfulness app study for cancer patients and caregivers [33] reported that 71% of the participants practiced with the app on more than half of the days throughout eight weeks.…”

Section: Summary Of Findingsmentioning

confidence: 99%

“…Although recent eHealth studies report acceptable rates of adherence (e.g. 60% completed four or more out of six modules [32] and 71% practiced more than 50% of the days during eight weeks [33], respectively), little is known about the adherence to mindfulness and relaxation mHealth programs for cancer patients. Therefore, when setting up a self-care mHealth intervention, it is important to know which factors might influence the patient adherence.…”

Section: Introductionmentioning

confidence: 99%

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Adherence to a Mindfulness and Relaxation Self-Care App for Cancer Patients: Mixed-Methods Feasibility Study (Preprint)

Mikolasek¹,

Witt²,

Barth³

2018

Preprint

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Section: Summary Of Findingssupporting

confidence: 74%

Section: Summary Of Findingssupporting

confidence: 72%

Section: Summary Of Findingsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Adherence to a Mindfulness and Relaxation Self-Care App for Cancer Patients: Mixed-Methods Feasibility Study (Preprint)

Mikolasek¹,

Witt²,

Barth³

2018

Preprint

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“…Age appeared to play a role in preferred choice of device as younger cancer survivor users anticipated preferring smartphones due to easy access, while some of the older patient users (> 50-years) anticipated preferring to use tablets due to the smaller smartphone screens. Older age has been reported to be a barrier to uptake of web-based intervention for cancer-related distress [46]. However, once enrolled, older individuals have demonstrated better intervention adherence.…”

Section: User Requirementsmentioning

confidence: 99%

A Stress Management App Intervention for Cancer Survivors: Design, Development, and Usability Testing (Preprint)

Børøsund¹,

Mirković²,

Clark³

et al. 2018

Preprint

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1 IntroductionA cancer diagnosis and subsequent treatment can be disruptive and traumatic, often accompanied by a multitude of stressors for the cancer patients and their support network [1][2][3]. Uncertainty of outcome and medical procedures with aversive side effects are not uncommon, and while people differ widely in how they experience and cope with such challenges, cancer related distress including worry, anxiety and depression, as well as reduced quality of life (QoL) are prevalent [2,4,5]. Fortunately cancer survival rates are improving, but survivorship is accompanied by long-term health challenges and many survivors struggle to cope and maintain a positive quality of life [6,7].Psychosocial cognitive behavioral stress management interventions are well documented, structured and multidisciplinary, focusing on specific strategies to improve physical, social, emotional, functional, and overall well-being [4,[8][9][10][11][12][13].Addressed are often factors such as educational information, coping, relaxation-and mindfulness training, problem solving skills, self-care strategies, thought awareness and mood management, health behavior change, social support and communication strategies. These interventions have been shown to facilitate psychological adaptation to cancer, including reducing distress, anxiety, negative affect and depression, as well as improving QoL [4, 8-10, 12, 13]. Positive findings are also supported by reviews and meta-analyses [14][15][16][17][18][19][20]. Some of these interventions have even been shown to have beneficial effects on immune markers [9,21, 22], and there are indications that recurrence and survival rates may also be positively affected [20,23].2 Unfortunately, face-to-face psychosocial interventions are not always offered or easily available to the cancer survivor. In addition, patients with cancer face many demands and stressors, often feel overwhelmed, and may be reluctant to take on the additional commitment of attending and engaging in psychosocial intervention programs [13]. If psychosocial interventions are unavailable, or attending in-person services appears too challenging despite unmet needs, innovative thinking is needed about how psychosocial challenges can be addressed and coping skills supported in a format that is appealing and available to cancer survivors.With the rapid advance of technology, the evolving concept of eHealth encompasses a range of systems or services in a novel cross-section between medicine, healthcare and information technology. eHealth solutions carry the potential to provide support anytime and anywhere, which again can facilitate ways The current study reports on the design and development of a technology based stress management intervention for cancer survivors. The study combined wellestablished cognitive behavioral stress management concepts shown to be effective for patients with cancer in face to face interventions [4, 8-10, 12, 13, 31, 32] with a user-centered design approach to ensure that the intervention was designed in line ...

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Health literacy, digital health literacy and the implementation of digital health technologies in cancer care: the need for a strategic approach

Kemp

Trigg

Beatty

et al. 2020

Health Prom J of Aust

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123

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Issue addressed Digital health technologies can potentially reduce health disparities in cancer care. However, the benefits of digital health technology depend partly on users’ digital health literacy, that is, “capabilities and resources required for individuals to use and benefit from digital health resources,” which combines health and digital literacy. We examined issues for digital health technology implementation in cancer care regarding digital health literacy, via stakeholder consultation. Methods Consumers, health care professionals, researchers, developers, nongovernment and government/policy stakeholders (N = 51) participated in focus groups/interviews discussing barriers, enablers, needs and opportunities for digital health implementation in cancer care. Researchers applied framework analysis to identify themes of digital health literacy in the context of disparity and inclusion. Results Limited digital and traditional health literacy were identified as barriers to digital technology engagement, with a range of difficulties identified for older, younger and socio‐economically or geographically disadvantaged groups. Digital health technology was a potential enabler of health care access and literacy, affording opportunities to increase reach and engagement. Education combined with targeted design and implementation were identified means of addressing health and digital literacy to effectively implement digital health in cancer care. Conclusions Implementing digital health in cancer care must address the variability of digital health literacy in recipients, including groups living with disadvantage and older and younger people, in order to be effective. So what? If cancer outcome disparity is to be reduced via digital health technologies, they must be implemented strategically to address digital health literacy needs. Health policy should reflect this approach.

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Uptake and adherence to an online intervention for cancer-related distress: older age is not a barrier to adherence but may be a barrier to uptake

Cited by 48 publications

References 43 publications

Adherence to a Mindfulness and Relaxation Self-Care App for Cancer Patients: Mixed-Methods Feasibility Study (Preprint)

Adherence to a Mindfulness and Relaxation Self-Care App for Cancer Patients: Mixed-Methods Feasibility Study (Preprint)

A Stress Management App Intervention for Cancer Survivors: Design, Development, and Usability Testing (Preprint)

Health literacy, digital health literacy and the implementation of digital health technologies in cancer care: the need for a strategic approach

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