Objective
To develop a conceptual framework that captures aspects of health-related quality of life (HRQOL) for caregivers of individuals with military-related traumatic brain injury (TBI).
Design
Qualitative data from nine focus groups composed of caregivers of wounded warriors with a medically documented TBI were analyzed.
Setting
Focus group participants were recruited through Walter Reed National Military Medical Center (WRNMMC), community outreach and support groups.
Participants
45 caregivers of wounded warriors who had sustained a mild, moderate, severe, or penetrating TBI.
Results
Qualitative frequency analysis indicated that caregivers most frequently discussed social health (44% of comments), followed by emotional (40%) and physical health (12%). Areas of discussion that were specific to this population included: anger regarding barriers to health services (for caregivers and service members), emotional suppression (putting on a brave face for others, even when things are not going well), and hypervigilance (controlling one’s behavior/environment to prevent upsetting the service member).
Conclusion
Caring for wounded warriors with TBI is a complex experience that positively and negatively affects HRQOL. While some aspects of HRQOL can be evaluated with existing measures, evaluation of other important components does not exist. The development of military-specific measures would help facilitate better care for these individuals.