Purpose: Frailty has been characterized as a state of accelerated aging with increased vulnerability to adverse outcomes. The lived experience of individuals with CKD and frailty has yet to be examined. This study aims to understand frailty in the advanced chronic kidney disease (CKD) context and impact on decision-making. Methods: Participants with advanced CKD and Fried Frailty phenotype and their caregivers were invited to participate in in-depth interviews or focus group to gain a rich description of key informants' experiences of frailty. Interviews were recorded, transcribed and coded for meaningful concepts and analyzed using inductive thematic analysis using a constant comparative method of data analysis employing Social Cognitive Theory. Results: Two focus groups, six individual semi-structured interviews and three interviews were analyzed prior to saturation of themes. Experiences of frailty were described across four domains: the self, the body, the mind, and impact on relationships; yielding themes of: the normative influence of capacity, reliance on help (personal or equipment), the dynamic state of frailty, erosion of identity, unresolved symptom burden, non-routine recovery, contracted social sphere, the mind-body continuum, and proximity to death. Experiences of frailty were punctuated by falls, comorbidity, and prolonged hospitalizations. Conclusions: Frailty is a pejorative, personal, subjective experience defined by deterioration from a previous normative baseline and reliance on aids and caregivers. Patients and their caregivers strive to maintain the status quo, experiencing life "day by day," and "taking baby steps". The dynamic state of frailty needs to be considered in decision-making and future planning.