Using an Electronic Self‐Management Tool to Support Patients with Chronic Kidney Disease (CKD): A CKD Clinic Self‐Care Model

Abstract

New healthcare delivery models are needed to enhance the patient experience and improve quality of care for individuals with chronic conditions such as kidney disease. One potential avenue is to implement self-management strategies. There is growing evidence that self-management interventions help optimize various aspects of chronic disease management. With the increasing use of information technology (IT) in health care, chronic disease management programs are incorporating IT solutions to support patient self-management practices. IT solutions have the ability to promote key principles of self-management, namely education, empowerment, and collaboration. Positive clinical outcomes have been demonstrated for a number of chronic conditions when IT solutions were incorporated into self-management programs. There is a paucity of evidence for self-management in chronic kidney disease (CKD) patients. Furthermore, IT strategies have not been tested in this patient population to the same extent as other chronic conditions (e.g., diabetes, hypertension). Therefore, it is currently unknown if IT strategies will promote self-management behaviors and lead to improvements in overall patient care. We designed and developed an IT solution called My KidneyCare Centre to support self-management strategies for patients with CKD. In this review, we discuss the rationale and vision of incorporating an electronic self-management tool to support the care of patients with CKD.

Remote Usability Testing and Satisfaction with a Mobile Health Medication Inquiry System in CKD

“…This shift in focus has resulted in a growing emphasis on patient engagement and the incorporation of digital solutions to support patient self-management practices (15,16). Individuals with CKD, often characterized by low disease awareness, limited health literacy, and frequent interactions with the health care system (17,18), are at high risk of adverse safety events related to their care, such as drug-related problems.…”

Self-Management Program for People with Chronic Kidney Disease in Vietnam: A Pragmatic Randomised Controlled Trial

“…Chronic kidney disease self-management has a substantial number of daily tasks that a person needs to perform to manage the impact of the disease and to slow its progression (Curtin, Mapes, & Thomas-Hawkins, 2001;Lin, Wu, Wu, Chen, & Chang, 2012;Ong, Jassal, Porter, Logan, & Miller, 2013). The following sections review the previously described skills in the context of the CKD self-management.…”

“…In addition, Lin et al (2012) and Ong et al (2013) have indicated other components also needed in self-management in people with CKD. Lin et al (2012) used Lorig and Holman (2003) components of self-integration, problem solving, social support, and taking action.…”

“…Lin et al (2012) used Lorig and Holman (2003) components of self-integration, problem solving, social support, and taking action. Ong et al (2013) described the components as food management, BP management, blood results management, and medication management. Ong et al (2013) is in fact describing what daily activities need to be done, and these have already been examined above.…”

“…Ong et al (2013) described the components as food management, BP management, blood results management, and medication management. Ong et al (2013) is in fact describing what daily activities need to be done, and these have already been examined above.…”