Using Community Engagement to Develop a Web-Based Intervention for Latinos about the HPV Vaccine

Maertens, Julie; Jimenez-Zambrano, Andrea; Albright, Karen

doi:10.1080/10810730.2016.1275890

Cited by 30 publications

(22 citation statements)

References 61 publications

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“…The majority of parents (83.3%) participating in this study reported having heard of the HPV vaccine from their child's physician. This important finding adds to research evidence that indicates the central role physician's play in increasing parents' awareness of the HPV vaccine, and ultimately in influencing the uptake of the HPV vaccine for their adolescent children [52][53][54]. Nonetheless, in agreement with prior studies conducted among Latino parents [21,26,28,29] and other racial/ethnic minorities [18,[38][39][40][41], findings of the present study also determined that fewer fathers reported hearing about the HPV vaccine from their child's physician than mothers.…”

Section: Discussionsupporting

confidence: 89%

Central American Immigrant Parents’ Awareness, Acceptability, and Willingness to Vaccinate Their Adolescent Children Against Human Papillomavirus: A Pilot Cross-Sectional Study

Lindsay

Pineda

Valdez

et al. 2020

IJERPH

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Despite increasing interest in understanding the factors influencing awareness and acceptability of the human papillomavirus (HPV) vaccine among Latino parents, to date limited information is available specific to Central American parents living in the United States (US). Therefore, this pilot cross-sectional study was designed to explore and assess Central American immigrant parents’ awareness, acceptability, and willingness to vaccinate their children against HPV, and interest in participating in future HPV-associated cancer prevention study. Fifty-six Central American parents, majority immigrant (96.4%; n = 54) from four countries, El Salvador—50% (n = 27); Guatemala—25.9% (n = 14); Honduras—22.2% (n = 12); and Panama—1.9% (n = 1) participated in this study. Participants completed an interviewer-administered questionnaire survey in their preferred language (i.e., Spanish or English). A little over half of the participants were mothers (57.1%; n = 32) and parents’ mean age was 43.2 years (SD = 6.4). The majority was married or cohabitating (76.8%, n = 43), and 39.3% (n = 22) reported having two children. Seventy-five percent (n = 42) of parents reported they had heard of the HPV vaccine. Fewer fathers were aware of the HPV vaccine (58.3%; n = 14 vs.87.5%, n = 28; p = 0.01) than mothers. Among parents who had heard of the HPV vaccine (n = 42), 85.7% (n = 36) reported their children had received at least one dose of the HPV vaccine. Fewer fathers reported their child had been vaccinated against HPV (64.3%, n = 9 vs. 96.4%, n = 27; p = 0.06) than mothers. Moreover, 90% of parents (n = 18) whose children were unvaccinated reported willingness to vaccinate their adolescent children against HPV if recommended by their child’s physician. Findings indicate parents’ low to moderate awareness of the HPV vaccine, and high willingness to vaccinate their adolescent children if recommended by their child’s physician. Findings also demonstrate fathers’ lower awareness and acceptability of the HPV vaccine than mothers. Despite limitations and the need for more research, findings of this pilot study serve as a valuable first step toward building a knowledge foundation that is needed for developing future studies and interventions targeting Central American immigrant parents living in the US. Future studies can build on the findings of this exploratory study with other research designs and address its limitations by having a larger sample size and accounting for additional factors associated with Central American immigrant parents’ HPV awareness, knowledge, beliefs, attitudes, and vaccine acceptability from other communities across the US.

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Section: Discussionsupporting

confidence: 89%

Central American Immigrant Parents’ Awareness, Acceptability, and Willingness to Vaccinate Their Adolescent Children Against Human Papillomavirus: A Pilot Cross-Sectional Study

Lindsay

Pineda

Valdez

et al. 2020

IJERPH

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“…80,81 Researchers have worked with communities to design web-based interventions and social media tools to address parental concerns about early childhood and adolescent vaccines. 82,83 Some studies have shown success in the use of text messaging, web-based patient portals, and online promotion of immunization campaigns; however, there is still a paucity of evidence on use of social media. 84 Online media may prove useful both for communication about vaccines and in monitoring hesitancy.…”

Section: Electronic Interventionsmentioning

confidence: 99%

Vaccine Hesitancy: Where We Are and Where We Are Going

McClure

Cataldi

O’Leary

2017

Clinical Therapeutics

205

166

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At the community level, evidence-based communication strategies to address vaccine hesitancy are needed. The practice of dismissing families from pediatric practices who refuse to vaccinate is common, although widely criticized. Other controversial and rapidly evolving topics include statewide vaccination mandates and school exemption policies. Electronic interventions, such as text-messaging services and social media, have recently emerged as effective methods of communication and may become more important in coming years.

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“…Traditional methods for determining program requirements have usually involved focus groups or interviews [15]. The end user becomes a consultant who responds to the researcher’s predefined questions [13].…”

Section: Introductionmentioning

confidence: 99%

Health TAPESTRY: co-designing interprofessional primary care programs for older adults using the persona-scenario method

et al. 2019

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Background Working with patients and health care providers to co-design health interventions is gaining global prominence. While co-design of interventions is important for all patients, it is particularly important for older adults who often experience multiple and complex chronic conditions. Persona-scenarios have been used by designers of technology applications. The purpose of this paper is to explore how a modified approach to the persona-scenario method was used to co-design a complex primary health care intervention (Health TAPESTRY) by and for older adults and providers and the value added of this approach. Methods The persona-scenario method involved patient and clinician participants from two academically-linked primary care practices. Local prospective volunteers and community service providers (e.g., home care services, support services) were also recruited. Persona-scenario workshops were facilitated by researchers experienced in qualitative methods. Working mostly in homogenous pairs, participants created a fictitious but authentic persona that represented people like themselves. Core components of the Health TAPESTRY intervention were described. Then, participants created a story (scenario) involving their persona and an aspect of the proposed Health TAPESTRY program (e.g., volunteer roles). Two stages of analysis involved descriptive identification of themes, followed by an interpretive phase to extract possible actions and products related to ideas in each theme. Results Fourteen persona-scenario workshops were held involving patients ( n = 15), healthcare providers/community care providers ( n = 29), community service providers ( n = 12), and volunteers ( n = 14). Fifty themes emerged under four Health TAPESTRY components and a fifth category - patient. Eight cross cutting themes highlighted areas integral to the intervention. In total, 414 actions were identified and 406 products were extracted under the themes, of which 44.8% of the products ( n = 182) were novel. The remaining 224 had been considered by the research team. Conclusions The persona-scenario method drew out feasible novel ideas from stakeholders, which expanded on the research team’s original ideas and highlighted interactions among components and stakeholder groups. Many ideas were integrated into the Health TAPESTRY program’s design and implementation. Persona-scenario method added significant value worthy of the added time it required. This method presents a promising alternative to active engagement of multiple stakeholders in the co-design of complex interventions. Electronic supplementary material The online version of this article (10.1186/s12875-019-1013-9) contains supplementary material, which is available to authorized users.

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Using Community Engagement to Develop a Web-Based Intervention for Latinos about the HPV Vaccine

Cited by 30 publications

References 61 publications

Central American Immigrant Parents’ Awareness, Acceptability, and Willingness to Vaccinate Their Adolescent Children Against Human Papillomavirus: A Pilot Cross-Sectional Study

Central American Immigrant Parents’ Awareness, Acceptability, and Willingness to Vaccinate Their Adolescent Children Against Human Papillomavirus: A Pilot Cross-Sectional Study

Vaccine Hesitancy: Where We Are and Where We Are Going

Health TAPESTRY: co-designing interprofessional primary care programs for older adults using the persona-scenario method

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