Utility Estimation for Pediatric Vesicoureteral Reflux: Methodological Considerations Using an Online Survey Platform

Tejwani, Rohit; Wang, Hsin-Hsiao S.; Lloyd, Jessica; Kokorowski, Paul; Nelson, Caleb P.; Routh, Jonathan C.

doi:10.1016/j.juro.2016.09.119

Cited by 9 publications

(10 citation statements)

References 27 publications

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“…Prior knowledge of neural tube defect and SB were seen as significant factors in utility score determination on bivariate analysis, although this effect did not persist on multivariate analysis. This is consistent with our previous work on utility estimation [3,7]. This result can be explained by several factors such as the small percentage of respondents with SB/NTD and possible co-linearity of the analyzed variables.…”

Section: Discussionsupporting

confidence: 92%

“…Estimating our survey would take 15 minutes to complete, we set our payment to $0.50. This is commensurate with the compensation rate for similar MTurk tasks [3]. …”

Section: Methodsmentioning

confidence: 52%

“…We aimed to estimate the utility score for a typical 6-year-old child with SB using a validated online platform [3,7]. We found this annual utility to be 0.85.…”

Section: Discussionmentioning

confidence: 99%

“…We previously reported that utility estimate fluctuates based on whether it was parent vs. child vs. dyad perspective. In addition, utility weight was surprisingly unaffected by anchoring bias, which is a common human tendency where subsequent decisions are made based on the initial piece of information [3]. Therefore, this online crowdsourcing tool not only provides precise utility estimation of VUR, but also more chronic pediatric urological conditions such as SB.…”

Section: Discussionmentioning

confidence: 99%

“…Utility estimation is a crucial component of any CUA; if the utility estimate is unsound, then the resulting CUA will be irredeemably biased. Perspectives on the impact of disease progression and treatment on quality of life can subsequently be represented as numerical values within this scale [1–3]. …”

Section: Introductionmentioning

confidence: 99%

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Crowdsourcing utility estimation for spina bifida in the general population

Jiang

Inouye

Wang

et al. 2017

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INTRODUCTION Cost-utility analyses (CUA) are useful when the treatment conditions depend on patient preferences that are in turn dependent on health state utility value. Spina bifida (SB) is an example of such a preference-sensitive condition. Historically, the SB utility value for CUA has been gathered via a traditional face-to-face interview. However, due to funding and time constrains, utility estimation via online crowdsourcing has recently gained popularity. Our aim was to estimate the utility value for a generic SB health state using a validated online tool. METHODS A cross-sectional survey of American adults was conducted using the time-trade-off (TTO) method. Participants were recruited from an online crowdsourcing interface, Amazon’s Mechanical Turk (mTurk). Demographic information and prior knowledge of SB were assessed. Respondents were provided a written passage and an online video explaining SB and its potential associated comorbidities. Participants were queried on hypothetical ascending time-trades from a child-parent dyad perspective to determine the utility of a SB health state in an affected 6-year-old child. Respondents were also asked to indicate the percentage of time traded from their life in relation to their child’s. Utility estimates were then calculated and compared using bivariate and multivariate analyses. RESULTS We obtained 503 responses (85% response rate). Mean respondent age was 34 (± 11); 247 (49%) were female; 386 (77%) were white; 189 (38%) were married, and 234 (46%) had children. Mean proportion of longevity traded by participants in the dyadic interaction was 66% (± 27) from the parent’s life. Only 51 respondents (9%) reported having “ample” prior knowledge of SB; 8 respondents (0.02%) had SB themselves. Few others had previous experience with SB or myelomeningocele either in a child (4, 1%), or friend/relative (28, 5%). Compared with a perfect health state of 1.0, we found mean utilities of 0.85 (± 0.20) for SB. CONCLUSIONS Utility estimation for SB is feasible through crowdsourcing, and the resultant values are similar to previous estimates using traditional techniques. Subjects view the SB health state to be inferior to perfect health.

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Section: Discussionsupporting

confidence: 92%

“…Estimating our survey would take 15 minutes to complete, we set our payment to $0.50. This is commensurate with the compensation rate for similar MTurk tasks [3]. …”

Section: Methodsmentioning

confidence: 52%

“…We aimed to estimate the utility score for a typical 6-year-old child with SB using a validated online platform [3,7]. We found this annual utility to be 0.85.…”

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Crowdsourcing utility estimation for spina bifida in the general population

Jiang

Inouye

Wang

et al. 2017

PRM

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Preference Elicitation Techniques Used in Valuing Children’s Health-Related Quality-of-Life: A Systematic Review

Bailey

Howell²,

Raghunandan³

et al. 2022

PharmacoEconomics

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Background and Objectives Valuing children’s health states for use in economic evaluations is globally relevant and is of particular relevance in jurisdictions where a cost-utility analysis is the preferred form of analysis for decision making. Despite this, the challenges with valuing child health mean that there are many remaining questions for debate about the approach to elicitation of values. The aim of this paper was to identify and describe the methods used to value children’s health states and the specific issues that arise in the use of these methods. Methods We conducted a systematic search of electronic databases to identify studies published in English since 1990 that used preference elicitation methods to value child and adolescent (under 18 years of age) health states. Eligibility criteria comprised valuation studies concerning both child-specific patient-reported outcome measures and child health states defined in other ways, and methodological studies of valuation approaches that may or may not have yielded a value set algorithm. Results A total of 77 eligible studies were identified from which data on country setting, aims, condition (general population or clinically specific), sample size, age of respondents, the perspective that participants were asked to adopt, source of values (respondents who completed the preference elicitation tasks) and methods questions asked were extracted. Extracted data were classified and evaluated using narrative synthesis methods. The studies were classified into three groups: (1) studies comparing elicitation methods ( n = 30); (2) studies comparing perspectives ( n = 23); and (3) studies where no comparisons were presented ( n = 26); selected studies could fall into more than one group. Overall, the studies varied considerably both in methods used and in reporting. The preference elicitation tasks included time trade-off, standard gamble, visual analogue scaling, rating/ranking, discrete choice experiments, best-worst scaling and willingness to pay elicited through a contingent valuation. Perspectives included adults’ considering the health states from their own perspective, adults taking the perspective of a child (own, other, hypothetical) and a child/adolescent taking their own or the perspective of another child. There was some evidence that children gave lower values for comparable health states than did adults that adopted their own perspective or adult/parents that adopted the perspective of children. Conclusions Differences in reporting limited the conclusions that can be formed about which methods are most suitable for eliciting preferences for children’s health and the influence of differing perspectives and values. Difficulties encountered in drawing conclusions from the data (such as lack of consensus and poor reporting making it difficult for users to choose and inter...

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Pediatric genitourinary disorders

Wiener¹,

Wang²

2023

Encyclopedia of Child and Adolescent Health

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Utility Estimation for Pediatric Vesicoureteral Reflux: Methodological Considerations Using an Online Survey Platform

Cited by 9 publications

References 27 publications

Crowdsourcing utility estimation for spina bifida in the general population

Crowdsourcing utility estimation for spina bifida in the general population

Preference Elicitation Techniques Used in Valuing Children’s Health-Related Quality-of-Life: A Systematic Review

Pediatric genitourinary disorders

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