Validation of two simple patient-centered outcome measures for virtual monitoring of patients with idiopathic inflammatory myositis

Naveen, R; Thakare, D.; Agarwal, Vikas; Aggarwal, Rohit; Gupta, Latika

doi:10.1007/s10067-021-05990-3

Cited by 11 publications

(6 citation statements)

References 25 publications

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“…The final study examined the utility of a self‐assessment of myositis activity; the arm lift test for idiopathic inflammatory myopathy (IIM) was a reliable and valid PRO measure with a moderate to strong correlation to standard myositis core set measures and could be feasibly conducted during a telehealth visit 29 . In summary, small studies in single centers with short follow‐up periods of three months to one year suggest that telemedicine follow‐up does not lead to worse outcomes compared to F2F visits and either improve PROs or provide effective triage of patients with reduced or more efficient health care utilization.…”

Section: Resultsmentioning

confidence: 99%

“…Most of the studies reported using familiar outcome measures, indicating that standard clinical care measures could be used successfully for telehealth. Additionally, a new and reliable PRO measure for IIM was reported 29 . PROs are an essential part of telehealth, and, as a recent systematic review has shown, 46 they are increasingly used in studies particularly around QoL.…”

Section: Discussionmentioning

confidence: 99%

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Home‐Based Telemedicine in Rheumatology—A Scoping Review

Venuturupalli,

Peck,

Jinka

et al. 2024

ACR Open Rheumatology

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ObjectiveWe performed a scoping review of the relevant literature on home‐based telehealth in rheumatology to understand its appropriate application in rheumatology practice.MethodsWe searched the Cochrane Library, PubMed, Web of Science, and scientific meeting abstracts to identify articles that specifically addressed telehealth suitability, barriers to telehealth, patient‐reported outcomes (PROs) collected in telehealth settings, and telehealth satisfaction. From the initial search of 4,882 studies, 23 reports were included. In addition, 10 abstracts were also eligible for analysis, resulting in a total of 33 articles: 2 randomized clinical trials, 9 prospective cohort studies, and 22 retrospective studies.ResultsWe found that triage appointments or predictive models could be helpful in selecting patients for telehealth and that telehealth interventions were appropriate for follow‐up of patients with systemic lupus erythematosus and inflammatory arthritis, but that conducting new patient visits over telehealth was not ideal. Barriers to telehealth include patient factors (age, technology access) and need for physician/process factors (eg, physical examinations). PROs collected in regular practice can be incorporated into telehealth. Several small, single‐center studies suggest that telehealth does not lead to negative outcomes compared with in‐person visits, and overall, patients report high patient satisfaction with telehealth. In several scenarios, home‐based telehealth was equivalent to in‐person visits with regard to patient outcomes and satisfaction.ConclusionThe widespread potential of telehealth to manage and deliver care for people with rheumatic disease is significant. As such, further research in the form of randomized controlled trials can help contribute to growing evidence that shapes telehealth implementation for patients with rheumatic diseases.

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Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Home‐Based Telemedicine in Rheumatology—A Scoping Review

Venuturupalli,

Peck,

Jinka

et al. 2024

ACR Open Rheumatology

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“…DHTs supported reducing strain on health care resources in 3 ways. First, DHTs were shown to facilitate remote monitoring of patients’ health status [ 39 , 50 , 66 , 69 ]; for example, the COVID-19 symptom monitoring system designed by Lim et al [ 50 ] monitored patient stability, connected health care professionals and patients via teleconsultations, and alerted patients and health care professionals to changes in, and worsening of, symptoms. Most of the patients were thereby enabled to recover at home rather than needing to be hospitalized, reducing unnecessary use of health care resources and simultaneously supporting patient preference.…”

Section: Resultsmentioning

confidence: 99%

“…Communicating about health and care: telemedicine and teleconsultation platforms (telephone, SMS text messaging, and video) [35][36][37][38][39][40][41][42] and appointment reminders [36] • Health and care diaries: mobile apps to track and record users' health information for self-monitoring [43,44] • Promoting good health: internet-based health information [45,46] and nonpersonalized health education via SMS text messaging [47,48] Tier C…”

mentioning

confidence: 99%

Lessons for Vietnam on the Use of Digital Technologies to Support Patient-Centered Care in Low- and Middle-Income Countries in the Asia-Pacific Region: Scoping Review

Kosowicz¹,

Tran²,

Toàn³

et al. 2023

J Med Internet Res

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Background A rapidly aging population, a shifting disease burden and the ongoing threat of infectious disease outbreaks pose major concerns for Vietnam’s health care system. Health disparities are evident in many parts of the country, especially in rural areas, and the population faces inequitable access to patient-centered health care. Vietnam must therefore explore and implement advanced solutions to the provision of patient-centered care, with a view to reducing pressures on the health care system simultaneously. The use of digital health technologies (DHTs) may be one of these solutions. Objective This study aimed to identify the application of DHTs to support the provision of patient-centered care in low- and middle-income countries in the Asia-Pacific region (APR) and to draw lessons for Vietnam. Methods A scoping review was undertaken. Systematic searches of 7 databases were conducted in January 2022 to identify publications on DHTs and patient-centered care in the APR. Thematic analysis was conducted, and DHTs were classified using the National Institute for Health and Care Excellence evidence standards framework for DHTs (tiers A, B, and C). Reporting was in line with the PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews) guidelines. Results Of the 264 publications identified, 45 (17%) met the inclusion criteria. The majority of the DHTs were classified as tier C (15/33, 45%), followed by tier B (14/33, 42%) and tier A (4/33, 12%). At an individual level, DHTs increased accessibility of health care and health-related information, supported individuals in self-management, and led to improvements in clinical and quality-of-life outcomes. At a systems level, DHTs supported patient-centered outcomes by increasing efficiency, reducing strain on health care resources, and supporting patient-centered clinical practice. The most frequently reported enablers for the use of DHTs for patient-centered care included alignment of DHTs with users’ individual needs, ease of use, availability of direct support from health care professionals, provision of technical support as well as user education and training, appropriate governance of privacy and security, and cross-sectorial collaboration. Common barriers included low user literacy and digital literacy, limited user access to DHT infrastructure, and a lack of policies and protocols to guide the implementation and use of DHTs. Conclusions The use of DHTs is a viable option to increase equitable access to quality, patient-centered care across Vietnam and simultaneously reduce pressures on the health care system. Vietnam can take advantage of the lessons learned by other low- and middle-income countries in the APR when developing a national road map to digital health transformation. Recommendations that Vietnamese policy makers may consider include emphasizing stakeholder engagement, strengthening digital literacy, supporting the improvement of DHT infrastructure, increasing cross-sectorial collaboration, strengthening governance of cybersecurity, and leading the way in DHT uptake.

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“…Baseline characteristics were retrieved from the MyoCite registry and biobank archive [ 2 ]. PROMIS-10a, a validated self-report tool [ 3 , 4 ], was used to quantify physical function [ 5 ]. Age and gender similar healthy controls (HC) were included for comparison.…”

mentioning

confidence: 99%