Usability and acceptance evaluation of ACESO: a Web-based breast cancer survivorship tool

Abstract

Using a personal decision support-based tool can serve as a training tool and resource, providing these patients with pertinent information about the various aspects of their long-term health, while educating them about any related side effects and symptoms. It is hoped that making such tools more accessible could help in engaging survivors to play an active role in managing their health and encourage shared decision-making with their providers.

Exploring Interactive Survivorship Care Plans to Support Breast Cancer Survivors: Protocol for a Randomized Controlled Trial (Preprint)

“…Upon consultation with breast cancer oncologists, survivors, and a nurse, we have developed and refined the online survivorship care plan, ACESO (Figure 1), and subsequently completed an initial usability assessment to identify any issues. In prior usability and acceptance evaluations, survivors indicated high levels of acceptance and interest in the online survivorship plan [14].…”

“…Lack of time or interest on the part of prospective participants will be a potential barrier to recruitment. To ensure robust recruitment, we will adopt recruitment procedures previously shown to be successful in our pilot [14] and in other studies [56,57]. In addition, the recruitment window will last a full year to allow for adequate recruitment time.…”

“…With consultation from experts, including survivors and providers, we designed and developed a prototype of an interactive and personalized online breast cancer survivorship tool called ACESO (After-Cancer Education and Support Operations). ACESO aims to enhance the continuity of care for breast cancer survivors and improve their follow-up experiences, especially as they deal with posttreatment challenges such as comorbidities and side effects of treatment [14]. By transforming the conventional, paper-based SCP into a personalized and interactive survivorship resource, ACESO enables 2-way interaction with the SCP by allowing patients to use the built-in tool to track survivor symptoms and quality-of-life observations, and in return, to receive timely and customized educational alerts and individual reminders for follow-up visits.…”

“…The specific aims are, firstly, to assess ACESO's feasibility. Based on results from our preliminary study [14], breast cancer survivors reported high usability and perceived usefulness of ACESO. We will use mixed methods, including surveys and personal interviews, to determine the feasibility of providing an online, interactive SCP (ACESO) based on the online user experiences and short-term adoption of 25 participants.…”

Mobile applications for breast cancer survivorship and self-management: A systematic review

“…[23][24][25][26] Survivors as well as their caregivers also report positive attitudes and willingness towards the use of online health information and tools for survivorship support. 25,[27][28][29] mHealth apps can play a key role in filling this gap by providing patients a dynamic platform to continually monitor and track symptoms over time; interact with peer survivors for support and discussion on survivorship topics; provide resources for caregivers; receive reminders for medication or follow-up; and educate themselves on the self-management of survivorship related health concerns at the relevant times. Guided by the Chronic Care Model 26 for patients living with cancer as a chronic illness; and descriptions of mHealth app functionalities from prior reviews, 30,31 we identified six mHealth based basic self-management features (Figure 1…”