Use and practice of patient diaries in Swedish intensive care units: a national survey

Åkerman, Eva; Granberg-Axéll, Anetth; Ersson, Anders; Fridlund, Bengt; Bergbom, Ingegerd

doi:10.1111/j.1478-5153.2009.00364.x

Cited by 68 publications

(68 citation statements)

References 16 publications

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“…This is in accordance with the majority of reported patient diary usage which has been within Europe, particularly Scandinavia [18][19][20]51] and the United Kingdom [22,52].…”

Section: Discussionsupporting

confidence: 90%

“…Patient diaries are generally written prospectively and addressed personally to the individual patient. ICU staff provide an overall structure for the diary, with a cover and sometimes a preprinted introduction and glossary of terms and equipment [19][20][21]. Diaries are generally structured with a summary outlining the reason and event of admission to ICU, daily entries, and a final note on discharge or transfer from the ICU [21].…”

Section: Intensive Care Unit (Icu) Diariesmentioning

confidence: 99%

“…Current practice surrounding the provision of patient diaries to the patients is variable. ICUs differ between putting the diaries on the end of the bed when transferring a patient out of ICU to delivering a coordinated system of follow-up and support for the patients and their families [20,21,23].…”

Section: Intensive Care Unit (Icu) Diariesmentioning

confidence: 99%

See 2 more Smart Citations

Intensive care diaries to promote recovery for patients and families after critical illness: A Cochrane Systematic Review

Ullman

Aitken

Rattray

et al. 2015

International Journal of Nursing Studies

112

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This is the accepted version of the paper.This version of the publication may differ from the final published version. Review methods: Studies evaluated the effectiveness of patient diaries, when compared to no ICU diary, for patients or family members to promote recovery after admission to ICU were included. Outcome measures for describing recovery from ICU included the risk of post-traumatic stress disorder (PTSD), anxiety, depression and post-traumatic stress symptomatology, health-related quality of life and costs. We used standard methodological approaches as expected by The Cochrane Collaboration. Two review authors independently reviewed titles for inclusion, extracted data and undertook risk of bias according to pre-specified criteria. Permanent repository link Results:We identified three eligible studies; two describing ICU patients (N = 358), and one describing relatives of ICU patients (N = 30). No study adequately reported on risk of PTSD as described using a clinical interview, family or caregiver anxiety or depression, health-related quality of life or costs. Within a single study there was no clear evidence of a difference in risk for developing anxiety (RR 0.29, 95% CI 0.07 to 1.19) or depression (RR 0.38, 95% CI 0.12 to 1.19) in participants who received ICU diaries, in comparison to those that did not receive a patient diary. Within a single study there was no evidence of difference in median post-traumatic stress symptomatology scores (diaries 24, SD 11.6; no diary 24, SD 11.6) and delusional ICU memory recall (RR 1.04, 95% CI 0.84 to 1.28) between the patients recovering from ICU admission who received patient diaries, and those who did not. One study reported reduced post-traumatic stress symptomatology in family members of patients recovering from admission to ICU who received patient diaries (median 19; range 14 to 28), in comparison to no diary (median 28; range 14 to 38). Conclusions:Currently there is minimal evidence from RCTs of the benefits or harms of patient diaries for patients and their caregivers or family members. A small study has described their potential to reduce post-traumatic stress symptomatology in family members. However, there is currently inadequate evidence to support their effectiveness in improving psychological recovery after critical illness for patients and their family members.

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“…This is in accordance with the majority of reported patient diary usage which has been within Europe, particularly Scandinavia [18][19][20]51] and the United Kingdom [22,52].…”

Section: Discussionsupporting

confidence: 90%

Section: Intensive Care Unit (Icu) Diariesmentioning

confidence: 99%

See 1 more Smart Citation

Intensive care diaries to promote recovery for patients and families after critical illness: A Cochrane Systematic Review

Ullman

Aitken

Rattray

et al. 2015

International Journal of Nursing Studies

112

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“…The purpose is to help the patient to remember their time in the ICU and for the family to get answers to any questions they have. The opportunity to visit the room where the patient was cared for has been shown to help the patients to anchor their dreams in reality (Bäckman et al, 2010;Egerod and Christensen, 2009;Gjengedal et al, 2010;Griffiths et al, 2009;Knowles and Tarrier, 2009;Storli and Lind, 2009;Åkerman et al, 2010).…”

Section: Introductionmentioning

confidence: 99%

The experiences of patients and their families of visiting whilst in an intensive care unit – A hermeneutic interview study

Eriksson

Bergbom

Lindahl

2011

Intensive and Critical Care Nursing

Self Cite

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SummaryAim: The aim of this study was to interpret and understand the meanings of the lived experiences of visiting of patients in an ICU and their families. Method: The research design was hermeneutic, based on interviews. This study includes 12 interviews with seven patients and five relatives who had been in an ICU. The interview text was interpreted in a Gadamerian manner as different plays with actors and plots. Findings: Patients' narratives could be divided into two parts; recall of real life and unreal life experiences, the unreal being more common. Relatives' narratives are described as being on stage and being backstage, i.e. in the room with the patient and outside it. Conclusion: The final interpretation elucidated the experience of visiting as the sudden shift between being present in real life vs. being present in the real life of unreality. It was a process whereby the patient and the family build a new understanding of life that creates a new form of interplay within the family. The pre-critical illness life is no longer there -a new life has begun. To support patients and their families in this process of change a family-centred care perspective is necessary.

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“…Som regel er det opp til den enkelte sykepleieren å vurdere om og når de skal starte opp med dagbok (21,22). Primaermålgruppen for dagbok er pasienter som behandles med respirator over lengre tid.…”

Section: Tidkrevende å Skriveunclassified

Skriver dagbok til respirator=pasienter

Fålun¹,

Oterhals²,

Holm³

et al. 2017

Sykepleien

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Use and practice of patient diaries in Swedish intensive care units: a national survey

Cited by 68 publications

References 16 publications

Intensive care diaries to promote recovery for patients and families after critical illness: A Cochrane Systematic Review

Intensive care diaries to promote recovery for patients and families after critical illness: A Cochrane Systematic Review

The experiences of patients and their families of visiting whilst in an intensive care unit – A hermeneutic interview study

Skriver dagbok til respirator=pasienter

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