Urdu translation and validation of Cerebral Palsy Quality of Life Children(CP QOL): Primary caregiver version

Abstract

Background: Quality of life is a key feature to measure the progress in children with disability. Motor disability is major problem and it affect quality of life of cerebral palsy children. Methods: The objective of the study was to determine the psychometric properties of Urdu version of cerebral palsy quality of life children (CP QOL-Child) primary caregiver questionnaire. Forward and backward translation for English version of CP QOL-child primary caregivers was performed following cross-cultural adaptation guidelines. Psychometric properties assessed include test-retest reliability, internal consistency, construct validity. The Urdu CP QOL-Child was completed by 100 caregivers. Results: 100 primary caregivers of CP children were included. internal consistency ranged from 0.607 ­- 0.916, intra-class correlation coefficient (ICC)) ranged from 0.865to 0.974. there was negative correlation between all domains of CP-QOL primary caregivers version and GMFCS except feeling about function domain. Conclusion: The result of this study indicates that the Urdu CP QOL-Child primary caregivers questionnaire appears to be valid for use in Urdu speaking primary caregivers of children with cerebral palsy.