Validation of a cerebral palsy register

Trends in prevalence of cerebral palsy in children born with a birthweight of 2,500 g or over in Europe from 1980 to 1998

“…Obviously, data quality of the SCPE common database remains dependent on the quality of data provided by the contributing registers. Some of them have already shown the reliability of their data in previous studies, [27][28][29][30] and continuous data quality improvement work is being performed at the network level.…”

Prenatal Stress and Cerebral Palsy: A Nationwide Cohort Study in Denmark

“…We also had no data on some of the other potential risk factors, such as maternal infection, and intrapartum hypoxia, but these factors are not expected to be associated with the exposure of prenatal bereavement and will not confound the findings. One study has shown that the validity of CP diagnosis in the National Register of Hospital Discharge is high but some cases are misclassified (35). However, this misclassification is most likely nondeferential, which often bias the risk estimates toward unity.…”

Predictors for early diagnosis of cerebral palsy from national registry data

“…All examinations include developmental assessment and are publicly funded. The NCPR is a validated register covering all regions of Denmark that includes children diagnosed with congenital CP born since 1995 . The inclusion and the clinical information in the NCPR are based on five experienced child neurologists evaluating the case notes of the children at the age of 5 to 6 years.…”