Using satisfaction to measure the quality of palliative care: a review of the literature

Aspinal, Fiona; Addington‐Hall, Julia; Hughes, Rhidian; Higginson, Irene J

doi:10.1046/j.1365-2648.2003.02624.x

Cited by 135 publications

(136 citation statements)

References 52 publications

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“…30 The measurement of satisfaction with hospice care is completed by family members, which may be biased based on the family member's needs and the latent, retrospective nature of the measures (i.e., 1-3 months post death). 8 Family ratings of satisfaction for hospice care are related to information about the family member's condition and medical treatment, the provision of adequate emotional support to the family member, and an identifiable nurse in charge of care. 8 It is likely that the current standard measure of overall satisfaction with hospice care is too broad and influence by multiple aspects of hospice care to capture the specific patient-related benefits (i.e.…”

Section: Discussionmentioning

confidence: 99%

“…8 Family ratings of satisfaction for hospice care are related to information about the family member's condition and medical treatment, the provision of adequate emotional support to the family member, and an identifiable nurse in charge of care. 8 It is likely that the current standard measure of overall satisfaction with hospice care is too broad and influence by multiple aspects of hospice care to capture the specific patient-related benefits (i.e. breathlessness, spirituality) of music therapy.…”

Section: Discussionmentioning

confidence: 99%

“…5 Emotional distress, pain management, and attention to spiritual needs are critical to high quality end of life care. [6][7][8] Despite widespread use of music therapy in hospice care, empirical evidence of benefit is sparse. Systematic reviews summarizing the available quantitative evidence for music therapy in hospice and cancer care arrive at similar conclusions: preliminary evidence from small scale studies included in reviews suggests music therapy interventions may be beneficial in decreasing patient-perceived anxiety and pain and improving quality of life.…”

Section: Introductionmentioning

confidence: 99%

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Music Therapy Is Associated With Family Perception of More Spiritual Support and Decreased Breathing Problems in Cancer Patients Receiving Hospice Care

Burns

Perkins

Tong

et al. 2015

Journal of Pain and Symptom Management

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Context: Music therapy is a common discretionary service offered within hospice; however, there are critical gaps in understanding the effects of music therapy on hospice quality indicators, such as family satisfaction with care. Objectives: The purpose of this study was to examine whether music therapy affected family perception of patients' symptoms and family satisfaction with hospice care. Methods: A retrospective, cross sectional analysis of electronic medical records from 10,534 cancer patients cared for between 2006-2010 by a large national hospice. Logistic regression was used to estimate the effect of music therapy using propensity scores to adjust for non-random assignment. Results: Overall, those receiving music therapy had higher odds of being female, having longer length of stay, and receiving more services other than music therapy, and lower odds of being married/partnered or receiving home care. Family satisfaction data were available for 1495 (14%) and were more likely available if the patient received music therapy (16% vs 12%, p<.01). There were no differences in patient pain, anxiety, or overall satisfaction with care between those receiving music therapy vs not. Patients who received music therapy were more likely to report discussions about spirituality (OR=1.59, p=.01), marginally less trouble breathing (OR = 0.77, p=.06), and marginally more likely to receive the right amount of spiritual support (OR = 1.59, p=.06). Conclusions: Music therapy was associated with perceptions of meaningful spiritual support and less trouble breathing. The results provide preliminary data for a prospective trial to optimize MT interventions for integration into clinical practice.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Music Therapy Is Associated With Family Perception of More Spiritual Support and Decreased Breathing Problems in Cancer Patients Receiving Hospice Care

Burns

Perkins

Tong

et al. 2015

Journal of Pain and Symptom Management

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“…3 In the United Kingdom, where person-centredness has been the basis of health care policy for some time, critics have gone so far as to say that it is nothing more than a political slogan to identify a user-oriented approach to care. 4 Calls to refocus on a "relationship-centred approach" to care are signalling the need to bring back the essence of Kitwood' s original perspective and clarify person-centredness for practical application.…”

Section: Models Of Carementioning

confidence: 99%

“…Results from satisfaction surveys can be very influential in terms of "determining service structure, development and financial support". 4 Yet, serious reservations have been raised about the validity of both the concept and measures of satisfaction. 5,6 While satisfaction surveys have a role in health service evaluation, their utility in measuring person-centred care is limited, particularly to inform quality improvement activities.…”

Section: Issues With Satisfaction As a Measure Of Person-centrednessmentioning

confidence: 99%

Measuring person-centred care in a sub-acute health care setting

Davis¹,

Byers²,

Walsh³

2008

Aust. Health Review

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Objective: A more appropriate tool to measure the client experience of person-centred care is required to complement other existing measures of quality. A tool developed in the United Kingdom was trialled to determine its utility with a frail older Australian population.Design: A random sample of clients recently discharged from a sub-acute setting over a 6-month period in 2005 were sent a questionnaire and invited to respond, a reply-paid envelope being provided for the return of the questionnaire. The questionnaire comprised the 20-item tool and space to provide additional qualitative comments. Setting:The inpatient wards of a sub-acute facility in Melbourne. Participants:From the random sample of 144 discharged clients, 78 responded to the questionnaire.Main outcome measure: 20-item Patient-Centred Inpatient Scale (P-CIS) developed by Coyle and Williams (2001). Results:Overall, there was a fundamental core of person-centredness as demonstrated by a ratio score of 0.68. Personalisation and respect dimensions are the main strengths of person-centred care in the health care setting in which the P-CIS was trialled, with personalisation scoring 0.75 and respect scoring 0.77. The miscellaneous components scored 0.69. The findings show that areas of the client experience warranting priority quality improvement effort are specific to the dimensions of empowerment (0.58), information (0.58) and approachability/availability (0.43). Conclusions:The P-CIS demonstrates the potential to be a contributing component that informs the monitoring and improvement of quality person-centred care in Australian inpatient health PERSON-CENTRED CARE is considered the optimal way of delivering health care and has been defined simply as "valuing people as individuals". 1 This approach to care is built on the concept of personhood envisaged by Tom Kitwood as the "status or standing bestowed upon What is known about the topic?Person-centred care is considered the optimal way to deliver health care. Health care settings rely heavily on the concept of satisfaction to capture the client experience of care delivery. However, satisfaction is unable to encompass the range of feelings, values and experiences a person has when health care is provided. So instruments measuring client satisfaction cannot capture key characteristics of person-centred care. What does this paper add?This paper advances the debate on measuring the client experience in health care settings. It identifies a way to capture key features of a person-centred approach to care through a measure of personal identity threat which can be used with a frail older population. What are the implications for practice?The P-CIS provides a way to identify strengths and weaknesses in person-centred care delivery in the inpatient setting. It provides a framework enabling care providers in inpatient settings to monitor and modify practice to optimise person-centred care.

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Effectiveness of Specialized Palliative Care

Zimmermann

Riechelmann²,

Krzyzanowska³

et al. 2008

JAMA

433

350

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Context Specialized palliative care teams are increasingly providing care for the terminally ill. However, the impact of such teams on quality of life, satisfaction with care, and economic cost has not been examined systematically using detailed criteria for study quality.Objective To systematically review the evidence for effectiveness of specialized palliative care. Data SourcesWe performed a keyword search of the following databases from their inception to January 2008: MEDLINE, Ovid Healthstar, CINAHL, EMBASE, and the Cochrane Central Register of Controlled Trials. Study SelectionWe included all randomized controlled trials in which specialized palliative care was the intervention and for which outcomes included quality of life, satisfaction with care, or economic cost. Data Extraction Data on population, intervention, outcome, methods, and methodological quality were extracted by 2 investigators using standardized criteria. ResultsOf 396 reports of randomized controlled trials, 22 met our inclusion criteria. There was most consistent evidence for effectiveness of specialized palliative care in improvement of family satisfaction with care (7 of 10 studies favored the intervention). Only 4 of 13 studies assessing quality of life and 1 of 14 assessing symptoms showed a significant benefit of the intervention; however, most studies lacked statistical power to report conclusive results, and quality-of-life measures were not specific for terminally ill patients. There was evidence of significant cost savings of specialized palliative care in only 1 of the 7 studies that assessed this outcome. Methodological limitations were identified in all trials, including contamination of the control group, failure to account for clustering in cluster randomization studies, and substantial problems with recruitment, attrition, and adherence. ConclusionsThe evidence for benefit from specialized palliative care is sparse and limited by methodological shortcomings. Carefully planned trials, using a standardized palliative care intervention and measures constructed specifically for this population, are needed.

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Using satisfaction to measure the quality of palliative care: a review of the literature

Cited by 135 publications

References 52 publications

Music Therapy Is Associated With Family Perception of More Spiritual Support and Decreased Breathing Problems in Cancer Patients Receiving Hospice Care

Music Therapy Is Associated With Family Perception of More Spiritual Support and Decreased Breathing Problems in Cancer Patients Receiving Hospice Care

Measuring person-centred care in a sub-acute health care setting

Effectiveness of Specialized Palliative Care

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