Using participatory and creative methods to facilitate emancipatory research with people facing multiple disadvantage: a role for health and care professionals

Kramer-Roy, Debbie

doi:10.1080/09687599.2015.1090955

Cited by 57 publications

(27 citation statements)

References 21 publications

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“…We aimed not only to record and represent their experiences, but also through dissemination to initiate broader change for the benefit of the whole community. 20 Emancipatory research has only recently and very sporadically been used in the field of autism research. 21,22 The social and communication difficulties associated with autistic individuals have caused researchers to be cautious, perhaps overly so, about consulting them, despite evidence from autistic and nonautistic researchers that this can be done effectively.…”

Section: Emancipatory Researchmentioning

confidence: 99%

“I Don't Feel Like a Gender, I Feel Like Myself”: Autistic Individuals Raised as Girls Exploring Gender Identity

KourtiMarianthi

MacLeod

2019

Autism in Adulthood

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Background: This article addresses a gap in current research by considering perceptions of gender within autistic adults raised as girls. Methods: We report on an online focus group, in which 21 individuals who had been raised as girls discussed their gender identities. This discussion was part of a larger study, involving 43 participants from eight countries. We used an emancipatory approach wherein participants set their own agenda, thereby highlighting directly that gender identity was significant for them. The discussion was open for 2 weeks, after which the transcript was analyzed using Applied Thematic Analysis. Results: Participants reported not identifying with typical presentations of the female gender for a variety of reasons, linked both to autism and to sociocultural expectations. Participants described childhoods of being a tomboy or wanting to be a boy, having difficulties conforming to gender-based social expectations and powerful identifications with their personal interests. Conclusions: Consideration is given to the ways in which autistic individuals conform to, or resist, gendered roles, as well as the implications for identity formation within autistic individuals raised as girls. The innovative emancipatory design proved effective in giving voice to a group who have had little presence within the academic and medical communities and, through its use of online platforms, in engaging a large and internationally based participant sample. This article highlights both the importance of approaching autism from an intersectional perspective that takes greater account of context, and the unique contributions that autistic individuals can make to current understandings within autism research.

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Section: Emancipatory Researchmentioning

confidence: 99%

“I Don't Feel Like a Gender, I Feel Like Myself”: Autistic Individuals Raised as Girls Exploring Gender Identity

KourtiMarianthi

MacLeod

2019

Autism in Adulthood

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“…First, this study shows that people with IDs can be co‐researchers, which contribute to increasing the evidence in this regard (Flood et al, 2013; Frankena et al, 2019; Kramer‐Roy, 2015; Redmond, 2005). Being a co‐researcher is even more important when the focus of the research is a topic closely related to them, such as the cognitive accessibility of public spaces and services.…”

Section: Discussionmentioning

confidence: 71%

Analyzing Roles, Barriers, and Supports of Co‐researchers in Inclusive Research

Vega‐Córdova

Álvarez‐Aguado

Río

et al. 2020

Policy Practice Intel Disabi

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Current research demands that we rethink the roles of people with intellectual disabilities (IDs) in the research that affects them. The paradigm of inclusive research responds to this need. Although the specialized literature is progressively adopting a more inclusive research approach, the study of roles and relationships within inclusive research and reflections on the process of doing participatory research has received little attention. From a qualitative approach and a participatory action research framework this study aims to: (1) report the experience of involving adults with IDs in inclusive research, and their improvements in terms of developed competencies; (2) identify their perceived roles as researchers, and (3) describe their perceived barriers and facilitators during the research process. This study describes the experiences of 11 adults with IDs who participated in a project aimed at evaluating the cognitive accessibility of public spaces and services in a Chilean city for 14 months. Different roles emerged, ranging from apprentices to experts by experience, and were adopted to different extent by co-researchers as the process evolved. Coresearchers developed conceptual, procedural, and attitudinal skills. They also identified contextual and personal barriers as well as facilitators consisting of natural, professional, and community supports, as well as assisted technology while performing their role as co-researchers. Inclusive research is a challenging, evolving process and it requires ongoing support and feedback to monitor the process and the outcomes to guarantee that all the participants perform different roles involved while meeting the goals of the research.

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“…Ces initiatives sont plus présentes dans le champ des sciences sociales (Docherty & Sandelowski, 1999). Elles sont le plus souvent centrées sur l'enfant (child-centered) ou centrées sur l'expérience (Due, Riggs, & Augoustinos, 2014;Kramer-Roy, 2015;Liegghio et al, 2010). Cet accent sur l'expérience s'inspire de l'humanisme et s'inscrit dans un horizon de faire des 85 « sciences humaines » (DeRobertis, 2012).…”

Section: Des Cadres Conceptuels Préalables : Entre Les Méthodes Projeunclassified

“…Les méthodes créatives issues des courants critiques et participatifs en recherche sont celles qui s'appuient sur l'imagination pour favoriser la participation à la recherche (Greene & Hill, 2005;Kramer-Roy, 2015;Veale, 2005). Ainsi, ces méthodes privilégient de raconter des histoires plutôt que de rendre compte de manière factuelle de l'expérience du participant (Greene & Hill, 2005).…”

Section: La Projection Comme Méthode Créative : Un Espace De Jeuunclassified

Écouter les enfants dans la recherche en santé mentale jeunesse (SMJ) : une créativité éthique inspirée de la clinique

et al. 2018

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Tous droits réservés © Approches inductives, 2018Ce document est protégé par la loi sur le droit d'auteur. L'utilisation des services d'Érudit (y compris la reproduction) est assujettie à sa politique d'utilisation que vous pouvez consulter en ligne. https://apropos.erudit.org/fr/usagers/politique-dutilisation/ Cet article est diffusé et préservé par Érudit.Érudit est un consortium interuniversitaire sans but lucratif composé de l

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Using participatory and creative methods to facilitate emancipatory research with people facing multiple disadvantage: a role for health and care professionals

Cited by 57 publications

References 21 publications

“I Don't Feel Like a Gender, I Feel Like Myself”: Autistic Individuals Raised as Girls Exploring Gender Identity

“I Don't Feel Like a Gender, I Feel Like Myself”: Autistic Individuals Raised as Girls Exploring Gender Identity

Analyzing Roles, Barriers, and Supports of Co‐researchers in Inclusive Research

Écouter les enfants dans la recherche en santé mentale jeunesse (SMJ) : une créativité éthique inspirée de la clinique

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