Validación de la versión española del cuestionario revisado de calidad de vida para fibrosis quística en adolescentes y adultos (CFQR 14+ Spain)

Olveira, Gabriel; Olveira, Casilda; Gaspar, Inmaculada; Cruz, Ivette; Dorado, Antonio; Pérez-Ruíz, Estela; Porras, Nuria; Soriguer, Federico

doi:10.1016/j.arbres.2010.01.006

Cited by 26 publications

(24 citation statements)

References 26 publications

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“…One limitation of the present study is its small sample size, which precludes us from classifying our patients by age group. Previous studies have shown that older patients have worse scores on most of domains compared with younger patients 16 , 17 . In healthy children, symptoms related to the digestive domain occur more frequently amongst the youngest participants, and manifestations related to body image tend to increase with age 13 .…”

Section: Discussionmentioning

confidence: 85%

“…56.3±22, respectively, p =0.06). Other authors also observed significant differences in the CFQ-R domains according to disease severity as evaluated by lung function (FEV 1 or FVC) or clinical score (SKS) 10 , 16 , 32 .…”

Section: Discussionmentioning

confidence: 90%

“…The aforementioned German validation study found that well-nourished individuals exhibit higher weight, eating, and body image domain scores than those with BMIs below 19 17 . A Spanish-language CFQ-R validation study found correlations between BMI and the weight domain as well as between a fat-free mass index and the physical, vitality, body image, and eating domains 16 . One study assessing children and adolescents with an early diagnosis of CF through a new-born screening program found positive correlations amongst body weight, height, and BMI z-scores and the physical and body image domains.…”

Section: Discussionmentioning

confidence: 99%

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Quality of life amongst adolescents and young adults with cystic fibrosis: correlations with clinical outcomes

Gancz¹,

Cunha²,

Leone³

et al. 2018

Clinics

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OBJECTIVES:The current study sought to evaluate the quality of life of young patients with cystic fibrosis and correlate these results with the clinical parameters indicative of disease severity.METHODS:This cross-sectional study applied the validated Portuguese version of a cystic fibrosis specific quality of life questionnaire to clinically stable patients aged 14 to 21 years old. The correlations between the questionnaire domain scores and forced expiratory volume in one second (FEV1) values, the Shwachman-Kulczycki score, and body mass index were assessed, and correlations were considered as significant when p<0.05.RESULTS:A total of 31 patients (11 females; 16.4±2.3 years old) were evaluated, and the median scores on the questionnaire domains ranged from 66.7 to 100. A significant correlation was found between body mass index and the weight (r=0.43, p=0.016) and the eating questionnaire domains (r=0.44, p=0.013); between FEV1 and the physical (r=0.53, p=0.002) and treatment burden (r=0.41, p=0.023) domains; and between the Shwachman-Kulczycki score and the physical (r=0.39, p=0.03), health (r=0.41, p=0.023), and role (r=0.37, p=0.041) domains. A significant difference was found amongst patients with FEV1 values above or below 60% of the predicted value with regard to the role and health domains. No differences in the scores were found according to gender.CONCLUSIONS:The current cystic fibrosis specific quality of life questionnaire scores exhibited wide variability across all domains; however, they indicated a relatively satisfactory quality of life amongst the patients studied. Certain domains exhibited significant correlations with clinical parameters; thus, this instrument has consistent associations with clinical outcomes.

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Section: Discussionmentioning

confidence: 85%

Section: Discussionmentioning

confidence: 90%

Section: Discussionmentioning

confidence: 99%

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Quality of life amongst adolescents and young adults with cystic fibrosis: correlations with clinical outcomes

Gancz¹,

Cunha²,

Leone³

et al. 2018

Clinics

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“…El CFQ fue desarrollado inicialmente en Francia, posteriormente traducida y validada en su versión inglesa, ésta sufrió varias modicaciones convirtiéndose en su versión revisada, que ha sido traducida al castellano y validada transculturalmente para uso en la población hispanohablante de Estados (14) Unidos por Quittner et al . El grupo de Oliveira et (15) al. ha adaptado la escritura de algunos itemes sin cambiar el concepto de las preguntas, la versión final fue valorada por otros miembros de la Unidad de FQ del Hospital Regional Universitario Carlos Haya, Málaga, España, en relación a su comprensión y de 8 pacientes voluntarios que determinaron la idoneidad de la redacción.…”

Section: Instrumentounclassified

“…Las puntuaciones de cada dominio se calculan si se completan al menos 2/3 de las preguntas. No existe una puntuación total (15) del cuestionario que integre todos los dominios .…”

Section: Instrumentounclassified

Calidad de vida en adolescentes de 14 a 18 años con fibrosis quística en la Fundación de Fibrosis Quística, Paraguay.

Radice¹,

Radice²,

Radice³

et al. 2020

Pediatr (Asunción).

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Introducción: La fibrosis quística es una enfermedad crónica de relativa frecuencia, con repercusión en la calidad de vida de quienes la padecen. El objetivo de este estudio es analizar la calidad de vida de los adolescentes de 14 a 18 años con fibrosis quística, en la Fundación de Fibrosis Quística del Paraguay. Materiales y Métodos: El estudio se realizó en adolescentes 14 a 18 años, ambulatorios de la Fundación de Fibrosis Quística del Paraguay, que completaron en forma autoadministrada el cuestionario CFQ-R. Se aplicó un diseño observacional, descriptivo, prospectivo y de corte transversal. La carga, análisis y edición de los datos se realizó mediante el Scoring Program del CFQ-R. Resultado: La media de edad fue de 15 años y la desviación estándar de 1,52, con un 71,4% de mujeres y un 28,6% varones. El nivel de educación que predominó fue la media. El resultado respecto a los dominios según los aspectos generales, la puntuación media más alta correspondió a estado emocional, y la media con menor puntuación fue vitalidad, respecto a los dominios en los aspectos específicos, la puntuación media más alta correspondió a síntomas digestivos, y la media con menor puntuación fue carga del tratamiento. Conclusión: La menor puntuación correspondió a la vitalidad en el aspecto general y la de menor puntuación en los específicos fue la carga del tratamiento medición. Correspondencia: Cesar Radice Correo: cesarradice@hotmail.com Conflicto de interés: Los autores declaran no poseer conflicto de interés. Recibido: 02/09/2020 Aceptado: 25/09/2020

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Spanish adaptation and validation of the child‐ and parent‐report cystic fibrosis questionnaire‐revised (CFQ‐R)

Blanco‐Orive,

del Corral,

Martín‐Casas

et al. 2023

Pediatric Pulmonology

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ObjectiveTo evaluate the psychometric properties of the Spanish versions of the child‐ and parent‐report cystic fibrosis questionnaire‐revised (CFQ‐R).MethodsA Spanish adaptation of the CFQ‐R was performed; 68 children with CF (6−13 years) and their parents completed the child‐ and parent‐report CFQ‐R, respectively, and the Revidierter KINDer Lebensqualitätsfragebogen (KINDL) questionnaire. The CFQ‐R was completed twice, 7−10 days apart, and its psychometric properties were analyzed.ResultsThe internal consistency of both CFQ‐R versions was adequate (child‐report version, Cronbach's α >.60 for all domains except “Treatment Burden” [α = .42] and “Social Functioning” [α = .57]; parent‐report version, α > .60 for all domains except “Social Functioning” [α = .58]). For the child‐report version, the lowest measurement error was for “Emotional Functioning” (standard error of measurement [SEM]: 8.3%; minimal detectable change [MDC90]: 19.3%), and the highest was for “Body Image” (SEM: 15%; MDC90: 35%). For the parent‐report version, the lowest measurement error was for “Physical Functioning” (SEM: 7.1%; MDC90: 16.5%), and the highest was for “Weight” (SEM: 17.2%; MDC90; 40.1%). The correlation between the versions showed higher agreement for the domains related to observable signs (“Physical Functioning”) and lower agreement for “Emotional Functioning.” There was a significant correlation between the CFQ‐R and KINDL.ConclusionBoth the child‐ and parent‐report versions of the Spanish CFQ‐R have adequate reliability and validity for clinical and research purposes. These versions can be administered before and after starting modulator therapy to assess its effect on daily functioning. The MDC90 can help identify, with a high probability, whether real changes have occurred in the quality‐of‐life subscales in children with CF.

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Validación de la versión española del cuestionario revisado de calidad de vida para fibrosis quística en adolescentes y adultos (CFQR 14+ Spain)

Cited by 26 publications

References 26 publications

Quality of life amongst adolescents and young adults with cystic fibrosis: correlations with clinical outcomes

Quality of life amongst adolescents and young adults with cystic fibrosis: correlations with clinical outcomes

Calidad de vida en adolescentes de 14 a 18 años con fibrosis quística en la Fundación de Fibrosis Quística, Paraguay.

Spanish adaptation and validation of the child‐ and parent‐report cystic fibrosis questionnaire‐revised (CFQ‐R)

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