Using Communication Assistants in Qualitative Health Research

Dee-Price, Betty Jean M.

doi:10.1177/10497323231169495

Cited by 3 publications

(1 citation statement)

References 71 publications

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“…Enlisting support from parents, allied health professionals, or technology-enabled assistive devices provided participants with equal opportunity to formulate responses to our questions in familiar environments, using their first language and/or interpretive services, all without having to disclose such needs to the researchers [27]. Offering these accommodations is not only reflective of the researchers' deep commitment to inclusivity and equity but is also required by professional ethical standards and federal law [28].…”

Section: Data Collectionmentioning

confidence: 99%

“It’s Bad Enough I’m Black…But Disabled Too?!”: A Qualitative Exploration of After-COVID-19 Experiences for Black College Men Living with Disabilities

Strayhorn,

Johnson

2023

Youth

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The purpose of this qualitative study was to examine the experiences of Black college men living with disabilities, namely ADHD and/or depression, as defined by DSM-5. Using naturalistic methods and a semi-structured interview protocol, we focused on understanding their experiences during the Great Pandemic (COVID-19) and the implications for campus support services in a post-COVID-19 era. The key implications for future research, policy, and practice are highlighted.

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Section: Data Collectionmentioning

confidence: 99%

“It’s Bad Enough I’m Black…But Disabled Too?!”: A Qualitative Exploration of After-COVID-19 Experiences for Black College Men Living with Disabilities

Strayhorn,

Johnson

2023

Youth

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Including People Who Use Augmentative and Alternative Communication in Qualitative Research: Can You Hear Us?

Walsh,

Harman,

Manning

et al. 2024

International Journal of Qualitative Methods

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People who use augmentative and alternative communication (AAC) are frequently excluded from research, yet their voices can significantly enhance the applicability, acceptability, and translation of qualitative research findings. Accessible and adapted research methods welcome and empower participants who use AAC, and enable meaningful involvement. In this article, we describe the collaborative development of a framework to conceptualise inclusive research and aspects of an accompanying inclusive research toolkit. The framework identifies balancing power as a critical factor, primarily achieved by ensuring that research methods and materials are accessible to people who use AAC. We propose that this is achieved through three interacting elements: collaboration with AAC users, skills and knowledge to achieve accessibility, and ensuring adequate time is available to achieve involvement. We identify five areas where applying these elements has impact for AAC users: recruiting AAC users, working with communication supporters, adapting research methods, securing ethics approval, and consent. In presenting the framework, we demonstrate how qualitative researchers can foster a research environment that values and actively includes AAC users, ultimately advancing the field towards more comprehensive and inclusive research practices. While our work is situated in the cerebral palsy and AAC communities, our proposed framework and toolkit can be applied by researchers seeking perspectives from individuals with communication disabilities more broadly. We have created a corresponding plain language video of this article as an additional means of optimising accessibility of the content. See supplemental material .

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In Pursuit of Ethical and Inclusive Research: What Ethics Committees and Disability Researchers Can Learn From Each Other

Walsh,

Stead,

Sawyer

et al. 2024

International Journal of Qualitative Methods

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Across disciplines, qualitative researchers have documented epistemological and practical tensions in the ethical review of community-based and participatory research, with many arguing that ethics committees’ decisions perpetuate the exclusion of marginalised communities from research engagement. In the existing literature, the research team and the ethics committee are often characterised as staunch opponents. Conversely, in our recent qualitative research addressing communication about sexuality with young people with cerebral palsy who use communication methods other than speech (augmentative and alternative communication), we found that constructive collaboration between researchers and committee members yielded novel insights. Co-authored by a multi-disciplinary research team and the former chair of a Human Research Ethics Committee, this reflexive case study identified three key tensions which arose in the ethical review of research involving this purportedly marginalised population, which reflected the wider importance of trust. We propose a series of practical recommendations to support productive collaboration in the pursuit of safe, inclusive and community-driven research.

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Using Communication Assistants in Qualitative Health Research

Cited by 3 publications

References 71 publications

“It’s Bad Enough I’m Black…But Disabled Too?!”: A Qualitative Exploration of After-COVID-19 Experiences for Black College Men Living with Disabilities

“It’s Bad Enough I’m Black…But Disabled Too?!”: A Qualitative Exploration of After-COVID-19 Experiences for Black College Men Living with Disabilities

Including People Who Use Augmentative and Alternative Communication in Qualitative Research: Can You Hear Us?

In Pursuit of Ethical and Inclusive Research: What Ethics Committees and Disability Researchers Can Learn From Each Other

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