Validation of an Instrument to Measure Family Engagement in Acute Cardiac Care

Hallot, Sophie; Debay, Vanessa; Debigaré, Sylvie; Foster, Nadine E; Soboleva, Nataliya; Burns, Karen E. A.; Goldfarb, Michael

doi:10.1016/j.cjco.2022.11.021

Cited by 3 publications

(2 citation statements)

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“…The FAME questionnaire comprises 12 items and includes the domains testing family presence, communication/education, decision-making, care contribution, and family needs. FAME has been validated in an acute care context [ 11 ]. We collected the following sociodemographic information for each participant: age, gender, relationship to the patient, race/ethnicity, living status (living with or not living with the patient), and highest level of education achieved.…”

Section: Methodsmentioning

confidence: 99%

“…Subsequently, we contacted participating family members within two weeks following hospital discharge by phone or email to complete the Family Satisfaction in the Intensive Care Unit (FS-ICU) instrument. The FS-ICU instrument is a validated and widely used tool to assess family satisfaction with care in both the intensive care and acute care unit settings [ 11 , 12 ]. The tool consists of 24 questions with items pertaining to patient- and family-centered care.…”

Section: Methodsmentioning

confidence: 99%

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Development and initial validation of a family activation measure for acute care

Hallot,

Debay,

Foster

et al. 2024

PLoS ONE

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Background Activation of a family member refers to their desire, knowledge, confidence, and skills that can inform engagement in healthcare. Family activation combined with opportunity can lead to engagement in care. No tool currently exists to measure family activation in acute care. Therefore, we aimed to develop and validate a tool to measure family activation in acute care. Methods An interdisciplinary team of content experts developed the FAMily Activation Measure (FAM-Activate) through an iterative process. The FAM-Activate tool is a 4-item questionnaire with 5 Likert-type response options (ranging from strongly agree to strongly disagree). Scale scores are converted to a 0–100 point scoring range so that higher FAM-Activate scores indicate increased family activation. An overall FAM-Activate score (range 0–100) is calculated by adding the scores for each item and dividing by 4. We conducted reliability and predictive validity assessments to validate the instrument by administering the FAM-Activate tool to family members of patients in an acute cardiac unit at a tertiary care hospital. We obtained preliminary estimates of family engagement and satisfaction with care. Results We surveyed 124 family participants (age 54.1±14.4; 73% women; 34% non-white). Participants were predominantly the adult child (38%) or spouse/partner (36%) of patients. The mean FAM-Activate score during hospitalization was 84.1±16.1. FAM-Activate had acceptable internal consistency (Cronbach’s a = 0.74) and showed test-retest responsiveness. FAM-Activate was moderately correlated with engagement behavior (Pearson’s correlation r = 0.47, P <0.0001). The FAM-Activate score was an independent predictor of family satisfaction, after adjusting for age, gender, relationship, and living status. Conclusion The FAM-Activate tool was reliable and had predictive validity in the acute cardiac population. Further research is needed to explore whether improving family activation can lead to improved family engagement in care.

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%