Using family and staff experiences of a botulinum toxin‐<scp>A</scp> service to improve service quality

Burton, Karen; Bau, Karen; Lewis, Jenny; Aroyan, K. R.; Botha, Bennie; Botman, A. G. M.; Stewart, Kelly; Waugh, Mary‐Clare; Paget, Simon P

doi:10.1111/cch.12500

Cited by 2 publications

(5 citation statements)

References 14 publications

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“…46 A communication approach which acknowledges the patients personal journey, their individual personality, preferences, current abilities and ongoing need for support, is recommended to support individualised care and the patient's sense of autonomy and control with their healthcare journey. 10 47 48 Studies in paediatrics, 49 adult diabetes, 16 internal medicine and primary care 50 have also reported similar results in relation to consumer preferences on individualised engagement and a neutral communication style. 51 52 In our organisation, mandatory training is provided to all staff to ensure meaningful interactions and professional communication styles.…”

Section: Results Caring Together Framework For Pfccmentioning

confidence: 81%

Framework for patient, family-centred care within an Australian Community Hospital: development and description

et al. 2020

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ObjectiveTo describe the development of a patient and family-centred care (PFCC) conceptual framework within a small community Australian Hospital.MethodsA scoping review of scientific and grey literature and community hospital stakeholder discussions were used to identify and design a conceptual framework for PFCC across five core pillars of leadership, engagement, service delivery, learning and environment.Results107 publications were identified and 76 were included for data extraction. A draft framework was constructed and modified following consultation with hospital stakeholders across a small Australian Community Hospital. The ‘Caring Together’ framework outlines three core layers: (1) the focus of our care is the experiences of our consumers and staff; (2) concepts of leadership, environment, service delivery, engagement and learning; and (3) the overarching fundamental values of being heard, respected, valued and supported by staff and consumers at all levels in an organisation.ConclusionsThe conceptual Caring Together framework structures key PFCC concepts across organisational priority areas within an Australian healthcare setting and can be used to guide implementation of PFCC at other small hospital facilities. Changes to national and state healthcare funding may help facilitate improved hospital facility implementation of PFCC, and ultimately improve consumer healthcare satisfaction and clinical outcomes.

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Section: Results Caring Together Framework For Pfccmentioning

confidence: 81%

Framework for patient, family-centred care within an Australian Community Hospital: development and description

et al. 2020

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“…These may reduce distress or anxiety related to sedation (e.g. face mask), avoid side‐effects of sedation and fasting required for sedation, and reduce recovery time 2,6 . Young people may explore using non‐pharmacological strategies in preparation for their transition to adult BoNT‐A services, where access to sedation may be limited 7 …”

mentioning

confidence: 99%

“…Non-pharmacological strategies are also important to support children during painful procedures including BoNT-A injections. [5][6][7] These may reduce distress or anxiety related to sedation (e.g. face mask), avoid side-effects of sedation and fasting required for sedation, and reduce recovery time.…”

mentioning

confidence: 99%

“…face mask), avoid side-effects of sedation and fasting required for sedation, and reduce recovery time. 2,6 Young people may explore using non-pharmacological strategies in preparation for their transition to adult BoNT-A services, where access to sedation may be limited. 7 In the general paediatric population, there is evidence to support the use of behavioural interventions for pain during needle-related procedures, including distraction therapy (e.g.…”

mentioning

confidence: 99%

“…Non‐pharmacological strategies are also important to support children during painful procedures including BoNT‐A injections 5–7 . These may reduce distress or anxiety related to sedation (e.g.…”

mentioning

confidence: 99%

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Biofeedback assisted relaxation training and distraction therapy for pain in children undergoing botulinum neurotoxin A injections: A crossover randomized controlled trial

Ostojic

Paget

Webb

et al. 2022

Develop Med Child Neuro

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Aim To compare biofeedback assisted relaxation training (BART) with distraction therapy for pain during botulinum neurotoxin A (BoNT‐A) treatment. Method This was a crossover randomized controlled trial. Eligible participants were 7 years and older with neurological conditions. Participants were randomized to receive BART or distraction during their first BoNT‐A treatment, followed by the alternative intervention in their subsequent BoNT‐A treatment. BART was delivered via BrightHearts, an interactive heart‐rate‐responsive application. Outcomes were pain (Faces Pain Scale – Revised), fear (Children's Fear Scale), and anxiety (numerical rating scale, State–Trait Anxiety Inventory). Demographics, paired t‐tests, and linear mixed models were used to compare outcomes. Results Thirty‐eight participants (mean [SD] age 13 years 5 months [3 years 4 months], 20 males, 34 with cerebral palsy) completed both interventions. There were non‐significant differences in overall pain (mean difference − 0.05, 95% confidence interval [CI] −0.91 to 0.80, p = 0.902) and worst pain (mean difference 0.37, 95% CI −0.39 to 1.13, p = 0.334) when using BART and distraction therapy. There were non‐significant differences in fear and anxiety between interventions. Younger age, heightened pre‐procedural state anxiety, and Gross Motor Function Classification System levels III and IV were associated with poorer outcomes (p < 0.05). Participants who received BART before distraction therapy reported lower pain and anxiety scores during both BoNT‐A treatments (p < 0.05). Interpretation Children reported similar pain when using BART and distraction therapy. Those who used BART before distraction therapy reported lower pain and anxiety during both treatments. What this paper adds Children reported similar pain (overall; worst) when using biofeedback assisted relaxation training (BART) and distraction therapy. Children who used BART before distraction therapy reported lower pain and anxiety over both botulinum neurotoxin A treatments. Younger age, pre‐procedural state anxiety, and Gross Motor Function Classification System levels III and IV predicted a worse pain experience. Distraction therapy and BART were acceptable non‐pharmacological interventions for procedural pain management.

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Using family and staff experiences of a botulinum toxin‐A service to improve service quality

Cited by 2 publications

References 14 publications

Framework for patient, family-centred care within an Australian Community Hospital: development and description

Framework for patient, family-centred care within an Australian Community Hospital: development and description

Biofeedback assisted relaxation training and distraction therapy for pain in children undergoing botulinum neurotoxin A injections: A crossover randomized controlled trial

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