Using Patient Reported Outcomes Measures to Promote Integrated Care

Rikkert, Marcel G M Olde; Wees, Philip J. van der; Schoon, Yvonne; Westert, Gert P.

doi:10.5334/ijic.3961

Cited by 57 publications

(50 citation statements)

References 24 publications

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“…In a patient-centric clinical model, the physician should, and often does, rely on the patient's own assessment of the degree to which their disease is controlled on current medications 38 . Indeed, improved self-management has been formally identified by some healthcare systems as a critical factor in optimizing outcomes for patients with chronic conditions 39 , and the use of PROMs to enhance the patient-physician encounter, ongoing relationship, and associated quality of care and health outcomes is well established in numerous healthcare fields, and in chronic and acute health conditions [40][41][42][43] . When assessing patients with AD, the AAD recommends that physicians inquire about itch, sleep, impact on daily activity, and persistence of disease.…”

Section: Discussionmentioning

confidence: 99%

Evaluating patient-perceived control of atopic dermatitis: design, validation, and scoring of the Atopic Dermatitis Control Tool (ADCT)

Pariser

Simpson

Gadkari

et al. 2019

Current Medical Research and Opinion

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Objectives: The Atopic Dermatitis Control Tool (ADCT) was designed to evaluate patient-perceived AD control and facilitate patient-physician discussion on long-term disease control. Methods: The study was performed in adult patients with AD. Development of the ADCT followed US Food and Drug Administration (FDA) guidelines on patient-reported outcome measures (PROMs). Qualitative research, including targeted literature review, interviews with clinical experts, and combined concept elicitation/cognitive debriefing with patients with AD, was conducted to provide a list of comprehensive concepts capturing AD control per physician and patient perspectives. Quantitative methods assessed psychometric properties of the instrument and defined the threshold for AD control. Results: The resulting pilot six-item ADCT, reflecting key concepts related to AD control, had 7-day recall and assessed symptoms and impacts on patients' everyday lives by severity and/or frequency. The ADCT showed good content validity (well understood by adult patients with AD), and quick completion time (<2 min). Psychometric analysis indicated no floor/ceiling effects for response distributions, particularly strong (r ! 0.80) inter-item correlations for the six ADCT items, robust construct validity (r > 0.50), and item-level discriminating ability (p < .03); this supported the derivation of a total score based on responses to all items. ADCT total score showed evidence of strong internal consistency reliability (Cronbach's alpha >0.80). A score !7 points was identified as an optimum threshold to identify patients whose AD is "not in control." Conclusions: No single validated instrument has been available to holistically evaluate patient-perceived AD control. The newly developed ADCT displays good-to-excellent content validity, construct validity, internal consistency, reliability, and discriminating ability.

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Section: Discussionmentioning

confidence: 99%

Evaluating patient-perceived control of atopic dermatitis: design, validation, and scoring of the Atopic Dermatitis Control Tool (ADCT)

Pariser

Simpson

Gadkari

et al. 2019

Current Medical Research and Opinion

View full text Add to dashboard Cite

show abstract

“…Healthcare systems around the world are also shifting toward a patient-centered care (PCC) model, which incorporates and responds to individual patient and family preferences, needs, and values ( 5 ). Patient–clinician interaction is essential to optimize chronic disease management; therefore, integration of patient-reported outcome measures (PROMs) in routine clinical care is touted as an effective way to steer healthcare toward a PCC model and provide integrated care ( 6 , 7 ). PROMs are self-completed questionnaires that have been standardized and validated and assess the following health domains: physical, emotional, social, functional, overall well-being, and health-related quality of life (HRQOL) ( 8 , 9 ).…”

Section: Introductionmentioning

confidence: 99%

Patient-Reported Outcome Measures in Routine Pediatric Clinical Care: A Systematic Review

et al. 2020

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Introduction: Integration of patient-reported outcome measures (PROMs) in routine clinical care is growing but lacks consolidated evidence around its impact on pediatric care. This systematic review aims to evaluate the impact of integrating PROMs in routine pediatric clinical care on various outcomes in pediatric clinical care. Data Sources: MEDLINE, Embase, CINAHL, PsycINFO, and Cochrane Library. Web of Science database was searched selectively to ensure extended coverage. Study Selection: We included longitudinal studies reporting on the integration of PROMs in routine pediatric clinical care of chronic diseases. Studies in languages other than English, published prior to the year 2000, and reporting on secondary data were excluded. Data Extraction: Two reviewers independently extracted data from included studies. Extracted data included citation of each study, type of healthcare setting, location of the study, characteristics of patient population, type of chronic disease, name and type of PROM, mode of administration, and reported outcomes. Results: Out of 6,869 articles, titles and abstracts of 5,416 articles and full text of 23 articles were screened in duplicate. Seven articles reporting results from six studies met eligibility criteria. Integration of PROMs increased the identification and discussion around health-related quality of life (HRQOL), especially in psychosocial and emotional domains, but showed mixed results with the impact on quality of care. No studies assessed the impact of integrating PROMs on healthcare utilization. Limitations: Due to significant heterogeneity in the studies, a meta-analysis was not conducted. Conclusions: Integrating PROMs could have a positive impact on HRQOL; however, further studies are required to determine the impact of PROMs in routine pediatric clinical care.

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“…Next steps should consist of further development of the quality of the interaction in cocreation with healthy older and more frail older participants. This will include exploration of direct PROM feedback to professionals, as well as application of this social robot technology in integrated care pathways [37] to have both patients and professionals benefit from an improved quality of care. Future opportunities might also include gathering patient reported outcomes in the patient's native language.…”

Section: Discussionmentioning

confidence: 99%

A Feasibility Study of a Social Robot Collecting Patient Reported Outcome Measurements from Older Adults

Boumans

Meulen

Hindriks

et al. 2019

Int J of Soc Robotics

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Patient reported outcome measures (PROMs) are an essential means for collecting information on the effectiveness of hospital care as perceived by the patients themselves. Especially older adult patients often require help from nursing staff to successfully complete PROMs, but this staff already has a high work load. Therefore, a social robot is introduced to perform the PROM questioning and recording task. The study objective was to design a multimodal dialogue for a social robot to acquire PROMs for older patients. The primary outcomes were the effectiveness, the efficiency, and the subjective usability as perceived by older adults of acquiring PROMs by a social robot. The robot dialogue design included a personalized welcome, PROM questions, confirmation requests, affective statements, use of a support screen on the robot displaying the answer options, and accompanying robot gestures. The design was tested in a crossover study with 31 community-dwelling persons aged 70 years or above. Answers obtained with the robot were compared with those obtained by a questionnaire taken by humans. First results indicated that PROM data collection in older persons may be carried out effectively and efficiently by a social robot. The robot's subjective usability was on average scored as 80.1 (± 11.6) on a scale from 0 to 100. The recorded data reliability was 99.6%. A first relevant step has been made on the design trajectory for a robot to obtain PROMs from older adults. Practice variation in subjective usability scores still asks for technical dialogue improvements.

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Using Patient Reported Outcomes Measures to Promote Integrated Care

Cited by 57 publications

References 24 publications

Evaluating patient-perceived control of atopic dermatitis: design, validation, and scoring of the Atopic Dermatitis Control Tool (ADCT)

Evaluating patient-perceived control of atopic dermatitis: design, validation, and scoring of the Atopic Dermatitis Control Tool (ADCT)

Patient-Reported Outcome Measures in Routine Pediatric Clinical Care: A Systematic Review

A Feasibility Study of a Social Robot Collecting Patient Reported Outcome Measurements from Older Adults

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