Using Group Concept Mapping to Engage a Hard-to-Reach Population in Research: Young Adults With Life-Limiting Conditions

Cook, Karen; Bergeron, Kim

doi:10.1177/1609406919891315

Cited by 17 publications

(27 citation statements)

References 23 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…This type of participant had a limited time available to participate in a study with several rounds. Managing the recruitment process can be difficult in CMA with certain types of participants [42]. Moreover, the number of participants may decrease throughout the CMA steps due to lack of availability, attrition or fatigue to several rounds of participation [43].…”

Section: Generation Of Statementsmentioning

confidence: 99%

Perceptions of barriers and levers of health-enhancing physical activity policies in mid-size French municipalities

Racine

Garbarino

Corrion

et al. 2020

Health Res Policy Sys

View full text Add to dashboard Cite

Background: Policy is one of the levers for initiating structural change to foster the promotion of health-enhancing physical activity (HEPA). To this end, policy-makers have to deal with complex ecosystems embedded in specific contexts. However, limited research has been conducted on this topic at the local level. The purpose of this study was to identify the perceived barriers and levers of HEPA policies according to department heads and elected officials across various sectors in mid-size French municipalities. Methods: This study used a mixed method primarily based on an adaptation of the concept mapping approach. A list of statements completing the sentence: 'In a mid-size municipal context, to develop HEPA policies, it is necessary to …' was submitted to key informants of 17 mid-sized French cities. Key informants in each municipality first rated the importance of each statement without considering their local context; they then rated the feasibility of each statement given their local context. In both cases, they used a Likert scale ranging from 1 to 6. Results: A total of 23 municipal department heads and 10 elected officials from the sport (n = 14), health (n = 10) and social (n = 9) sectors in 11 mid-size French cities participated in this study. A list of 84 statements, sorted into 16 categories, was rated by participants according to their importance (M = 4.52, SD = 0.86) and their feasibility (M = 3.77, SD = 0.74). Potential barriers to (n = 10) and levers of (n = 38) HEPA policy development were identified. These results varied according to the position and sector of the participants. Conclusions: The results suggest that local contextual factors can affect the development of HEPA policies in midsize French municipalities. The different perceptions of the potential levers and barriers according to sector might affect intersectoral collaboration. This study contributes by enhancing understanding of how local HEPA policies are developed in the French context.

show abstract

Section: Generation Of Statementsmentioning

confidence: 99%

Perceptions of barriers and levers of health-enhancing physical activity policies in mid-size French municipalities

Racine

Garbarino

Corrion

et al. 2020

Health Res Policy Sys

View full text Add to dashboard Cite

show abstract

“…15 18 19 For a detailed description of the methodological processes of using GCM as a patient engagement strategy for this study, please refer to Cook and Bergeron. 18 …”

Section: Methodsmentioning

confidence: 99%

“…For example, recruitment involved collaborating with the counselling programme at the children’s hospice and the neuromuscular nurse clinician from the children’s hospital to ensure the health and well-being of every YA before inviting them and their parents to participate. 18 Email invitations to the potential participants included a letter of information that explained each phase of the study, that participation in each phase was optional, how consent would be obtained for each phase and instructions on how to log on and off the secure project website. 18 Study participants determined their participation each time the study moved to a new phase, and informed consent was obtained for all phases of this study.…”

Section: Methodsmentioning

confidence: 99%

Palliative care for young adults with life-limiting conditions: public health recommendations

Cook

Bergeron

2020

BMJ Support Palliat Care

Self Cite

View full text Add to dashboard Cite

ObjectiveTo engage young adults (18–35 years of age) with life-limiting neuromuscular conditions, their parents, and health and community providers in the development of a public health approach to palliative care. A public health approach protects and improves health and wellness, maximises the quality of life when health cannot be restored and improves the quality, scope and accessibility of age-appropriate care and services.MethodsGroup concept mapping (GCM) was used to determine the most important priorities for these young adults. GCM involves three district phases: (1) brainstorming ideas, (2) sorting and rating ideas based on level of importance and (3) analysing and interpreting concepts maps. Online software was used to collect information for phases 1 and 2 and develop concept maps. In phase 3, a face-to-face workshop, participants analysed and interpreted the concept maps. The combination of online and face-to-face research activities offered the needed flexibility for participants to determine when and how to participate in this research.ResultsThrough this three-phase patient engagement strategy, participants generated 64 recommendations for change and determined that improvements to programming, improvements to funding and creating a continuum of care were their most important priorities. Five subthemes of these three priorities and development of the concept map are also discussed.ConclusionThis research demonstrates the unique perspectives and experiences of these young adults and offers recommendations to improve services to enhance their health and well-being. Further, these young adults were integral in the development of recommendations for system changes to match their unique developmental needs.

show abstract

“…This study utilized Group Concept Mapping (GCM) to examine factors likely to in uence the adoption of TASSH within the CHPS zones. Group Concept Mapping (GCM) is a mixed-methods design that engages participants through the research process in well-structured qualitative and quantitative methods [19][20][21][22][23][24].…”

Section: Introductionmentioning

confidence: 99%

“…The approach allows researchers to capture, organize, and rate conceptual data from individual and groups. It as well creates a meaningful conceptualization of the issues under investigation [20][21][22][23]. We thoroughly used GCM to evaluate national, regional and district health stakeholders' perspectives and characterize the array of strategies needed to enhance uptake of evidence-based TASSH within Ghana's Community-based Health and Planning Services (CHPS) zones.…”

Section: Introductionmentioning

confidence: 99%

Implementing Evidence-Based Task Strengthening Strategies for Hypertension Control within Ghana’s Community-Based Health Planning Services: A Concept Mapping Analysis

Nyame

Iwelunmor

Asante

et al. 2021

Preprint

View full text Add to dashboard Cite

Background: As efforts are made to systematically implement an evidence-based task-strengthening strategy for hypertension control (TASSH) in Ghana, understanding their content can help national, regional and district health stakeholders within Ghana’s Health Services (GHS) identify strategies for enhancing intervention uptake and sustainability in their local context. This study sought to describe national, regional and district health stakeholders’ perspectives and characterize the array of strategies needed to enhance the uptake of evidence-based TASSH within Ghana’s Community-based Health and Planning Services (CHPS) zones. Methods: This qualitative study was conducted among national, regional and district health stakeholders within GHS serving patients who utilize CHPS zones. The CHPS initiative is Ghana’s flagship strategy for achieving universal health coverage. Semi-structured interviews were conducted with 22 national, regional and district health stakeholders identified via purposive sampling. Interviews were conducted in 2018. Data analysis was conducted between July 2019 and December 2019. Data was analyzed using group concept mapping systems to identify major themes and subthemes.Results: About 68 % of participants were male with mean age of 40 years and mean years of experience providing hypertension-related care within GHS of 9 years. A conceptual map emerged, consisting of 46 strategies needed for implementing evidence-based TASSH, organized into 6 clusters: 1) Referral Systems; 2) Availability of Equipment; 3) Protocols and Guidelines; 4) Capacity Building/Training; 5) Policy Reform, and 6) Technical Support and Supervision. Availability of equipment was rated as the most important strategy (mean 4.80 out of 5) needed to implement evidence-based TASSH, while Capacity Building/Training was rated as the most feasible strategy (mean 4.20 out of 5) to address. Although important (mean 4.40 out of 5), Policy reform was rated as the least important and feasible strategy to address. Conclusions: These findings demonstrate strategies that can help inform future interventions focused on the adoption and sustainability of evidence-based TASSH within Ghana’s CHPS zones. Also, national, regional and district health stakeholders can support healthcare workers by facilitating access to equipment and strategies for enhancing capacity and training with implementing evidence-based task-shifting hypertension interventions in Ghana.

show abstract

Using Group Concept Mapping to Engage a Hard-to-Reach Population in Research: Young Adults With Life-Limiting Conditions

Cited by 17 publications

References 23 publications

Perceptions of barriers and levers of health-enhancing physical activity policies in mid-size French municipalities

Perceptions of barriers and levers of health-enhancing physical activity policies in mid-size French municipalities

Palliative care for young adults with life-limiting conditions: public health recommendations

Implementing Evidence-Based Task Strengthening Strategies for Hypertension Control within Ghana’s Community-Based Health Planning Services: A Concept Mapping Analysis

Contact Info

Product

Resources

About