2024
DOI: 10.21203/rs.3.rs-4534055/v1
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Validation of the FROM-16 in Family Members of Patients Receiving Advanced Therapy Medicinal Product (ATMP)

Charles Brilliant,
Andrew Finlay,
Sam Salek
et al.

Abstract: Purpose: Outcome-based pricing models which consider domains of value not previously considered in healthcare, such as societal outcomes, are of increasing interest for healthcare systems. Societal outcomes can include family-reported outcome measures (FROMs), which measure the impact of disease upon the patient’s family members. The FROM-16 is a generic and easy-to-use family quality of life tool, but it has never been used in the context of patients undergoing advanced therapy medicinal product (ATMP) treatm… Show more

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