User involvement in Slovenian healthcare

Abstract

No systematic qualitative research of patient involvement in Slovenia has previously been published. This research will establish a basis for further investigations of the topic.

Conceptual frameworks and degrees of patient engagement in the planning and designing of health services: A scoping review of qualitative studies

“…Among the 18 studies, seven (38.9%) were conducted in the United Kingdom, [41][42][43][44][45][46][47] five (27.8%) in Canada, [48][49][50][51][52] two (11.1%) in the Netherlands, 53-54 two (11.1%) in Australia, [55][56] one (5.6%) in Norway, 57 and one (5.6%) in Slovenia. 58 Study Setting. The studies were conducted in a variety of health settings.…”

“…54 Moreover, one study (5.6%) was conducted in a primary care setting only, 45 and two (11.1%) were conducted in both primary care and hospital settings. 44,58 Nine studies (50.0%) were conducted in specialized treatment health facilities for HIV/AIDS (3 studies; 16.7%), [46][47][48] mental health (3 studies; 16.7%), 43,55,57 drug treatment (2; 11.1%), 47,56 and stroke (1; 5.6%). 42 One study (5.6%) did not report a study setting, 53 one (5.6%) was conducted in homeless shelters, 52 and one (5.6%) was conducted within the Board of Directors of different health service organizations.…”

“…An equal number of studies reported multiple (9; 50.0%), [42][43][44][45][46][47]52,54,57 and single data collection methods (9; 50.0%). 41,[48][49][50][51]53,[55][56]58 Among the studies that used multiple methods, all used variations of semi-structured and/or in-depth interviews. [42][43][44][45][46][47]52,54,57 Seven (77.7% of 9) used focus groups, 43-47,52,57 three (33.3% of 9) used participant observation, 42,54,57 and three (33.3% of 9) used document analysis.…”

“…49 Of the eight studies that involved a single participant group, all included patients only. [44][45]48,[50][51][54][55]58 Across all studies that reported their participant groups, there were 504 patients of which 53 were patient ambassadors, representatives of patient organizations, or served in a dual role as both a patient and service provider. These studies also included the perspectives and experiences of 173 healthcare professionals.…”

“…10 (55.6%) reported some form of meaningful PE. 42,44,48,[50][51][52][54][55][57][58] These studies used the following terms to describe engagement that is meaningful: partnership; 44,50,57-58 collaboration; 57 cooperation; 58 meaningful involvement or engagement; 48,50-53 active involvement; 42,50 consumer leadership; 55 and co-production. 54 Seven of the total 18 studies (38.9%) did not explicitly identify with a particular degree of PE or explored all degrees of PE broadly.…”