Validation of the French Version of the Edmonton Symptom Assessment System

Pautex, Sophie; Vayne-Bossert, Petra; Bernard, Mathieu; Beauverd, Michel; Cantin, Boris; Mazzocato, Claudia; Thollet, Catherine; Bollondi-Pauly, Catherine; Ducloux, Dominique; Herrmann, Françoís; Escher, Monica

doi:10.1016/j.jpainsymman.2017.07.032

Cited by 12 publications

(7 citation statements)

References 28 publications

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“… a Quality of Life at the End of Life: QUAL-E [25] b Edmonton Symptom Assessment: ESAS [26] c Support Team Assessment Schedule: STAS [27] d EORTC Quality of Life of Palliative Cancer Patients: EORTC QLQ-C15-PAL [28] e McGill Quality of Life Questionnaire-Revised: MQOL-R [29] f M. D. Anderson Symptom Inventory: MDASI [30]…”

Section: Results: Findings and Challenges From The French Translationmentioning

confidence: 99%

Challenges in a six-phase process of questionnaire adaptation: findings from the French translation of the Integrated Palliative care Outcome Scale

Sterie

Bernard

2019

BMC Palliat Care

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Background The Integrated Palliative care Outcome Scale (IPOS) was developed for evaluating essential outcomes for palliative care patients. Our objectives here are to describe the process of a six-phase cross-cultural adaptation of IPOS to French (IPOS-Fr), highlight the difficulties encountered and strategies to solve them, and discuss the implications that adaptation may have on the validity and reliability of a questionnaire. Methods The adaptation of IPOS consisted of six phases: (i) literature review and interviews with target population; (ii) forward translation to French; (iii) backward translation to English; (iv) Expert Review; (v) cognitive interviews with target population; (vi) final review. Results Translation, cognitive interviews, and exchanges with Expert Review members allowed to make changes adapted to the target language regarding item 5 (“vomiting”) and 8 (“sore or dry mouth”), and to identify and address, in the original version of IPOS, syntactic inconsistencies in language used in items 11 to 15 and methodological problems with items 11 (“anxiety about treatment and illness”), 15 (“share … as much as you wanted”) and 17 (“problems addressed”). The adaptation also indicated that patients might have difficulties in interpreting items 8 (“sore or dry mouth”), 10 (“poor mobility”), 11 (“anxiety”), 12 (projected feelings of family and friends), and 14 (“feeling at peace”), thus indicating the need of monitoring during the psychometric validation. Conclusions Following this process, IPOS-Fr has proved content and face validity. In our case, the adaptation allowed adjustments to be made to the questionnaire and, when this was not possible, highlighted potential biases and inconsistencies during the validation. The result relied on an intertwined and iterative process of seeking and reaching semantic, conceptual, and normative equivalence. We are now assessing the psychometrical properties of IPOS-Fr.

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Section: Results: Findings and Challenges From The French Translationmentioning

confidence: 99%

Challenges in a six-phase process of questionnaire adaptation: findings from the French translation of the Integrated Palliative care Outcome Scale

Sterie

Bernard

2019

BMC Palliat Care

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“…Assessment of distressing symptoms was performed using a modified Edmonton Symptom Assessment Scale (ESAS) 19. For the purpose of this study, we excluded the assessment of symptoms that had already been shown not to be conducive to art therapy: emesis, drowsiness, lack of appetite and breathlessness.…”

Section: Methodsmentioning

confidence: 99%

Art therapy and social function in palliative care patients: a mixed-method pilot study

Lefevre

Economos

Tricou

et al. 2020

BMJ Support Palliat Care

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ObjectivesTo evaluate the influence of art therapy in reducing palliative symptoms, on social availability and on perceptions of aesthetics in hospitalised palliative care patients. The secondary objective was to evaluate its influence on bereaved families.MethodsA mixed-method quasi-experimental before and after study comprising a follow-up postal survey of bereaved families. All patients who were keen to have art therapy sessions were eligible. We used patient-reported outcome scales 5 min before and after the session. The Edmonton Symptom Assessment Scale has been used for pain, anxiety, well-being, fatigue and depression. Ten-point visual analogue scales were used for social availability, lack of desire and wishes, and perceptions of aesthetics based on the Beautiful–Well–Good model. A postal survey was sent to bereaved families. Correlations and data mining analyses were performed.ResultsIn all, 24 patients were recruited for a total of 53 art therapy sessions analysed. Seven families completed the survey. Art therapy significantly reduced the assessed symptoms and overall symptom distress by 54.4% (p <0.001, d = 1.08). It also decreased the feeling of social unavailability (−59%, d = 0.67) and the lack of desire and wishes (−60%, d=0.86). The analysis of the family questionnaires indicates the positive effects regarding support, artwork and feelings during illness and grief.ConclusionOur results suggest an overall improvement in the symptoms experienced and social functioning of palliative patients. Based on our findings, we propose a model for the potential mechanism of action of art therapy.

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“…This instrument was the one with the most representation in terms of number of studies, 15 in total (Carvajal et al, 2011; Carvajal et al, 2013; Chinda et al, 2011; Claessens et al, 2011; Gretarsdottir et al, 2016; Hannon et al, 2015; Kwon et al, 2013; Mori et al, 2018; Nekolaichuk et al, 2017; Paiva et al, 2015; Pautex et al, 2017; Philip et al, 1998; Sprague et al, 2018; Tricou et al, 2019; Yokomichi et al, 2015). All the psychometric properties were measured, except for measurement error and criterion validity.…”

Section: Psychometric Propertiesmentioning

confidence: 99%

“…In the initial Rasch model, a person separation index of =0.77 was shown, which indicated a satisfactory reliability, but the general fit of the model was poor (X2 = 155.41; p < 0.01) and all the elements showed disordered thresholds (Sprague et al, 2018). Internal consistency was rated as ‘inadequate’ or ‘very good’ for all the studies where it was present (Carvajal et al, 2011, 2013; Chinda et al, 2011; Gretarsdottir et al, 2016; Hannon et al, 2015; Kwon et al, 2013; Mori et al, 2018; Paiva et al, 2015; Pautex et al, 2017; Yokomichi et al, 2015) and obtained values for Cronbach's alpha >0.70 in all of them. The psychometric reliability property was rated as ‘doubtful’ or ‘very good’ for all the studies where it was evaluated.…”

Section: Psychometric Propertiesmentioning

confidence: 99%

“…The psychometric reliability property was rated as ‘doubtful’ or ‘very good’ for all the studies where it was evaluated. The hypotheses testing was rated as ‘adequate’ or ‘very good’ (Carvajal et al, 2011, 2013; Claessens et al, 2011; Gretarsdottir et al, 2016; Hannon et al, 2015; Kwon et al, 2013; Mori et al, 2018; Paiva et al, 2015; Pautex et al, 2017; Philip et al, 1998; Sprague et al, 2018; Yokomichi et al, 2015). The results about this psychometric property of each study are showed in Table 3.…”

Section: Psychometric Propertiesmentioning

confidence: 99%

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Cancer‐related fatigue measures in palliative care: A psychometric systematic review

Montagut-Martínez

Pérez-Cruzado

Sánchez

2022

European J Cancer Care

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Introduction: In palliative care, the prevention and relief of fatigue are regarded as crucial goals in patients with cancer. Methods: A systematic review was carried out according to the COnsensus-based Standards for the selection of health status Measurement INstruments methodology. Searches were conducted in Medline (through PubMed), Web of Science, Open Gray, Scielo, Cochrane, CINAHL and EMBASE. All instruments found in each study were assessed using the COnsensus-based Standards for the selection of health status Measurement INstruments checklist and Grading of Recommendations, Assessment, Development and Evaluation approach. Results: A total of 5598 articles were identified in the different databases. In total, 57 studies describing 19 instruments were included in this study. The main properties evaluated were internal consistency, cross-cultural validity, hypotheses testing and responsiveness. All studies were evaluated with the Strobe scale with a score greater than 6 points. Conclusions: According to the quality methodological results, Edmonton Symptom Assessment System, Problems and Needs in Palliative Care Questionnaire, European Organisation for Research and Treatment of Cancer Quality of Life 15-item Questionnaire for Palliative Care and Palliative Care Quality of Life Instrument are the recommended instruments used for assessing cancer-related fatigue in palliative care.

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Validation of the French Version of the Edmonton Symptom Assessment System

Abstract: The F-ESAS is a valid and reliable tool for measuring multidimensional symptoms in French-speaking patients with an advanced cancer. All forms of F-ESAS performed well with a trend for better psychometric performance for F-ESAS-NU, but patients preferred the F-ESAS-VE.

Cited by 12 publications

References 28 publications

Challenges in a six-phase process of questionnaire adaptation: findings from the French translation of the Integrated Palliative care Outcome Scale

Challenges in a six-phase process of questionnaire adaptation: findings from the French translation of the Integrated Palliative care Outcome Scale

Art therapy and social function in palliative care patients: a mixed-method pilot study

Cancer‐related fatigue measures in palliative care: A psychometric systematic review

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