Using Matched Groups to Explore Child Behavior Problems and Maternal Well-Being in Children with Down Syndrome and Autism

Griffith, Gemma M.; Hastings, Richard P.; Nash, Susan M.; Hill, Christopher

doi:10.1007/s10803-009-0906-1

Cited by 176 publications

(123 citation statements)

References 40 publications

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“…43 In contrast to previous literature, mothers of children with ASD versus other disabilities did not report more distressful affect. However, no such group differences are also seen when child variables are well controlled, 44 or when mothers are grouped by a stress biomarker instead of their child' s diagnosis. 12 Response to treatment also was similar across diagnostic groups, although mothers of children with ASD showed less immediate improvements in anxiety.…”

Section: Discussionmentioning

confidence: 99%

Reducing Distress in Mothers of Children With Autism and Other Disabilities: A Randomized Trial

et al. 2014

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BACKGROUND: Compared with other parents, mothers of children with autism spectrum disorder or other neurodevelopmental disabilities experience more stress, illness, and psychiatric problems. Although the cumulative stress and disease burden of these mothers is exceptionally high, and associated with poorer outcomes in children, policies and practices primarily serve the identified child with disabilities. METHODS: A total of 243 mothers of children with disabilities were consented and randomized into either Mindfulness-Based Stress Reduction (mindfulness practice) or Positive Adult Development (positive psychology practice). Well-trained, supervised peer mentors led 6 weeks of group treatments in 1.5-hour weekly sessions, assessing mothers 6 times before, during, and up to 6 months after treatment. Mothers had children with autism (65%) or other disabilities (35%). At baseline, 85% of this community sample had significantly elevated stress, 48% were clinically depressed, and 41% had anxiety disorders. RESULTS: Using slopes-as-outcomes, mixed random effects models, both treatments led to significant reductions in stress, depression, and anxiety, and improved sleep and life satisfaction, with large effects in depression and anxiety. Mothers in Mindfulness-Based Stress Reduction versus Positive Adult Development had greater improvements in anxiety, depression, sleep, and well-being. Mothers of children with autism spectrum disorder improved less in anxiety, but did not otherwise differ from their counterparts. CONCLUSIONS: Future studies are warranted on how trained mentors and professionals can address the unmet mental health needs of mothers of children with developmental disabilities. Doing so improves maternal well-being and furthers their long-term caregiving of children with complex developmental, physical, and behavioral needs.

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Section: Discussionmentioning

confidence: 99%

Reducing Distress in Mothers of Children With Autism and Other Disabilities: A Randomized Trial

et al. 2014

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“…For example, challenging behaviours occur more often and are usually more severe in children with ASD than children with Down syndrome [53]. Thus, a commonly cited risk factor for poorer care-giver health and QoL outcomes, challenging child behaviour, is more often associated with ASD than Down syndrome.…”

Section: Maternal Health By the Child's Diagnosis Or Sub-type And Thementioning

confidence: 99%

Risk and protective factors for the health of primary care-givers of children with autism spectrum disorders or intellectual disability: a narrative review

Fairthorne¹,

Mori²,

Leonard³

2018

J Autism

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Background: Primary care-givers of children with autism spectrum disorder (ASD) or intellectual disability (ID) have poorer health and quality of life than primary care-givers of typically developing children. We aimed to review original research which described factors impacting the health of primary care-givers of children with ASD or ID and to discuss how these factors might influence care-giver health. Methods: We searched electronic databases and retrieved 33 relevant research articles. Results: Factors impacting primary care-giver health included child behaviour, support and diagnostic issues. We explain how these factors might impact care-giver health and how they might act differentially in care-givers of children with different types of ASD or ID. Interventions to moderate one or more risk factors could pave the way for improved primary care-giver health.

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“…The most common feature of a child with Down syndrome are: Muscular hypotonia, wide neck, inclined position of eye holes, short hands, abnormal form of ears, short and wide arms and legs, small mouth and nose with a disproportionately large tongue, short chest of unusual shape, small head (Vukovic et al, 2008;Zergollern -Cupak, Suradnici, 1998). In general, children with Down syndrome are often known as warm, kind, interesting, cheerful, good-natured, charming and of relatively good social functioning (Fidler et al, 2008;Griffith, Hastings, Nash & Hill, 2010;Rosner et al, 2004;Vukovic et al, 2008). However, like everyone else, they can be sad, careless, stubborn, defiant, quarrelsome (Cuskelly & Dadds, 1992;Vukovic et al, 2008) and express routinized, compulsive behaviors (Glenn & Cunningham, 2007).…”

Section: Who Are Children With Down Syndrome?mentioning

confidence: 99%

A child with Down syndrome - Challenge for families, kindergartens and schools

Đuranović

Klasnić

Opić³

2017

PROSOC

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Every day, the number of children born with disabilities is increasing. One of the many disabilities is Down's syndrome, which occurs on average in one of 650 infants. For a child born with this disability, it is much more difficult to normally grow, develop and function in everyday life. In the past, children born with Down syndrome were neglected, and their education was not paid almost any attention. Today, there are significant changes in social awareness related to rights and needs of children with Down syndrome. Early intervention programs that are being developed in order to mitigate problems of children with disabilities are becoming much better, and the number of therapeutic methods is increasing. There are a number of institutions and organizations which provide assistance and support to the parents of children with Down syndrome. To encourage their overall development and enable easier and more efficient functioning in society, children with Down syndrome are being integrated into pre-school and school facilities. The aim of this work is to further sensitize the public to problems and needs of this very vulnerable population of children and show examples of successful integration of children with Down syndrome in kindergarten and elementary schools.

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Using Matched Groups to Explore Child Behavior Problems and Maternal Well-Being in Children with Down Syndrome and Autism

Cited by 176 publications

References 40 publications

Reducing Distress in Mothers of Children With Autism and Other Disabilities: A Randomized Trial

Reducing Distress in Mothers of Children With Autism and Other Disabilities: A Randomized Trial

Risk and protective factors for the health of primary care-givers of children with autism spectrum disorders or intellectual disability: a narrative review

A child with Down syndrome - Challenge for families, kindergartens and schools

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