User satisfaction with services in a randomised controlled trial of adolescent anorexia nervosa

Abstract

Background: User satisfaction is a neglected outcome in adolescent anorexia nervosa especially since the relative effectiveness of different treatments is unclear. It may also affect clinical outcome. Aims: To assess young person's and parents' satisfaction with CAMHS outpatient, specialist outpatient and inpatient treatment received in a large randomised controlled trial. Method: Quantitative and qualitative analysis of questionnaire data from 215 young people and their parents followed by focus groups to further explore emerging themes. Results: High levels of satisfaction were reported, more amongst parents than young people and with specialist services. Both young people and carers strongly valued clinical relationships that involved being listened to and understood. They valued the expertise of specialist rather than generic CAMHS services. There were polarised views on the influence of other young people in inpatient units. Parents in particular valued support for themselves, both from professionals and other parents and felt this, and sibling support was lacking. Conclusions: All comprehensive CAMH services are able to provide the good generic psychotherapeutic skills that parents and young people value so highly. However, generic CAMHS struggle to provide the demanded level of expertise and more specialised individual and family therapeutic interventions.

What are the top five essential features of a high quality eating disorder service? A comparison of the views of US and UK eating disorder sufferers, carers and health professionals.

“…This factor has long been recognised as important in psychotherapy research as a variable explaining a large proportion of the outcome variance (Messer & Wampold, 2002). These findings agree with those of previous qualitative studies which identified that ED sufferers value empathy and understanding in clinical encounters (De la Rie et al, 2008; Roots, Rowlands, & Gowers, 2009; for review see Bell, 2003). Personal qualities of staff did not make it into the overall ‘top five’ quality criteria among US carers and professionals, but in both these groups a sizeable proportion of participants (US carers: 17.9%; US professionals 18.6%) mentioned this category as important.…”

Effective nursing care of adolescents with anorexia nervosa: a consumer perspective

“…, Roots et al . ). Whilst therapeutic alliance is not a specific therapy in itself, therapeutic alliance accounts for improved consumer outcomes in mental health care (Howgego et al .…”

Experienced Carers Helping Others (ECHO): Protocol for a Pilot Randomised Controlled Trial to Examine a Psycho‐educational Intervention for Adolescents with Anorexia Nervosa and Their Carers

“…Three subscales measure perceived criticism, perceived emotional involvement and perceived warmth. The scale is completed separately for each participating carer (baseline, 6 months). The Treatment Satisfaction Questionnaire (Roots, Rowlands, & Gowers, ) is an established instrument rating prior expectation of, and motivation to participate in, treatment they have received (randomised or not) on a Likert scale. The measure includes an area for free expression about any aspect of the services they have received (baseline, 6 months). The Client Service Receipt Inventory (CSRI) is a well‐established interview method of data collection, linked to cost analysis (Beecham & Knapp, ).…”