Using Exploratory Focus Groups to Inform the Development of a Peer-Supported Pulmonary Rehabilitation Program

Poureslami, Iraj; Camp, Pat G.; Shum, Jessica; Afshar, Rowshanak; Tang, Tricia S.; FitzGerald, J. Mark

doi:10.1097/hcr.0000000000000213

Cited by 7 publications

(15 citation statements)

References 26 publications

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“…Emotional support was seen as important by people with asthma and COPD. 35,44,45 They appreciated HCPs enquiring about their psychological wellbeing. 34,42 Participants were motivated to continue with behaviour changes when they believed that HCPs acknowledged their attempts to change and commented on their progress.…”

Section: Types Of Supportmentioning

confidence: 99%

“…34,42 Participants were motivated to continue with behaviour changes when they believed that HCPs acknowledged their attempts to change and commented on their progress. 33,41,44,45 In a study by Langer et al, one participant noted of their local healthcare worker 'I felt she was investing in me . .…”

Section: Types Of Supportmentioning

confidence: 99%

“…38 With regard to patient education or monitoring programmes, participants were often reluctant to see the programmes end and they expressed a preference for some form of maintenance or follow-up as a continuity for patient education and support. 34,39,45 Accessibility Prompt, physically accessible support. Accessibility frequently arose in the data with reference to timely access to services as well as physical accessibility.…”

Section: Types Of Supportmentioning

confidence: 99%

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Self-management support preferences of people with asthma or chronic obstructive pulmonary disease: A systematic review and meta-synthesis of qualitative studies

2019

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Objectives To synthesise findings from qualitative studies on the preferences of people with asthma or chronic obstructive pulmonary disease (COPD) for self-management support. Methods A thematic synthesis of literature was carried out. Six databases (ASSIA, CINAHL, MEDLINE, PsycINFO, Psychology and the Behavioural Sciences and SSCI) were used to search for qualitative studies eliciting perspectives of adults with asthma and/or COPD on self-management support, published between May 2008 and April 2018. Results A total of 968 articles were retrieved across databases, with 15 articles included in the synthesis. Three themes were identified: Types of Support described the range of supports valued by participants in the studies, particularly education provided by competent healthcare professionals; The Support Relationship highlighted the importance of a collaborative relationship with one’s healthcare professional which was characterised by communication, trust and continuity over time and Accessibility identified the considerations of participants relating to physically accessible, prompt support which is provided in a format preferred by the individual. Discussion Increased understanding of patients’ preferences may provide insight which can be used to enhance engagement with self-management support. Further research needs to examine self-management support preferences outside the context of evaluating interventions for people with asthma/COPD and needs to address the optimal means of enhancing accessibility.

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Section: Types Of Supportmentioning

confidence: 99%

Section: Types Of Supportmentioning

confidence: 99%

Section: Types Of Supportmentioning

confidence: 99%

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Self-management support preferences of people with asthma or chronic obstructive pulmonary disease: A systematic review and meta-synthesis of qualitative studies

2019

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“…Although there often seemed to be consensus among patients and HCPs in identifying factors that affect HL, some patients referred to factors not mentioned by HCPs and vice versa, which is something that has also been reported by others (Poureslami et al, 2017a;Sadeghi et al, 2013). Three factors that were identically identified by both patient and HCP groups seemed especially important because these were mentioned in relation to multiple HL domains: (1) the need for adequate time during medical consultations, (2) the impact of language and/or cultural differences on HL and disease management, and (3) provision of consistent health messages by HCPs.…”

Section: Discussionmentioning

confidence: 70%

“…A final practical recommendation to enhance HL and selfmanagement is for health care organizations to offer multiple sessions of supervised peer-to-peer educational programs (Monninkhof et al, 2004;Poureslami et al, 2017a). Ideally, family members or other informal caregivers should be involved in the patient education and empowerment process as well, so as to foster the patient's implementation of the given information and gained knowledge in daily life (Ingadottir & Jonsdottir, 2010).…”

Section: Discussionmentioning

confidence: 99%

Factors Affecting Health Literacy as Related to Asthma and COPD Management: Learning from Patient and Health Care Professional Viewpoints

Poureslami¹,

Shum²,

Goldstein³

et al. 2021

HLRP: Health Literacy Research and Practice

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Background: Studies have identified health literacy (HL) as an important determinant of asthma and chronic obstructive pulmonary disease (COPD) management. There are, however, limited data on patients' and health care professionals (HCPs') insights about the link between HL and management of asthma and COPD. Objective: The aim of this study was to elicit patients' and HCPs' perspectives with respect to factors affecting HL in the context of asthma and COPD management. Methods: A total of 16 semi-structured focus groups (10 in English and 6 in French) with patients with asthma or COPD (n = 93) and 45 interviews with HCPs, researchers, and policymakers were conducted between June 2015 and April 2017. Participants were asked to share their perspectives with respect to five predefined HL domains-accessing, understanding, evaluating, communicating, and using health-related information-in relation to disease self-management practices. Data were analyzed qualitatively, using a content analysis approach. Key Results: Most patients and HCPs reflected on factors hampering HL in relation to asthma and COPD management. Thoughts such as "not having enough time during medical consultations, " "not receiving consistent messages from different health care professionals, " and "language or cultural differences" were frequently mentioned by both patients and HCPs. Conclusions: We identified multiple factors affecting communication between patients and HCPs as it relates to the self-management of their disease. These included inconsistent messages from different providers, limited consultation time, use of technical language, failure to account for cultural differences, and reduced health literacy, especially as it related to written communication. Future interventions that aim to enhance HL skills in the context of asthma and COPD self-management should consider these issues. [HLRP: Health Literacy Research and Practice. 2021;5(3):e179-e193.]Plain Language Summary: The current study advances the health literacy (HL) knowledge base by adding patients' and health care professionals' valuable insights on factors that hamper or facilitate HL in relation to asthma and chronic obstructive pulmonary disease (COPD) management. An important insight from this study is that receiving conflicting information from different health care professional's hampers HL in patients with asthma and/or COPD. METHODS Research Team and ReflexivityA project manager (I.P.) and a research coordinator (J.S.) conducted the focus groups and interviews. Both are trained and experienced researchers in the field of HL and diversity as well as in qualitative research methods. The researchers did not know the study participants beforehand. The participants received basic background information on the researchers and on the purpose of the study.

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From fear to control: Older adults’ thoughts and feelings about empowerment-oriented rehabilitation after a hip fracture

Tobiesen Pedersen,

Ipsen,

Egebæk

et al. 2024

International Journal of Orthopaedic and Trauma Nursing

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Using Exploratory Focus Groups to Inform the Development of a Peer-Supported Pulmonary Rehabilitation Program

Cited by 7 publications

References 26 publications

Self-management support preferences of people with asthma or chronic obstructive pulmonary disease: A systematic review and meta-synthesis of qualitative studies

Self-management support preferences of people with asthma or chronic obstructive pulmonary disease: A systematic review and meta-synthesis of qualitative studies

Factors Affecting Health Literacy as Related to Asthma and COPD Management: Learning from Patient and Health Care Professional Viewpoints

From fear to control: Older adults’ thoughts and feelings about empowerment-oriented rehabilitation after a hip fracture

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