Validación de la escala de convivencia con artrosis en la población española

Monroy, Alfonso Meneses; Rodríguez‐Blázquez, Carmen; Ursúa, M. Eugenia; Caparrós, Neus; Ocenda, Manuel Ignacio Ruiz de; López, Lidia M.; Caro, Jorge; Elizondo, Nerea; Ambrosio, Leire

doi:10.1016/j.aprim.2021.102044

Cited by 5 publications

(8 citation statements)

References 39 publications

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“…Similarly, weak or negligible correlations were identified between LwLTCs scale and clinical characteristics, such as patient impression of LTC severity or duration of LTCs. These findings were also identified in the Spanish-speaking validation study among multiple LTCs,19 such as DM2,37 PD,18 COPD,39 CHF40 or arthritis 41. Once again, this study corroborates the comprehensive approach needed when assessing the daily living of people with LTCs, focusing on the person and not the disease.…”

Section: Discussionsupporting

confidence: 77%

Psychometric properties of the living with long term conditions scale in an English-speaking population living with long term conditions in the UK

Ambrosio,

Hislop-Lennie,

Serrano-Fuentes

et al. 2024

BMJ Open

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ObjectiveTo present the psychometric properties of the living with long-term condition (LwLTCs) scale in an English-speaking population of people with different LTCs.DesignAn observational and cross-sectional study, with retest was conducted. Psychometric properties including feasibility, internal consistency, confirmatory factor analysis, reproducibility and content validity were tested.SettingThe study took place across the UK via primary care surgeries and voluntary organisations, between December 2021 and June 2022.ParticipantsThe study included 577 patients living with different LTCs, as chronic obstructive pulmonary disease, arthritis, chronic heart failure, Parkinson’s disease, chronic kidney disease and type 2 diabetes mellitus. Inclusion criteria included: (a) having been diagnosed with one or more of the conditions; (b) being able to read, understand and answer written questionnaires; (c) being fluent in English and (d) being able to provide written informed consent. Patients were involved in the design and pilot study of the scale.ResultsA total sample of 577 people with an age range of 37–97 years (98±9.65) were recruited. Internal consistency of the total 26-item LwLTCs scale score was excellent (ordinal alpha=0.90) but confirmatory factor analysis showed better fit indices (Normed Fit Index=0.96; standardised root mean square residual=0.051; Goodness of Fit Index=0.98) for a 20-item LwLTCs scale.ConclusionsA shorter version of the LwLTCs scale, with just 20 items and with excellent psychometric properties, is recommended. Having a short scale is key when considering the implementation of the scale in clinical practice to develop person-centred pathways and more comprehensive care plans.

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Section: Discussionsupporting

confidence: 77%

Psychometric properties of the living with long term conditions scale in an English-speaking population living with long term conditions in the UK

Ambrosio,

Hislop-Lennie,

Serrano-Fuentes

et al. 2024

BMJ Open

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“…To obtain the convenience sample of people living with COPD, HF, or T2DM from both countries, a minimum sample size of 260 people per pathology and country was established [ 29 ]. This sample size was calculated for a factory analysis process as part of the LW-CI scale validation [ 30 , 31 ]. In this sense, a total of 780 people per country were established, with a consecutive total sample size of 1560 people living with COPD, HF, and T2DM.…”

Section: Methodsmentioning

confidence: 99%

“…As explained previously in publications regarding LW-CI scale validation in different LTCs [ 30 , 31 ] for data collection, the principal researcher developed a detailed protocol indicating the steps of the study with the aim of reducing potential errors and heterogeneity in the process. This protocol was then sent to the responsible researcher of the centre that was undertaking the data collection.…”

Section: Methodsmentioning

confidence: 99%

“…Moreover, a meeting was organised to provide researchers an opportunity to ask questions and clarify doubts. Thus, before starting data collection, the principal investigator ensured that all researchers involved in this process understood the established steps [ 30 , 31 ].…”

Section: Methodsmentioning

confidence: 99%

“…All the researchers and centres of the study followed the detailed protocol for data collection: (1) healthcare professionals (nurses and physicians) approached all the potential participants giving initial oral information about the study, (2) interested people received an invitation letter and the participant information sheet with detailed written information, and (3) participants completed the questionnaires during the routine clinical visits. Although all the scales were self-reported, the researcher was available to resolve any doubts that could arise during their completion [ 30 , 31 ].…”

Section: Methodsmentioning

confidence: 99%

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The Determinants of Living with Long-Term Conditions: An International Cross-Sectional Study

Corchon

Rodríguez‐Blázquez

Meneses

et al. 2021

IJERPH

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It is essential that healthcare and social professionals understand the daily lives of people with chronic diseases, and the variables that influence them. The aim of this study was to identify the determinants influencing the process of living with long-term conditions. To investigate this, an observational, international, cross-sectional study was carried out. A consecutive sample of 1788 Spanish-speaking population living with chronic obstructive pulmonary disease, chronic heart failure and type 2 diabetes mellitus were included. Descriptive statistics and multiple linear regression models were performed. The linear regression models identified that social support (β = 0.39, p < 0.001) and the satisfaction with life (β = 0.37, p < 0.001) were the main determinants in the process of living with a long-term condition (49% of the variance). Age (β = −0.08, p = 0.01) and disease duration (β = 0.07, p = 0.01) were determinants only in the chronic heart failure subgroup, and country was significant in the chronic obstructive pulmonary disease subgroup (β = −0.15, p = 0.002). Satisfaction with life and social support were key determinants influencing the process of living with long-term conditions. As such, those aspects should be included in the design of interventions focused on the achievement of a positive living in people with long-term conditions.

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Living with long-term conditions: validation of a new instrument for family caregivers in a Spanish-speaking population

Marín-Maicas,

Ambrosio,

Corchon

et al. 2024

BMJ Open

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IntroductionOptimising the management of chronicity has been a global challenge for decades. Individuals with long-term conditions (LTCs) and their families live with them for years. Thus, it is necessary to include both of their perspectives in the management and adaptation of the interventions proposed. The psychometric properties of the living with LTCs scale from the perspective of the family caregiver are unknown. The objective of the present study is to describe the psychometric properties of the EC-PC-Fam in a Spanish-speaking population.MethodsAn observational, cross-sectional study was performed with a retest of part of the sample. The fit of the model was optimised with a factorial analysis, and the psychometric properties were verified.ResultsA sample of 311 caregivers was recruited. Most of them were women (68.2%) and had a mean age of 58.29±9.91 years (range: 32–84 years). The initial version did not obtain acceptable fit scores. To improve the fit, different versions were tested, refining the distribution of the items until optimisation was reached in V.10 (19 items). Cronbach’s alpha was 0.81 for the scale as a whole. The intraclass correlation coefficient was 0.77. The EC-PC-Fam scale is strongly and inversely correlated with a scale that measures the burden of the caregiver (rs=−0.46), and moderately related to the health-related quality of life (rs=0.373) and social support (rs=0.38).ConclusionsThe EC-PC-Fam scale from a family perspective is defined as a promising tool for promoting personalised care and for optimising the management of LTCs, and a new approach that includes family caregivers is proposed for clinical practice. The scale is an instrument with a moderate fit and optimum psychometric properties to measure living with LTCs from the perspective of a family caregiver. New validation studies are recommended to verify the fit of the proposed factorial solution.

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Validación de la escala de convivencia con artrosis en la población española

Cited by 5 publications

References 39 publications

Psychometric properties of the living with long term conditions scale in an English-speaking population living with long term conditions in the UK

Psychometric properties of the living with long term conditions scale in an English-speaking population living with long term conditions in the UK

The Determinants of Living with Long-Term Conditions: An International Cross-Sectional Study

Living with long-term conditions: validation of a new instrument for family caregivers in a Spanish-speaking population

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