Abstract:Background The adolescent and young adult (AYA) period is a time of high morbidity and mortality for persons with sickle cell disease (SCD). The goal of this study was to use implementation science combined with qualitative methods to understand the determinants of an optimal transition to adult care for AYA with SCD. Methods Sixty participants were purposefully recruited from a large hospital system and the community for 16 focus groups or semi-structured interviews. Patient-caregiver dyads and health care pr… Show more
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