Usefulness of a home affluence scale administered to urban adolescents with asthma to estimate the family's socioeconomic status

Guglani, Lokesh; Booza, Jason; Havstad, Suzanne; Joseph, Christine L.M.

doi:10.1016/j.annepidem.2015.07.010

Cited by 6 publications

(3 citation statements)

References 24 publications

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“…Parental incomes however, were not available as a traditional measure of socioeconomic status so school meal status was used as a proxy. 27 The higher percentage of children with CHD paying full-price for lunch compared with the general state student population likely indicates that the socioeconomic status of children with CHD was greater than the state mean. Perhaps more children with CHD attend public schools due to the availability of special education services that may not be available in other educational settings.…”

Section: Discussionmentioning

confidence: 99%

“…The annual benchmark examination includes separate literacy and mathematics scores grouped into 4 levels: advanced, proficient, basic, or below basic. As a proxy for socioeconomic status, 27 the ADE provided meal status desingating whether or not the student received free or reduced-cost meals (i.e., low socioeconomic status), or paid full-price for lunch (ie, high socioeconomic status).…”

Section: Methodsmentioning

confidence: 99%

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School-Age Test Proficiency and Special Education After Congenital Heart Disease Surgery in Infancy

Mulkey

Bai

Luo

et al. 2016

The Journal of Pediatrics

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Objective To evaluate test proficiency and the receipt of special education services in school-age children who had surgery for congenital heart disease (CHD) <1 year of age. Study design Data from Arkansas-born children who had CHD surgery at Arkansas Children's Hospital at <1 year of age from 1996–2004 were linked to state birth certificates and the Arkansas Department of Education longitudinal database containing achievement test scores in literacy and mathematics for grades 3-4 and special education codes. The primary negative outcome was not achieving grade-level proficiency on achievement tests. Logistic regression accounting for repeated measures associated achieving proficiency with demographics, maternal education, and clinical factors. Results 362 of 458 (79%) children who received surgery for CHD matched to the ADE database; 285 had grade 3 and/or 4 achievement tests scores. Fewer students with CHD achieved proficiency in literacy and mathematics (P < .05) compared with grade-matched state students. Higher 5-minute Apgar score, shorter hospitalization, and higher maternal education predicted proficiency in literacy (P < .05). White race, no cardiopulmonary bypass, and shorter hospitalization predicted proficiency in mathematics (P < .05). Sex, gestational age, age at surgery, CHD diagnosis, and type and number of surgeries did not predict test proficiency. Compared with all public school students, more children with CHD received special education services (26.9% vs 11.6%, P < .001). Conclusion Children with CHD had poorer academic achievement and were more likely to receive special education services than all state students. Results from this study support the need for neurodevelopmental evaluations as standard in children with CHD.

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Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

School-Age Test Proficiency and Special Education After Congenital Heart Disease Surgery in Infancy

Mulkey

Bai

Luo

et al. 2016

The Journal of Pediatrics

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“…Demographic / clinical characteristics included age of the person with DMD, gender, race/ethnicity, state of residence, education level of the patient and their mother. Family socioeconomic status was captured by whether the family had a computer at home, a car or van at home, the option of a free lunch at school, and whether they owned or rented their home [ 32 ]. Clinical characteristics included use of steroids for DMD and participation in DMD clinical trials.…”

Section: Methodsmentioning

confidence: 99%

Toward patient-centered treatment goals for duchenne muscular dystrophy: insights from the “Your Voice” study

Schwartz

Jackson²,

Valentine

et al. 2023

Orphanet J Rare Dis

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Background Patient-centered research has emerged as critically important for understanding the impact of treatments on key stakeholders. The subjective experience of quality of life (QOL) is increasingly recognized as fundamental to delineating treatment goals. The present study utilized content analysis of qualitative data and quantitative analysis to highlight important domains of disease burden and underlying reasons for their importance, and to characterize goals for new treatments for Duchenne Muscular Dystrophy (DMD). Results The study sample reflected the perspectives of DMD patients and caregivers representing ambulatory, transitional, and non-ambulatory stages of disability progression (n = 20 per category). Open-ended interviews were content-analyzed and non-parametric statistical tests were used to compare ambulation groups. As patients progressed in disability, the noted DMD burdens reflected some differences in functional areas. While daily functioning and sports/recreation remained the most important priority areas across ambulation groups, “health” became less prominent as the disability progressed from ambulatory to transitional to non-ambulatory phases of disability; whereas relationships became more prominent as one progressed to the non-ambulatory phase from the ambulatory or transitional phases (Kruskall Wallis H = 12.24 and 5.28, p = 0.002 and 0.02, respectively). When asked why their burdens were important to them and how it impacted their or their child’s life, self-esteem/confidence was most important for ambulatory patients, and became less prominent for patients in the transitional and non-ambulatory phases of disability (Kruskall Wallis H = 9.46, p = 0.009). In contrast, independence was less important for ambulatory patients, and became increasing prominent for patients in the transitional and non-ambulatory phases of disability (Kruskall Wallis H = 7.35, p = 0.025). Emotional functioning was most prominent for all ambulation groups on their best and worst days. Goals for new DMD treatments focused on functional goals, general QOL goals, and concerns about safety, ease of use, and effectiveness. Conclusion This study provides useful information about treatment goals for DMD from the perspective of patients and their caregivers. It highlights some consistent values across the disability trajectory, as well as introducing an evolution of priorities as the person with DMD becomes more disabled. Results provide a roadmap for patient-centered DMD drug development.

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School-based self-management interventions for asthma in children and adolescents: a mixed methods systematic review

Harris

Kneale

Lasserson

et al. 2019

Cochrane Database of Systematic Reviews

109

107

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Usefulness of a home affluence scale administered to urban adolescents with asthma to estimate the family's socioeconomic status

Cited by 6 publications

References 24 publications

School-Age Test Proficiency and Special Education After Congenital Heart Disease Surgery in Infancy

School-Age Test Proficiency and Special Education After Congenital Heart Disease Surgery in Infancy

Toward patient-centered treatment goals for duchenne muscular dystrophy: insights from the “Your Voice” study

School-based self-management interventions for asthma in children and adolescents: a mixed methods systematic review

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