Validity and Reliability of the Turkish Version of the Multiple Sclerosis- Related Symptom Checklist

Tülek, Zeliha; Polat, Cansu; Kürtüncü, Murat; Eraksoy, Mefküre

doi:10.5152/npa.2016.16976

Cited by 8 publications

(1 citation statement)

References 41 publications

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“…20 The Turkish validity and reliability study of the scale was conducted by Tülek et al (2017) and the Cronbach alpha coefficient was reported as 0.89. 21 The scale has been used to define the symptoms and the frequency of the symptoms experienced by PwMS and is composed of 26 items and 5 sub-items including motor (7 items), brain stem (4 items), sensory (4 items), neuropsychiatric (3 items) and elimination (6 items), in addition to 2 independent items (fatigue, insomnia). The score of the scale range between 0 and 130, and higher scores indicate a higher symptom burden.…”

Section: Multiple Sclerosis-related Symptom Checklistmentioning

confidence: 99%

Relationship between stigma and symptom burden in patients with multiple sclerosis

Yeni¹,

Özdelikara²,

Terzı³

2023

NeuroAsia

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Background & Objective: Patients with multiple sclerosis (PwMS) may experience discrimination and stigma. The aim of this study was to examine the relationship between stigma and the symptom burden in PwMS. Methods: This cross-sectional descriptive study was conducted between June 2020 and September 2021 on MS patients enrolled in the neurology outpatient clinic of a university hospital in Turkiye. Multiple Sclerosis-Related Symptom Checklist and Neuroquality of Life (Neuro-QoL)-Stigma Scale were used to collect data. Results: The mean age of the 195 study patients was 37.5 (± 9.7) years and 67.2% were female. One-fourth of the patients (26.2%) had a primary education level, and the unemployment rate was 9.7%. The patients reported that their private life (issues such as getting married, having boyfriend/girlfriend or problems in marital life) was affected the most (23.6%) by MS. The mean stigma burden scale scores of the patients were 37.9 (± 18.2). It was found that the stigma score of the patients was not significantly related to age, gender, education, and employment (p> 0.05); but was worse in divorced/widowed patients (p = 0.039); and was worse in patients who reported that their work, school, and private life were affected due to MS (p <0.05). The regression analysis showed that neuropsychiatric (p<0.001), urinary (p<0.001) and sensory (p=0.029) symptoms contributed the most to stigma. Conclusions: A study on PwMS in Turkiye showed a mild level of stigma. The symptom burden of the patients correlated with the stigma level suggesting that effective symptom control may help reduce the stigma level of PwMS.

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Section: Multiple Sclerosis-related Symptom Checklistmentioning

confidence: 99%

Relationship between stigma and symptom burden in patients with multiple sclerosis

Yeni¹,

Özdelikara²,

Terzı³

2023

NeuroAsia

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The Role of Sex and Other Personal Characteristics in the Effects of Symptoms Severity on Self‐Care Agency in Individuals with Multiple Sclerosis

Demirci,

Yeşilot,

Eskimez

2024

Brain and Behavior

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BackgroundMultiple sclerosis (MS) is a chronic, autoimmune disease that attacks the central nervous system.AimsThe study was conducted to determine the role of sex and other personal characteristics in the impact of symptom severity on self‐care in individuals with MS.MethodsThe study was cross‐sectional and was completed with 200 participants throughout Turkey. The data were collected through random and snowball sampling using the MS‐related symptom checklist (MS‐RS), the Fatigue Severity Scale (FSS), and the Exercise of Self‐Care Agency (ESCA) form. The data obtained were analyzed using the SPSS 21. Statistical significance was evaluated at the level of p < 0.05.ResultsThe mean age of the participants was 37.97 ± 10.6 years. The mean scores were 47.4 ± 22.41 for MS‐RS, 4.58 ± 2.2 for FSS, and 94.65 ± 24.76 for ESCA in females. The mean MS‐RS score in males was 45 ± 25.89, FSS was 4.33 ± 2.5, and ESCA was 83.43 ± 23.95. There were no significant differences between the sexes except that the ESCA scores were higher in females (p < 0.05). According to a multiple linear regression analysis, the duration of diagnosis and sensory subdimension of MS‐RS negatively affected the ESCA score in females, and this statistically significant model explained 22.6% of ESCA scores.ConclusionThe study found that both sexes had clinically significant fatigue, mildly severe symptoms, and moderate self‐care agency. While being a female positively affected self‐care agency, disease duration, and sensory symptoms negatively affected females’ self‐care agency.

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Cross-cultural adaptation, reliability, and validity of the Turkish version of the SymptoMScreen

Özkeskin

Özden

Bakırhan

et al. 2021

Multiple Sclerosis and Related Disorders

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Validity and Reliability of the Turkish Version of the Multiple Sclerosis- Related Symptom Checklist

Cited by 8 publications

References 41 publications

Relationship between stigma and symptom burden in patients with multiple sclerosis

Relationship between stigma and symptom burden in patients with multiple sclerosis

The Role of Sex and Other Personal Characteristics in the Effects of Symptoms Severity on Self‐Care Agency in Individuals with Multiple Sclerosis

Cross-cultural adaptation, reliability, and validity of the Turkish version of the SymptoMScreen

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