Validity and Reliability of the German Version of the CP QOL-Child and CP QOL-Teen Questionnaire

Abstract

The aim of the study was to determine the psychometric properties of the German version of the Cerebral Palsy Quality of Life Questionnaire for Children and Adolescents (CP QOL-Child and -Teen). It is a condition-specific questionnaire with a self-report version, measuring well-being rather than ill-being, which differs from existing measurement methods. Fourteen children (9–12 years) and 64 caregivers (4–12 years) answered the child questionnaire. Twenty-one adolescents and 26 caregivers (all adolescents 13–18 years) replied to the teen version. Functioning was categorized by the Gross Motor Function Classification System. For CP QOL-child internal consistency (Cronbach's α) ranged from 0.58 to 0.88 and for CP QOL-Teen from 0.68 to 0.95. Test–retest reliability after 2 to 4 weeks ranged between 0.75 and 0.94 in children's version and 0.89 and 0.96 in teen's version. Correlation with well-established generic KIDSCREEN-10 questionnaire was moderate to strong. The German versions of CP QOL-Child and -Teen are appropriate tools for assessing the quality of life of children and adolescents with cerebral palsy in the German-speaking population.

Pain coping tools for children and young adults with a neurodevelopmental disability: A systematic review of measurement properties

“…Internal consistency was reported in six studies, of which five were validity studies where the CP QoL teenager self-report was translated into other languages (Turkish, Persian, Finnish, Polish, and German). In three studies, [51][52][53] there was sufficient evidence of internal consistency and in the other three [54][55][56] there was insufficient or undetermined evidence. In summary, internal consistency was rated as 'low'.…”