Use of communication technologies by people with type 1 diabetes in the social networking era. A chance for improvement

Giménez-Pérez, Gabriel; Recasens, A; Simó, Olga; Aguas, Teresa; Suárez, A.; Vila, María Dolores Molina; Castells, Ignasi

doi:10.1016/j.pcd.2015.09.002

Cited by 27 publications

(20 citation statements)

References 23 publications

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“…Currently, the medical field shows an evolving trend in developing apps used as tools for behavior change therapy or lifestyle intervention, such as diabetes, weight loss, or exercise performance (8–10). But to date, only a few researchers like Volkova et al (11) use mobile apps as supporting tools in trials.…”

Section: Introductionmentioning

confidence: 99%

mHealth and Application Technology Supporting Clinical Trials: Today’s Limitations and Future Perspective of smartRCTs

2017

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Nowadays, applications (apps) for smartphones and tablets have become indispensable especially for young generations. The estimated number of mobile devices will exceed 2.16 billion in 2016. Over 2.2 million apps are available in the Google Play store®, and about 1.8 million apps are available in the Apple App Store®. Google and Apple distribute nearly 70,000 apps each in the category Health and Fitness, and about 33,000 and 46,000 each in medical apps. It seems like the willingness to use mHealth apps is high and the intention to share data for health research is existing. This leads to one conclusion: the time for app-accompanied clinical trials (smartRCTs) has come. In this perspective article, we would like to point out the stones put in the way while trying to implement apps in clinical research. Further, we try to offer a glimpse of what the future of smartRCT research may hold.

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Section: Introductionmentioning

confidence: 99%

mHealth and Application Technology Supporting Clinical Trials: Today’s Limitations and Future Perspective of smartRCTs

2017

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“…This appeared to be a useful strategy for engaging adolescents with T1DM, and the results evidently fulfilled an emotional as well as an information support function for participants. These findings might suggest a role for health care professionals in promoting the adoption of online communication for adolescents with a chronic condition such as T1DM in order to promote self‐management and well‐being …”

Section: Discussionmentioning

confidence: 99%

“…These themes have been previously reported by other studies as recurrent topics discussed in online interactions for individuals with T1DM. Firstly, people who suffer from chronic diseases, especially younger people, were generally described as willing to share their experiences with health‐care professionals through information technology tools . In addition, individuals affected by T1DM, often posted on Twitter about the disease, and were described as sharing tweets mainly regarding their personal experiences and recommendations .…”

Section: Discussionmentioning

confidence: 99%

“…Firstly, people who suffer from chronic diseases, especially younger people, were generally described as willing to share their experiences with health-care professionals through information technology tools. 27 In addition, individuals affected by T1DM, often posted on Twitter about the disease, and were described as sharing tweets mainly regarding their personal experiences and recommendations. 28 Social support and information were the two prominent aspects of messages posted by the adolescents in public web-based forums 12 as well as in an active Facebook diabetes groups where lifestyle information, peers personal experiences, emotions, opinions, and advice were frequently exchanged by members.…”

Section: Discussionmentioning

confidence: 99%

“…These findings might suggest a role for health care professionals in promoting the adoption of online communication for adolescents with a chronic condition such as T1DM in order to promote self-management and well-being. 17,18,27 In addition, the methodology used provided an opportunity to more deeply understand adolescents' needs and behaviors as revealed in the About Participants' categories, for example, expressing discomfort or speaking about oneself. Despite the fact that these chat line services did not attempt to treat psychopathology or provide clinical professional counseling, by analyzing posts some indicators of emotional problems were observed.…”

Section: And Cutrona Andmentioning

confidence: 99%

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Psychological support for adolescents with type 1 diabetes provided by adolescents with type 1 diabetes: The chat line experience

et al. 2019

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Background Age‐specific preventive interventions by exploiting age‐appropriate means are needed to effectively support adolescents with type 1 diabetes in facing illness and developmental‐related difficulties. The provision of social support through a content analysis of messages posted on online conversations was examined. Methods Participants and moderators' messages posted to an Italian online chat group for adolescents with type 1 diabetes were content analyzed using a social support behavior coding system. Results Of 250 adolescents approached (aged 12‐18), 161 (64.4%) agreed to participate. Seventeen thousand twenty‐five individual posts (10 735 written by participants, 6290 by moderators) from 37 chat sessions were examined. Topics concerned management of the disease, diabetes‐related problems, nutrition, and the emotional impact of diabetes. Social support was found in 30.64% of the messages (N = 5215). The frequency of supporting messages posted by participants was significantly higher than those written by moderators (X 2 = 20.025, P < .0001). Participants most frequently offered emotional (79.97%) and information support (16.21%), while moderators presented information (52.89%) and emotional support (34.56%). Conclusions How posting messages in an online group provides an opportunity for adolescents with type 1 diabetes to support each other and help health professionals to learn about the experiences of young individuals is discussed.

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What do we know about mobile applications for diabetes self-management? A review of reviews

et al. 2016

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Diabetes is a chronic illness with significant health consequences, especially for those who are unable to adhere to the complex treatment regimen. Self-management tasks such as regular medication and insulin use, frequent blood sugar checks, strict diet management, and consistent exercise can be quite challenging. Mobile technologies, specifically mobile applications (apps), present a unique opportunity to help patients improve adherence to these behaviors. The availability of commercial diabetes self-management apps is increasing rapidly, making it difficult for patients and providers to stay informed about app options. A number of reviews have described commercial app technology and use for patients with diabetes. The aims of this article are to summarize the results and themes of those reviews, to review outcomes of apps described in the research literature, and to identify areas for further consideration in the use of mobile apps for diabetes self-management.

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Use of communication technologies by people with type 1 diabetes in the social networking era. A chance for improvement

Cited by 27 publications

References 23 publications

mHealth and Application Technology Supporting Clinical Trials: Today’s Limitations and Future Perspective of smartRCTs

mHealth and Application Technology Supporting Clinical Trials: Today’s Limitations and Future Perspective of smartRCTs

Psychological support for adolescents with type 1 diabetes provided by adolescents with type 1 diabetes: The chat line experience

What do we know about mobile applications for diabetes self-management? A review of reviews

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