Validation of the English Basal and Squamous Cell Carcinoma Quality of Life (BaSQoL) Questionnaire

Yu, Wesley Y.; Waalboer-Spuij, Rick; Bremer, Rebecca; Lu, Brian; Aroyan, Christine; Crow, Lauren; Grekin, Roy C.; Neuhaus, Isaac M.; Yu, Siegrid S.; Arron, Sarah T.; Hollestein, Loes

doi:10.1097/dss.0000000000002046

Cited by 9 publications

(13 citation statements)

References 12 publications

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“…Also, non-utility based measures such as the DLQI may be more suitable for chronic, benign skin conditions such as eczema than NMSC as the instrument is sensitive to changes in level of discomfort related to itchiness and irritation, but not to treatment-related scarring or disfigurement nor to patient anxiety about recurrence. [63][64][65][66][67][68] However, instruments that have not yet been mapped to utility values, such as Skindex-16, 17 the Skin Cancer Index, 69 and BaSQoL, which are NMSC-specific and include measures of sun protective behaviours after skin cancer diagnosis and worries about treatment, 18 may also yield further insights into quality of life when compared to generic tools, such as EQ-5D, where subtleties of the quality of life experience may be lost. 35 One of the key advantages of generic tools is the transferability of results to health economics studies.…”

Section: Limitationsmentioning

confidence: 99%

“…Ascertaining health‐related quality of life (HRQoL) is important to evaluate patient perspectives of benefits and harms of detection and treatment, which may include scarring, pain, post‐operative complications and worry 15 . The domains of HRQoL are usually measured by generic instruments such as the EuroQol 5‐dimension instrument 16 (EQ‐5D), or dermatology‐specific instruments, such as Skindex, 17 the Basal and Squamous Cell Carcinoma QoL (BaSQoL) questionnaire, 18 and the Dermatology Life Quality Index (DLQI) 19 . As a component of assessing HRQoL, it is often useful to generate a single preference‐based value, called a health utility, combining all aspects of a health state that is measured on a scale from 0 (corresponding to death) to 1 (best possible health).…”

Section: Introductionmentioning

confidence: 99%

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Health utilities for non‐melanoma skin cancers and pre‐cancerous lesions: A systematic review

Cust

Gordon

et al. 2021

Skin Health and Disease

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Background: Non-melanoma skin cancers (NMSCs) are common and consume many healthcare resources. A health utility is a single preferencebased value for assessing health-related quality of life, which can be used in economic evaluations. There are scarce data on health utilities for NMSCs. Objectives: Using a systematic review approach, we synthesized the current data on NMSC-related health utilities. Methods: A systematic review of studies of NMSC-related health utilities was conducted in Medline, Embase, and Cochrane databases. Data were extracted based on the protocol and a quality assessment was performed for each study. Results: The protocol resulted in 16 studies, involving 121 621 participants. Mean utility values across the studies ranged from 0.56 to 1 for undifferentiated NMSC, 0.84 to 1 for actinic keratosis, 0.45 to 1 for squamous cell carcinoma, and 0.67 to 1 for basal cell carcinoma. There was considerable variability in utilities by type of cancer, stage of diagnosis, time to treatment, treatment modality, and quality of life instrument or method. Utility values were predominantly based on the EuroQol 5-dimension instrument and ranged from 0.45 to 0.96, while other measurement methods produced values ranging from 0.67 to 1. Lower utility values were observed for advanced cancers and for the time period during and immediately after treatment, after which values gradually returned to pre-treatment levels. Conclusions: Most utility values clustered around relatively high values of 0.8 to 1, suggesting small decrements in quality of life associated with most NMSCs and their precursors. Variability in utilities indicates that careful characterization is required for measures to be used in economic evaluations.This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.

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Section: Limitationsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Health utilities for non‐melanoma skin cancers and pre‐cancerous lesions: A systematic review

Cust

Gordon

et al. 2021

Skin Health and Disease

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“…The Basal and Squamous Cell Carcinoma Quality of Life (BaSQoL) questionnaire was recently validated 54 , 55 following rigorous development and refinement using IRT analysis. The BaSQoL has five subscales: worries, appearance, behaviour, diagnosis and treatment, and other people.…”

Section: Discussionmentioning

confidence: 99%

A structured review of quality of life in advanced and high‐risk cutaneous squamous cell carcinoma shows the need for more studies and better measures

Starkings

Shilling

Jenkins

et al. 2021

Skin Health and Disease

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Background: Cutaneous squamous cell carcinoma (cSCC) accounts for nearly a quarter of non-melanoma skin cancers. Studies reporting Quality of Life (QoL) in this group focus on early stage disease. A small proportion of cSCC patients have high-risk or advanced disease, with potentially significant QoL impacts, yet are largely overlooked. Aims: This structured review appraises measures and published QoL outcomes in this group. Materials & Methods: We conducted searches in MEDLINE, EMBASE, CINAHLplus and PsycInfo in June 2020 (updated in October) to identify publications specifically reporting QoL outcomes in this cohort. Returns were reviewed against a strict set of eligibility criteria. Results: We identified seven publications for inclusion; three relating to high-risk cSCC, three to metastatic disease and one to unresectable disease. Publications were appraised for quality using the Mixed Methods Appraisal Tool. Only one fulfilled more than two of the five quality criteria. Studies employed a range of patient reported outcome measures to assess QoL, both generic and disease specific. Discussion: All studies with multiple time-points reported stable or improving QoL, however extrapolation of these findings to the cSCC population is not warranted due to study limitations including mixed populations, incomplete data sets or single measurements. We set out to review the QoL literature for high-risk and advanced cSCC and found a small and disparate body of evidence. Studies varied significantly in terms of study population, design and quality. While the identified studies suggested stable or improving QoL, we question the choice of measures used and highlight the need for further work in this area. Conclusion:While there are some published reports about quality of life for patients with early stage cutaneous squamous cell carcinoma, these impacts for the high-risk or advanced cohort are largely unexplored. We conducted a structured review of published measures and outcomes used in this cohort and found a demonstrable need for further, targeted, exploration of patient needs in this area.This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.

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“…Psychological and social domains are also affected. The Basal and Squamous Cell Carcinoma Quality of Life is a recently developed questionnaire that encompasses five subscales, scored from 0 to 3, with higher scores representing worse HRQoL (132). It can be used in future clinical trials for comparison of different cancer treatment modalities.…”

Section: Oral Squamous Cell Carcinomamentioning

confidence: 99%

Systemic Diseases with Oral Manifestations and Their Impact on Health-Related Quality of Life

Vujović

Desnica

Stanišić

et al. 2022

Experimental and Applied Biomedical Research (EABR)

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Health-related quality of life is a multidimensional concept established to evaluate the physical, psychological, and social impacts of health conditions on individuals’ well-being. Various tools for measuring health-related quality of life can be categorized into two subsets: generic and disease–specific instruments. The oral cavity can be stricken by a broad range of local and systemic diseases and their systemic treatment modalities. The most common systemic illnesses associated with oral lesions are hematologic disorders, endocrinopathies, neurological disorders, gastrointestinal conditions, mucocutaneous and rheumatic diseases, and neoplastic processes. Their manifestations in the oral cavity are, in most cases, rather nonspecific but should not be overlooked. Oral health is one of the most important parts of overall health, thus it has been proposed that poor oral health may affect health–related quality of life. The presence of oral manifestations of systemic diseases has a negative impact on the daily functioning of patients, decreasing their overall well-being. This article will review the most common systemic diseases with oral manifestations and their impact on the health–related quality of life. Oral health researchers should put a stronger emphasis on the patient-reported quality of life as a primary outcome in future clinical trials. The significance of this area has still not been widely understood in the current dental literature even though it could help improve patients’ health-related quality of life.

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Validation of the English Basal and Squamous Cell Carcinoma Quality of Life (BaSQoL) Questionnaire

Cited by 9 publications

References 12 publications

Health utilities for non‐melanoma skin cancers and pre‐cancerous lesions: A systematic review

Health utilities for non‐melanoma skin cancers and pre‐cancerous lesions: A systematic review

A structured review of quality of life in advanced and high‐risk cutaneous squamous cell carcinoma shows the need for more studies and better measures

Systemic Diseases with Oral Manifestations and Their Impact on Health-Related Quality of Life

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