Validation of a Diabetes-Specific Quality-of-Life Scale for Patients With Type 1 Diabetes

Bott, U.; Mühlhauser, Ingrid; Overmann, H.; Berger, Michael

doi:10.2337/diacare.21.5.757

Cited by 173 publications

(179 citation statements)

References 32 publications

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“…The DSQOLS is a reliable and valid measure of quality of life specific for people with type 1 diabetes 13 . It consists of 2 sections: the treatment satisfaction score and the quality of life score.…”

Section: Methodsmentioning

confidence: 99%

Predictors of quality of life gains among people with type 1 diabetes participating in the Dose Adjustment for Normal Eating (DAFNE) structured education programme

Byrne

Coffey

Hara

et al. 2012

Diabetes Research and Clinical Practice

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Aims: To examine predictors of quality of life gains among people with type 1 diabetes following DAFNE (Dose Adjustment for Normal Eating) self-management training programme.Methods: Clinical and questionnaire data were collected from 437 patients from 6 hospital centres before, and at 18 month post, DAFNE intervention. Glycated haemoglobin (HbA 1c ), weight and height, and blood pressure levels were recorded by clinicians during clinic appointments. Questionnaires included the Diabetes-Specific Quality of Life Scale (DSQOLS), the Problem Areas in Diabetes Scale (PAID) and the Hospital Anxiety and Depression Scale (HADS). Basic demographics were recorded at baseline. Linear mixed models were fitted to identify predictors of change in quality of life at 18 month follow up.Results: Those with high levels of diabetes-related distress experienced greatest improvement in DSQOLS quality of life scores (p=0.001). Those with poor glycaemic control (higher levels of HbA 1c ; p=0.03) and those with high levels of anxiety (p=0.001) experienced greatest reductions in diabetes-related distress.Conclusions: Those with higher baseline levels of anxiety, higher levels of diabetes-related distress and higher baseline levels of HbA 1c are most likely to experience quality of life gain from participation in self-management programmes like DAFNE.

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Section: Methodsmentioning

confidence: 99%

Predictors of quality of life gains among people with type 1 diabetes participating in the Dose Adjustment for Normal Eating (DAFNE) structured education programme

Byrne

Coffey

Hara

et al. 2012

Diabetes Research and Clinical Practice

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“…Three full measures and three sub-scales had sufficient face validity to be considered measures of DD:  PAID (Polonsky et al, 1995)  DDS (Polonsky et al, 2005)  Type I Diabetes Distress Scale (T1-DDS) (Fisher, Polonsky, et al, 2014;Fisher et al, 2015)  'Diabetes-specific Well-being' sub-scale of the Well-Being Questionnaire 28 (W-BQ28) (Bradley, 2000;Speight & Bradley, 2002;Speight, Khagram, & Davies, 2012)  'Burdens and Restrictions -Daily Hassles' sub-scale of the Diabetes-specific Quality of Life Scale (DSQoLs-R) (Bott, Muhlhauser, Overmann, & Berger, 1998;Cooke et al, 2013 (Rubin & Peyrot, 2010) captures only worry related to hypo-and hyperglycemia and long-term complications. Some Diabetes Symptom Checklist-Revised (DSC-R) sub-scales (Arbuckle et al, 2009;Grootenhuis, Snoek, Heine, & Bouter, 1994) capture the emotional distress associated with diabetes symptoms.…”

Section: Identification and Selection Of Measuresmentioning

confidence: 99%

What is diabetes distress and how can we measure it? A narrative review and conceptual model

Dennick

Sturt

Speight

2017

Journal of Diabetes and its Complications

134

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BackgroundDiabetes distress is the negative emotional impact of living with diabetes. It has tangible clinical importance, being associated with sub-optimal self-care and glycemic control. Diabetes distress has been operationalized in various ways and several measures exist. Measurement clarity is needed for both scientific and clinical reasons. ObjectivesTo clarify the conceptualization and operationalization of diabetes distress, identify and distinguish relevant measures, and evaluate their appropriateness for this purpose. ResultsThree measure were identified: Problem Areas in Diabetes (PAID) scale, Diabetes Distress Scale (DDS); Type I Diabetes Distress Scale (T1-DDS), Diabetes-specific Quality of Life Scale-Revised (DSQoLs-R) 'Burden and Restrictions -Daily Hassles' sub-scale, Well-being Questionnaire 28 (W-BQ 28) 'Diabetes Well-being' sub-scale, and Illness Perceptions Questionnaire -Revised (IPQ-R) 'Emotional Representations' sub-scale. Across these measures a broad spectrum of diabetes distress is captured, including distress associated with treatment regimen, food/eating, future/complications, hypoglycemia, social/interpersonal relationships, and healthcare professionals. No single measure appears fully comprehensive. Limited detail is reported of the qualitative work informing scale design, raising concerns about content validity. ConclusionsAcross the available measures diabetes distress is seemingly comprehensively assessed and measures should be considered in terms of their focus and scope to ensure the foci of interventions are appropriately targeted.

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“…Improved quality of life has also been demonstrated after intensification of insulin regimens, an effect attributed to patients' greater perceived flexibility in physical activities and diet (99). Quality of life is adversely affected by the presence of comorbid psychiatric disorders and health complications (71,100), as well as physical complaints and worries about the future (95). In addition, research has shown that quality of life is diminished when diabetes-specific health behaviors are associated with a sense of burden (101).…”

Section: Significancementioning

confidence: 99%

“…Quality of life. Diabetes-related quality of life can be reliably measured (95)(96)(97). Studies have shown that quality of life in adults with diabetes is positively affected by increased physical activity and adequate social support (98).…”

Section: Significancementioning

confidence: 99%

Psychosocial Therapies in Diabetes

et al. 2001

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OBJECTIVE -To review key advances in the behavioral science literature related to psychosocial issues and therapies for persons with diabetes, to discuss barriers to research progress, and to make recommendations for future research.RESEARCH DESIGN AND METHODS -Key findings from the literature on psychosocial research in diabetes are reviewed separately for children and adults. Specific issues covered include psychosocial adjustment and psychiatric disorders, neurocognitive functioning, quality of life, and psychosocial therapies. Barriers that must be addressed to allow research in this area to progress are discussed. Recommendations are then made concerning high-priority areas for advancing research in the field.CONCLUSIONS -A substantial amount of behavioral science research has demonstrated that psychosocial factors play an integral role in the management of diabetes in both children and adults. Research has also shown the efficacy of a number of psychosocial therapies that can improve regimen adherence, glycemic control, psychosocial functioning, and quality of life. More research in this area is needed to develop psychosocial intervention programs for specific patient populations and to demonstrate the cost-effectiveness of these approaches. Diabetes Care 24:1286 -1292, 2001T his study presents the summary and recommendations of the Psychosocial Therapies Working Group, originally presented at the conference on Behavioral Science Research in Diabetes, held in November 1999, at the National Institutes of Health. In this study, we first highlight the significance of psychosocial issues in diabetes care and key advances in the field separately for children, adolescents, and adults. This review of the literature in this area is not intended to be detailed and comprehensive; several other literature reviews of behavioral and psychosocial research in diabetes have been published in recent years (1-4). Our objective is to provide examples of key findings from the field of behavioral research addressing psychosocial issues and therapies. We then discuss barriers to research progress and conclude with specific recommendations for future research. CHILDREN AND ADOLESCENTS SignificanceThe incidence of type 1 diabetes in young children has increased in recent years (5,6). In addition, the incidence of type 2 diabetes has been increasingly recognized in older children and adolescents, often in association with obesity (7). Large numbers of children are currently affected by diabetes, and many more will be affected by diabetes in the future.Diabetes imposes considerable demands on children and their families. Because they are coping with normal developmental challenges, the additional burden of diabetes may be difficult for many children to deal with effectively. Especially burdensome may be the demands of intensive management. With children as patients, families play a significant role in diabetes management and are instrumental in the implementation of interventions. Diabetes can adversely affect both psychosocial and...

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Validation of a Diabetes-Specific Quality-of-Life Scale for Patients With Type 1 Diabetes

Cited by 173 publications

References 32 publications

Predictors of quality of life gains among people with type 1 diabetes participating in the Dose Adjustment for Normal Eating (DAFNE) structured education programme

Predictors of quality of life gains among people with type 1 diabetes participating in the Dose Adjustment for Normal Eating (DAFNE) structured education programme

What is diabetes distress and how can we measure it? A narrative review and conceptual model

Psychosocial Therapies in Diabetes

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