User‐driven health care: answering multidimensional information needs in individual patients utilizing post–EBM approaches: an operational model

Abstract

The hypothesis in the conceptual model was that a user-driven innovation in presently available information and communication technology infrastructure would be able to meet patient and health professional users information needs and help them attain better health outcomes. An operational model was created to plan a trial on a sample diabetic population utilizing a randomized control trial design, assigning one randomly selected group of diabetics to receive electronic information intervention and analyse if it would improve their health outcomes in comparison with a matched diabetic population who would only receive regular medical intervention. Diabetes was chosen for this particular trial, as it is a major chronic illness in Malaysia as elsewhere in the world. It is in essence a position paper for how the study concept should be organized to stimulate wider discussion prior to beginning the study.

A Review of User-Centered Design for Diabetes-Related Consumer Health Informatics Technologies

“…Table 3 illustrates that UCD has been used to assess functionality related to nutrition, exercise, lifestyle and education, blood glucose level, and medication management. Some CHITs have included functionality that supports electronic communication between diabetes patients and providers 21,31,38,40 and/or other diabetes patients , 40 to assist one of more of the areas of self-management.…”

“…The post-release phase method (stage 6) was used in eight studies, 21,27,30,31,33,34,39,42 with pilot testing deployed in six of these studies (see 6.1 in Table 1). …”

“…Other studies have included a personal care giver as well as providers as participants. 31,32,36 This implies some appreciation that self-management is not a solo activity but part of a continuum of care that includes clinicians and patient support systems. User-centered design studies should recognize the continuum of care and support needed to self-manage this disease and thus access secondary users and other supporting "players" in the UCD process.…”

Health assets: A concept analysis

“…It is acknowledged that personal experiences, preferences, and values need to be integrated and supported to optimize health decisions in the clinical encounter 7 . Furthermore, it is argued that health and nursing care needs support systems that are more robust, enabling nurses to recognize patients' experiences and knowledge, to document these and provide more person-centered care 8,9 .…”

time for person centered research in neuroscience: users driving the change

“…This can take place through user driven health care where the patient is at the center of the intervention. 17 In this arena the possible research questions or interventions are discussed with the patient, participant, medical providers, researchers and other stakeholders and they brain storm best solutions together. 18 A user-driven approach, additionally, has the benefit of not only crowd-sourcing the problems or community-needs, but also of obtaining solutions to complex clinical scenarios within a resource-constrained setting.…”