Urban American Indian Community Health Beliefs Associated with Addressing Cancer in the Northern Plains Region

Idoate, Regina; Gilbert, Mark J.; King, Keyonna M.; Spellman, Lisa; McWilliams, Bobbie; Strong, Brittany; Bronner, Liliana P.; Siahpush, Mohammad; Ramos, Athena K.; Clarke, Martina A.; Michaud, Tzeyu L.; Godfrey, Maurice; Solheim, Joyce C.

doi:10.1007/s13187-020-01727-z

Cited by 9 publications

(11 citation statements)

References 12 publications

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“…The IResearch club program is offered through the UNMC YES program to NA middle school students interested in health science professions. This club is active year-round, investigating cancer-related health concerns identified through a Community Readiness Assessment ( Idoate et al, 2020 ) with input from teachers and students in the public school district’s Native Indigenous Centered Education (NICE) program. Prior to the pandemic, YES middle school IResearch club programming was conducted in three middle schools as part of the NICE program.…”

Section: Program Adaptationsmentioning

confidence: 99%

“…As much as possible, research experiences are tailored to students’ interests and availability. Some examples of research projects that interns have participated in include: investigating an Osage elder’s experience of living with skin cancer ( McWilliams and Idoate, 2020 ), investigating the association between the quantity of a specific enzyme and the presence of a protein on melanoma cells that allows recognition by immune cells, analyzing proteins that contribute to the growth and spread of pancreatic cancer, conducting a community readiness assessment to develop stage-appropriate strategies to address cancer in the community, and examining the functional role of genes mutated in breast cancer tumors in chemotherapy resistance ( Idoate et al, 2020 ).…”

Section: Program Adaptationsmentioning

confidence: 99%

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Tailoring Our Approach in Response to the SARS-CoV-2 Pandemic and Transcending Science Outreach Modalities for Native American Students in a Cancer Research Education Program

Rookwood

Bronner

Abney

et al. 2021

JSTEM

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In response to the SARS-CoV-2 pandemic, a cancer research education program at the University of Nebraska Medical Center designed for Native American middle school, high school and undergraduate students adapted activities to be delivered online. There are considerable challenges to adapting in-person science programming to online delivery that can impact overall effectiveness. These challenges are further exacerbated when the cognate student population also faces significant disparities in health, wealth, and educational outcomes. We encountered both disadvantages and advantages in transitioning programming to online virtual formats. Challenges faced in delivering our programming during the pandemic included varied online accessibility, peripheral stressors, and disconnection to places and people. Despite these challenges, we found several benefits in remote delivery, some of which have alleviated barriers to program participation for Native American students. Some successes achieved by transitioning to fully remote programming included increased program reach, sustainability, and cultural relevancy. In this overview of the implementation of four online programs at the middle school, high school, and undergraduate levels, we highlight the challenges and successes experienced. Through this program description, we aim to provide insight into potential strategies to improve program delivery designed for Native American students during the SARS-CoV-2 pandemic and beyond.

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Section: Program Adaptationsmentioning

confidence: 99%

Section: Program Adaptationsmentioning

confidence: 99%

Tailoring Our Approach in Response to the SARS-CoV-2 Pandemic and Transcending Science Outreach Modalities for Native American Students in a Cancer Research Education Program

Rookwood

Bronner

Abney

et al. 2021

JSTEM

Self Cite

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show abstract

“…Preparing students to better understand and increase access to opportunities for careers in Science, Technology, Engineering and Mathematics (STEM) is an important national priority and numerous programs have been developed to improve mastery of STEM subjects at all levels of education across the United States (United States Dept Education 2007; National Science Foundation 2020; National Academies of Science 2021). At the same time, healthcare and biomedical professionals have noted the increased burden of diseases suffered by underserved minority populations in the U.S. and that these underserved groups are generally underrepresented in the biomedical workforce (Ford et al, 2013;Carratala and Maxwell, 2020;Palmer Kelly et al, 2021;Michaud et al, 2021). For example, in the U.S. the average age adjusted cancer mortality rate for all sites is 177.5 per 100,000 Black persons compared to 156.3 per 100,000 White persons.…”

Section: Introductionmentioning

confidence: 99%

“…These reports have generally focused on strategies for recruiting and training URM students in STEM subjects. However, only limited institutions have reported approaches to disparities education (Idoate et al, 2021;.…”

Section: Introductionmentioning

confidence: 99%

Disparities Education Strategies in the Case Comprehensive Cancer Center STEM Focused Youth Enjoy Science Program

Omoijuanfo

Williams

Qua

et al. 2022

JSTEM

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The Youth Enjoy Science/Scientific Enrichment and Opportunity (YES/SEO) Program at Case Western Reserve University (CWRU) School of Medicine and the Case Comprehensive Cancer Center (Case CCC) in Cleveland, OH is an intensive Research, Science, Technology, Engineering, and Mathematics (STEM) program targeted at engaging underrepresented minority high school students to better understand and to pursue careers in cancer research and healthcare. The program's long-range goals are to increase diversity of the cancer professional workforce to contribute to elimination of cancer health inequities. A challenging aspect of this intensive research and STEM education program is how to effectively teach about cancer health disparities and to address the importance of developing strategies for their remediation. We describe herein some innovative approaches utilized to engage students in learning about disparities and thinking about solutions. Overall, feedback from our students indicates the importance of introducing disparities education topics often and using multiple approaches, including small and large meetings as well as lecture and conversational formats. These approaches provide opportunities for frequent student engagement and concept reinforcement. Based on this experience, a series of recommendations are provided for incorporating disparities education into intensive research and STEM programs.

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“…12 This approach can open up a dialogue around cancer, a topic often considered taboo in NA populations. 13 Bobbie stresses that anyone can get skin cancer, even a citizen from The Osage Nation with a dark completion. Suzanne reaffirms this fact, noting, "I do look very Indian, and I don't think there's a whole lot of us that really do have skin cancer, but I certainly do."…”

mentioning

confidence: 99%

Portraits of Suzanne, an Osage Woman's Story of Loving the Sun and Living With Skin Cancer

McWilliams

Idoate

2020

AMA Journal of Ethics

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Suzanne, an elder of The Osage Nation, has been diagnosed with basal cell carcinoma, squamous cell carcinoma, and melanoma skin cancer. Her daughter, Bobbie, a cancer researcher working for the Youth Enjoy Science Research Education Program, conducted a case study to share Suzanne's story through written narrative and a series of images that present Suzanne's reflections on cancer prevention and treatment from a holistic perspective. Seven interview transcripts, as well as photographs, drawings, and paintings of Suzanne, were created and analyzed to explore Suzanne's lived experience of cancer. In her story of living with cancer, Suzanne shares an elder's love and wisdom that can inform cancer education and prevention efforts to help address Native American cancer disparities.Native Americans Do Get Skin Cancer Nearly 1 of 10 Native Americans (NAs) believe that Native peoples do not develop skin cancer, and nearly 9 of 10 have been sunburned at least once. 1 Melanoma skin cancer among NAs is less common than among whites 2 ; however, only 1 of 10 NAs report using sunscreen regularly on their bodies, 1 and skin cancer among NAs often goes underdiagnosed until more advanced stages. 2 NAs' perceptions of their low risk of skin cancer, coupled with limited access to health care services, could contribute to the finding that, historically, NAs have made significantly fewer office visits to a dermatologist than whites. 3 Scholars and practitioners recommend increasing public awareness and public health education and improving screening and early detection to prevent cancer. 4 In an effort to raise the NA index of suspicion and increase efforts to prevent skin cancer among NAs, we share Suzanne's story through written narrative and portraits as a case study exploring one NA woman's lived experience of skin cancer.Suzanne, an elder of The Osage Nation who resides in Tulsa, Oklahoma, has spent the majority of her life outdoors, in the water and under the sun. Suzanne grew up in the Great Plains near the Osage ancestral lands, surrounded by rivers and lakes. She loved to swim and embodied the Osage sacred name "children of the middle waters." Suzanne's daughter, Bobbie McWilliams, citizen of The Osage Nation, an undergraduate fine arts major/Native American studies minor and a Youth Enjoy

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Urban American Indian Community Health Beliefs Associated with Addressing Cancer in the Northern Plains Region

Cited by 9 publications

References 12 publications

Tailoring Our Approach in Response to the SARS-CoV-2 Pandemic and Transcending Science Outreach Modalities for Native American Students in a Cancer Research Education Program

Tailoring Our Approach in Response to the SARS-CoV-2 Pandemic and Transcending Science Outreach Modalities for Native American Students in a Cancer Research Education Program

Disparities Education Strategies in the Case Comprehensive Cancer Center STEM Focused Youth Enjoy Science Program

Portraits of Suzanne, an Osage Woman's Story of Loving the Sun and Living With Skin Cancer

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